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Author Topic: trouble sleeping?  (Read 2524 times)
swell
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« on: August 22, 2009, 06:55:18 PM »
I was transplanted 4 months ago, and I .have a terrible time sleeping now!  I have a hard time going to sleep and a hard time staying asleep. I have heard prograf can cause this  I am currently on 5 mg. in the a.m. and 6 mg in the p.m. They've been gradually reducing my dose, and I had been hoping that would help, but it hasn't ....
Anyone else have trouble sleeping post transplant?
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ESRD January 2009
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MIbarra
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« Reply #1 on: August 22, 2009, 06:57:37 PM »
I sure did! And still do. Although it is not as bad as right after the transplant. Have you talked to your doctor?
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cariad
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« Reply #2 on: August 22, 2009, 07:21:14 PM »
Are you on prednisone? I had the most debilitating insomnia as a kid after my transplant thanks to prednisone. I don't know about prograf as I've never taken it, but if others are saying this is a side effect, then I would bet that that is the problem.

I'm sorry you're going through this. Best of luck finding a solution!
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chris73
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« Reply #3 on: August 23, 2009, 06:55:59 PM »
I'm about 1 and half post and i take prograf ,cellcept and prednisone i still have trouble sleeping and staying asleep. I have discussed this with tx clinic they prescribed me ambien to help me but the down side to that it causes short term memory loss but its helps me sleep.And was told to  take a Tylenol pm or benedryl to help me sleep,that seems to work also.Hope this helps..God Bless!!!.....Chris
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11/10/07 esrd
12/07/07 permcath placed
dialysis started 2 days later
transplant 4/15/08  from close friend and coworker  of 12 yrs. Thanks Jeff!!
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« Reply #4 on: August 23, 2009, 07:32:48 PM »
I am on Prograf and CellCept alone and have trouble sleeping. I was really bad right after the transplant. Now I just get 3 to 4 hours sleep, but I have been mostly a night person anyway since I was a kid. It will get slightly better. Have you asked for a sleep medication? Those helped me later on. The first time I told them, they gave me Ambien and that did not work. Now I'm on Prosom, but I never take it because I forget to because I am on the PC or I don't feel good and fall asleep on my own.

Good Luck.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
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Eye Surgery - Nov 2012
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No two day's are the same, are they?
swell
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« Reply #5 on: August 26, 2009, 05:56:10 AM »
 I have talked to my doctors about it, and they told me to try benadryl or melatonin.  Neither of these seemed to work for me.
They finally gave me a prescription for Ambien!  It seems to work well for me (hooray!), but I don't want to get in the habit of taking one every night, the docs don't want me to either............... They did not give me any refills on the prescription though, so I'm almost out of it.

Do any of you take a sleeping aid every night? Do your docs have a problem with it?
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Chris
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« Reply #6 on: August 26, 2009, 06:15:43 AM »
My docs gave me refills but I usually don't take the pills and lately haven't had the trouble of sleeping. I have had trouble sleeping to much now and now miss my insomnia. I got more done with my insomnia. :urcrazy;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kellyt
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« Reply #7 on: August 26, 2009, 08:01:16 AM »
High dose Prednisone is what gave me insomnia after transplant.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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