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Author Topic: Hello  (Read 2218 times)
Danswife
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« on: August 24, 2009, 07:10:35 PM »
Hi,  I'm Lyn.  I am also Dans wife, (Danswife).  We live in the capitol city of WA state, Olympia.  It is in the south Puget Sound area.

Dan has ESRF as a result of his diabetes.  He let it get out of control and had an emergency trip to the ER with a 1400 blood sugar.  He died twice and was brought back with CPR.  Since then he has retired from his job as a building contractor and his new job is diabetes management and kidney dialysis management.  The doctors are amazed at his dedication to staying well in both areas.

I am a paraprofessional (assistant) in a special education preschool.  Got started there when our daughter, Jennifer, was a student.  Jennifer has Down Syndrome and is 37 years old and lives at home with us.  I am pretty much the caretaker of both Dan and Jennifer. 

I am the only one who uses the computer in our house so I get to ask the questions and deliver the answers I get.  Hopefully everyone here will help us negotiate this road ahead.  Oh yes, Dan started his dialysis in September of 2008.

Thanks everyone for just being here as a resource. 
Lyn
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willowtreewren
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My two beautifull granddaughters

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« Reply #1 on: August 24, 2009, 07:15:00 PM »
Hi, Lyn,
You will have to poke around the caregiver's area!  :2thumbsup;

Glad you found us. There is so much support here and lots of information.

Take care of yourself since you have such a big job!

 :welcomesign;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Rerun
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Going through life tied to a chair!
« Reply #2 on: August 24, 2009, 08:17:06 PM »
Hi Lyn, I live in Spokane (the other capitol City)  :o

Sounds like you have your hands full, but you can do it.  Keep reading this site for answers.

                                 :welcomesign;
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monrein
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« Reply #3 on: August 25, 2009, 04:44:58 AM »
 :welcomesign; Lyn  (and Dan also).
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
peleroja
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I have 16 hats, all the same style!
« Reply #4 on: August 25, 2009, 08:46:37 AM »
Welcome aboard, Lyn.  I applaud your role as a caregiver.  Hope we can answer all your questions.
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willieandwinnie
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« Reply #5 on: August 25, 2009, 09:50:21 AM »
 :welcomesign; Lyn. You'll finds lots of caregivers here. Glad you joined us and we look forward to hearing more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
okarol
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« Reply #6 on: August 25, 2009, 10:54:48 PM »
 :waving; hi Lyn,

It sounds like you have had a lot of caregiver experience already. I hope you find some good info here, and some support too.
Welcome!
:welcomesign;

okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #7 on: August 26, 2009, 04:41:54 PM »
Welcome.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
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« Reply #8 on: August 26, 2009, 09:41:35 PM »
      Welcome Lyn         There are so many people here with alot of experience.... I am still learning from them too....  pretty new my self....

                     But Welcome......  looking forward to talking to you ......

                                                                     Kathy
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Jean
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« Reply #9 on: August 27, 2009, 12:29:04 AM »
 :welcomesign;
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One day at a time, thats all I can do.
Bajanne
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« Reply #10 on: August 27, 2009, 09:52:06 AM »
Welcome to our community, Lyn!  You made an excellent move by joining us.  You will find that this site is great for information, and above all, support. There is even a lot of fun around here.  This is not just a website; it is a genuine family, caring and sharing :grouphug;  Continue to let us know how Dan is doing.




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Maxridex
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« Reply #11 on: August 28, 2009, 04:04:24 AM »
 :welcomesign;
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'' Never give up '' & '' You will never walk alone ! ''

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