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Author Topic: Waiting for a confirmation call - may have a kidney/pancreas today!  (Read 50785 times)
jbeany
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« on: August 26, 2009, 09:26:28 AM »
Got the call while at dialysis this morning.  Coordinator said the organs had not been harvested yet, so still needed a visual inspection to ensure that they were viable for transplant.  I'm packed, my two best friends are scrambling to get off work and pack so they can get here and join my wait, and hopefully drive me the 4 hours to the hospital.  Bouncing off the walls, trying to settle down and be patient, in case this one isn't for me. . . .


Aw, heck, never mind settling down!

 :bandance; :bandance; :bandance; :bandance; :bandance;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
paul.karen
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« Reply #1 on: August 26, 2009, 09:31:54 AM »
 :yahoo;

Wishing you the VERY VERY best, i hope this is the set for you...
Sending positive thoughts that you will soon be on your way to a life free of dialysis.
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: August 26, 2009, 09:39:31 AM »
 :pray; :pray; :pray;

Please let this be YOUR time!!!!!
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
paris
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« Reply #3 on: August 26, 2009, 09:44:42 AM »
Jbeany!!  Saying lots of prayers for a perfect match.   :pray;   This is so exciting and I will be here all day waiting with you.   :cuddle;  Tell your friends to post when you get the kidney!  How is that for positive thinking?   I can't imagine how you feel right now.  Sending you love, hope and good thoughts.    :grouphug;    :clap;    :2thumbsup;    :yahoo; 
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
monrein
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Might as well smile
« Reply #4 on: August 26, 2009, 09:46:14 AM »
Bouncing off the walls with you jbeany.  Hope this is it and will watch anxiously for updates.  :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Laurie
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May 13, 2008
« Reply #5 on: August 26, 2009, 10:24:58 AM »
Good luck jbeany! I hope it's yours  :grouphug;
 :flower;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
glitter
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« Reply #6 on: August 26, 2009, 10:34:52 AM »
Hope its yours!!!!!!!!!!!!!!!!!! 
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
kelliOR
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« Reply #7 on: August 26, 2009, 10:51:12 AM »
Oh  jbeany !!!!!!   hoping and praying   :)
love, kelli
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Shoot for the Moon.....Even if you miss, you'll end up among the Stars ........


Denied PKD for years (Boy, was I good at it!)
Dragged kicking and screaming to dialysis (in center hemo)
Transplant from a friend March 24, 2006 at OHSU
paris
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« Reply #8 on: August 26, 2009, 10:59:32 AM »
I am pacing the floors. Trying to keep busy, but just keep coming back to IHD.   :waiting;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kimcanada
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« Reply #9 on: August 26, 2009, 11:55:20 AM »
I first read something in "who loves IHD the most" about you waiting for information about transplant... then I had to "stock" you in the members list to find your profile, and read your last post.... which is this one!!!!!!!!

SOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO excited for you   :pray;   Please dear God let   :pray;  this be JBeany's perfect match   :pray;



Edited : Fixed smiley error - Paris, Moderator
« Last Edit: August 26, 2009, 12:19:51 PM by paris » Logged
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #10 on: August 26, 2009, 12:46:55 PM »
Oh man, the waiting!  :waiting;
I hope if it's meant to be, this will be your day!!  :)
 :pray; :pray; :pray; :pray; :pray; I am storming the heavens with prayers JB!
 :cuddle; :cuddle; :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Romona
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« Reply #11 on: August 26, 2009, 01:20:15 PM »
 :grouphug;
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Pam
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« Reply #12 on: August 26, 2009, 02:09:34 PM »
Jbeany I am so excited for you!!!!! I pray this is it. If you don't post by days end I'm calling Laurie to see if she's heard anything.

Pam
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Chris
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« Reply #13 on: August 26, 2009, 02:11:55 PM »
Hope jbean is the one and a good match. Also hoping she feels the same way I did when I woke up right after the transplant with normal sugars and a clean feeling.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
jbeany
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Cattitude
« Reply #14 on: August 26, 2009, 02:24:41 PM »
Still waiting here.  Just talked to the coordinator as she was leaving for the day.  She gave me her pager number.  Apparently, the hold up is that they are still trying to match all the available organs, and they have not yet gotten everything paired up.  Nothing has been harvested yet.  (Okay, that's the best way I can think to put that.  Someone, somewhere, is still breathing on a machine.  God bless him and his family.)  The waiting continues. . .
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
monrein
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Might as well smile
« Reply #15 on: August 26, 2009, 02:32:08 PM »
S*** I was so hoping you were there now but still OK, the words no go are nowhere in sight.  I hope you're calmer than I am.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paris
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« Reply #16 on: August 26, 2009, 02:40:47 PM »
You are right, Jbeany.  You (we) are waiting while another family is saying goodbye.  We love you and want so much for this to be your kidney and pancreas   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Wattle
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« Reply #17 on: August 26, 2009, 04:03:38 PM »
 :cheer: :cheer:


Oh JB that is the best way to start my morning!!!!  I am now bouncing off the walls with you and Monrein.   :pray; :pray; :pray; :pray; :pray; :pray; :pray; :pray; :pray; :pray;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #18 on: August 26, 2009, 04:12:59 PM »
Wow how exiting.  Someone the other day asked on a thread if anyone had had the call while they were at dialysis - and now here you are!  Thinking of you and fingers crossed.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
kimcanada
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« Reply #19 on: August 26, 2009, 04:32:24 PM »
 :stressed;  :pray;
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Rerun
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Going through life tied to a chair!
« Reply #20 on: August 26, 2009, 04:34:30 PM »
I hope it is your turn JB! 

                                     :pray;
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willieandwinnie
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« Reply #21 on: August 26, 2009, 04:35:17 PM »
 :pray; jbeany, real hard. We got the call at 2:30 am Wednesday morning and admitted by 9 that morning and waited until Thursday after lunch for the kidney to arrive. It was the most stressful wait I have ever been through.  :stressed; Thinking good thoughts and sending tons of prayers and bless that donor and their family.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Meinuk
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« Reply #22 on: August 26, 2009, 04:37:01 PM »
JB, I almost jumped out of my chair when I read your post....

I am thinking of you...  I know that the wait is excruciating, but no matter what, you are getting phone calls.  The clock just started ticking a lot faster and a lot louder.

xxxxxxxxxxx  :grouphug; xxxxxxxx

Anna 
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
Jill D.
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« Reply #23 on: August 26, 2009, 05:13:14 PM »
Jbeany I am hoping and praying that the gift of life is coming your way!!  :cuddle;
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
paris
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« Reply #24 on: August 26, 2009, 05:21:29 PM »
Just sitting here waiting and praying   :pray;    WillieandWinnie, thanks for reminding us that sometimes it is a long process and not just a matter of hours.   Jbeany, we love you.   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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