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Author Topic: Waiting for a confirmation call - may have a kidney/pancreas today!  (Read 50819 times)
Des
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« Reply #100 on: August 28, 2009, 04:02:35 AM »
Way to go!!!!

I hope you recover soon.....! 
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
kimcanada
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« Reply #101 on: August 28, 2009, 04:29:15 AM »
Maybe J's ex hubbie could let us know so we can flood the hospital with e-mails!!!!


So very happy for you JJ!!
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jbeany
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« Reply #102 on: August 28, 2009, 06:37:26 AM »
Hi, Jbeany's ex-hubby again.  Not much new at this point.  She is in Ann Arbor Michigan at the U of M Transplant Center.  As of this morning she still can't have phone calls.  As soon as I get a phone number for her I will be passing it along.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Des
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« Reply #103 on: August 28, 2009, 06:44:57 AM »
Thanks for the update...... all is watching this thread like a hawk....

Hi... its good to here that she is doing o.k

rather not give out her number to all .... she will be on the phone 24h a day..... hehehehhe

Maybe you can send a  pm to Okarol and she can phone on our behalf......just an idea.

Send her our love and gentle hugs.
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
cariad
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« Reply #104 on: August 28, 2009, 08:17:47 AM »
Overjoyed to hear these wonderful updates!

Thinking of you constantly, jbeany!

 :bestwishes;  :grouphug;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

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« Reply #105 on: August 28, 2009, 08:18:04 AM »
I looked up Ann Arbor Michigan at the U of M Transplant Center. And I can't see a place to e-mail patients  :'(
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jbeany
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« Reply #106 on: August 28, 2009, 09:04:31 AM »
Important news flash:  jbeany is making her own pee.   :cheer: :cheer: :cheer:

This is jbeany's sister, writing from U of M transplant care with EXCELLENT news.  She received a kidney/pancreas combo, and both appear to be working WONDERFULLY!!!  She went into pre-op about 6:30 am Thursday, and was in recovery about 1:45.  Her doctor was very happy with the organs and how well the surgery went.  Her dedication to losing weight has really paid off!  She was moved out of the recovery area about 7:00 Thursday night.

Her cret. levels are at 5.6, and she is no longer receiving insulin because she's levelled off at right about 100. :)

She's still sleepy, only waking for a few minutes at a time, but of course she wanted to make sure everyone here was updated.  They should have her sitting up this afternoon. Right now she's dealing with some nausea that's making it hard for her to move around, but the meds for that should kick in soon.

I don't see anywhere that you can send emails to patients here, but as soon as she's up and around, you know she'll be trying to get to a computer.  :2thumbsup; :2thumbsup; :2thumbsup; :cuddle; :bow;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
paris
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« Reply #107 on: August 28, 2009, 09:21:44 AM »
Thank you so much for keeping us updated.  As you can tell, we care about her very much.  We'll be here waiting for more updates   :2thumbsup;   
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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« Reply #108 on: August 28, 2009, 09:24:12 AM »
 :cheer: :cheer: :cheer: Thank you for the update!

I am practically crying every time I see an update - this really feels like a family member!

{{{HUGS}}} to JB!!!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #109 on: August 28, 2009, 09:31:16 AM »
I spoke to the hospital gift shop and they said they do balloon bouquets. There doesn't appear to be any way to email greetings to her.
:bestwishes; :bestwishes; :bestwishes;
« Last Edit: August 28, 2009, 02:41:15 PM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kimcanada
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« Reply #110 on: August 28, 2009, 09:43:29 AM »
I am so touched, thank god I don't know her personally because I am not sure I could handle it!

JB , we are all so proud of you, you handled your dialysis with class and you more then deserve this!!!
 :flower; :cheer: :flower; :cheer: :flower; :cheer: :cheer: :flower; :cheer: :flower; :cheer:
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del
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« Reply #111 on: August 28, 2009, 10:09:42 AM »
So glad things are going well!!!  :flower; :flower; :flower; :bandance; :bandance; :bandance; :flower; :flower; :flower; :flower;
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Don't take your organs to heaven.  Heaven knows we need them here.
willieandwinnie
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« Reply #112 on: August 28, 2009, 10:34:04 AM »
 :bandance;  :bandance; We can't stay away from this thread. Thanks so much for the updates. Gives me goose bumps.  :flower;  :cheer:
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"I know there's nothing to it, but I want to know what it is there's nothing to"
lola
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I can fly!!!
« Reply #113 on: August 28, 2009, 10:58:40 AM »
 :bandance; :bandance; :bandance; :bandance; :bandance; :flower; :flower; :flower; :flower;
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www.caringbridge.org/visit/ottomachado
monrein
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« Reply #114 on: August 28, 2009, 11:01:54 AM »
 :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower; :flower;

Bouquet for you jbeany.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kelliOR
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« Reply #115 on: August 28, 2009, 12:50:58 PM »
Prayers to you jbeany  :)
and to your donor's family...

I am so happy for you,
love,
kelli
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Shoot for the Moon.....Even if you miss, you'll end up among the Stars ........


Denied PKD for years (Boy, was I good at it!)
Dragged kicking and screaming to dialysis (in center hemo)
Transplant from a friend March 24, 2006 at OHSU
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My two beautifull granddaughters

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« Reply #116 on: August 28, 2009, 12:56:45 PM »
This has been such an upper for me!  :cheer: :cheer: :cheer:

I am soooooo happy for you JBeany.

Yay!

 :bandance; :bandance; :bandance; :bandance;

 :flower; :flower; :flower; :flower;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Meinuk
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« Reply #117 on: August 28, 2009, 01:00:41 PM »
Thinking of you JB.  Take it easy, and heal.  We'll be waiting to hear from you, and your new body parts!!!
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
Red from Canada
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« Reply #118 on: August 28, 2009, 01:10:10 PM »
Great news JBeany!  Congratulations and enjoy!  But don't forget us now that you're free! :yahoo; :yahoo; :clap; :beer1;
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Sunny
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Sunny
« Reply #119 on: August 28, 2009, 02:08:38 PM »
Best news I've had all day.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Wenchie58
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Always carrying the big silly grin!
« Reply #120 on: August 28, 2009, 02:26:37 PM »
I'm out of touch for one day and look what happens!  Maybe I should be incommunicado more often!  Wat to go JB...my thoughts are with you for a speedy recovery!   :cheer:  :cheer:  :cheer:  :cheer:
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #121 on: August 28, 2009, 03:39:39 PM »
Oh Jbeany!!! I'm thrilled for you!!! I'm sorry I haven't posted sooner, but I was in the hospital and just got a message from Karol (thanks Karol!!). You can't see it, but I'm doing a happy dance for you!   :bandance; :bandance; :bandance; :bandance; :bandance;   :cuddle; :cuddle; :cuddle; :cuddle; :cuddle;
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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www.facebook.com/profile.php?id=1659267443&ref=nf 
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Chris
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« Reply #122 on: August 28, 2009, 07:16:04 PM »
Jut got home and went to this thread first. Glad JB is doing better, but hate to hear about the nausea feeling.

To bad we can't send emails or e-cards though. :bestwishes; :cookie; :cookie; :cookie; :cookie; :cookie; :cookie; :cookie;

Bet she will be sick of the liquid diet fast until everything moved around to get both organs in settles down and passes test to start eating solid food.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Laurie
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May 13, 2008
« Reply #123 on: August 28, 2009, 07:21:20 PM »
Great news. Thinking of you and your donor's family  :grouphug;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
RichardMEL
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« Reply #124 on: August 29, 2009, 01:31:54 AM »
To JB's sister(and ex-hubby) thank you so much for the updates... they really help us.. specially when the news is all good. Making her own pee and off the insulin must be an absolute dream for you all!!! SO HAPPY!!!!!!!!!!!!!! It makes the difficult days worth it to know our friends are doing well when they get the special gift!

 :bow; :bow; :bow; :bow; :bow;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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