marie
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Posts: 47
Just living life day by day!
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« on: August 24, 2009, 05:08:57 AM » |
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The bones in her head have already closed, so they have to do surgery to correct it. We take her to the neurosurgeon tomorrow to find out all of the details. She just turned 1 aug. 7th 2009. I know she'll be fine but I just cant stand the thought of her having to get her head cut open.
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-Diagnosed with ESRD mid Sept. of 08 -Started Dialysis mid Sept. of 08 My kidney's failed a month after I gave birth to my beautiful daughter becaused the doctors mis-diagnosed me when I had gallstones which went into my pancreas causing pancreantitis. Now im just waiting to be put on the transplant list I'm very thankful to have a chance to see my lil girl grow up !!
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Slywalker
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« Reply #1 on: August 24, 2009, 05:19:27 AM » |
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Your little girl is really cute. Best wishes for a successful surgery.
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del
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« Reply #2 on: August 24, 2009, 06:09:01 AM » |
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Any parent I think would hate the thought of their child having to be cut open. She'll be fine!! What a cutie!!
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Don't take your organs to heaven. Heaven knows we need them here.
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kimcanada
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« Reply #3 on: August 24, 2009, 06:18:06 AM » |
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What a beautiful child, prayers coming your way, I am sure she will be fine
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willieandwinnie
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« Reply #4 on: August 24, 2009, 06:20:26 AM » |
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marie I be sure to say extra prayers for your beautiful little girl.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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willowtreewren
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« Reply #5 on: August 24, 2009, 06:26:20 AM » |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011.
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cookie2008
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« Reply #6 on: August 24, 2009, 07:21:57 AM » |
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my neice had that surgery in April and she is doing wonderful, your daughter will do wonderful to. She had to wear a helmet which my sister had them put butterflies on it.
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Started PD in 11/07 Started Hemo in 7/08 Started NxStage 5/09
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Pam
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« Reply #7 on: August 24, 2009, 09:58:21 AM » |
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My now 17 yr old GS had the same surgery when he was 3 mos. old. The stories he told when ever he was asked about the scar He has a very thick head of hair and the scar hardly shows now. Hold her extra close and your beautiful baby will be just fine Pam
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paris
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« Reply #8 on: August 24, 2009, 11:23:36 AM » |
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Our friend's son also had this. It sounded so scary and I was so worried about him. Ethan did amazingly well. He wore the helmet for a few months. Now he is 3 and is a healthy, funny, smart little boy. I will keep your family in my thoughts as you go through this. It is always scary when it is a child. She is adorable. I will look forward to you telling us the surgery is over and she is doing well.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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rose1999
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« Reply #9 on: August 24, 2009, 11:54:53 AM » |
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twirl
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« Reply #10 on: August 24, 2009, 01:05:44 PM » |
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she is a little doll and I will pray for her and your family
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Jean
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« Reply #11 on: August 24, 2009, 01:48:39 PM » |
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One day at a time, thats all I can do.
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marti824
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« Reply #12 on: August 24, 2009, 04:26:50 PM » |
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thoughts and prayers are with your daughter and you. she's just beautiful, and will stay that way!
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kellyt
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« Reply #13 on: August 24, 2009, 05:41:31 PM » |
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May the Lord take her in his arms and carry her through this surgery unharmed.
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1993 diagnosed with glomerulonephritis. Oct 41, 2007 - Got fistula placed. Feb 13, 2008 - Activated on "the list". Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta. Nov 5, 2011 - THREE YEARS POST TRANSPLANT!
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