Smelly Urine

[BeachLover]

Why is my urine so foul? I am at 3.9 and still not in dialysis yet. I have notied I am urinating much less and it smells terrible. Is this the way it will be from now on? IMy appetite is dimoniishing and I feel weak and tired and out of breath. I am anemic but on Aranesp. Recently they have upped my dose a lot.
Will the odor get better when I start D?
This isall getting bad and I am losing my spirit. I yearn to feel well again. \Thanks

[Hanify]

Yes bad urine is a sign of bad kidneys.  It will probably get better after dyalysis - I think most of us have clear pale wees.  Oh, the things we share on IHD!

[Des]

My pee smells like amonia..... eeuw. It is mostly darkish... I think it is the bleeding in my cysts. Not sure.

My breath also smells and I'm not even on D yet. oh ya and food tastes like .... well ... nothing. everything is tasteless.

Hang in there .... it is all the stuff building up in your system making you feel so bad.

[peleroja]

Oh, the things we share on IHD!

Not just on IHD.  We share similar stuff in my renal support face to face group.  I guess when you have a common illness, the entire body and its various processes is just fuel for the conversation!

[monrein]

My pee smells like amonia..... eeuw. It is mostly darkish... I think it is the bleeding in my cysts. Not sure.

My breath also smells and I'm not even on D yet. oh ya and food tastes like .... well ... nothing. everything is tasteless.

Hang in there .... it is all the stuff building up in your system making you feel so bad.

Hopefully your breath will improve once you start D.  Mine did.  Pre-D my mouth always tasted like I'd just downed a big gulp of bleach from a rusty metal can.

[Sunny]

My urine was smelling odd lately too. Turns out I have a UTI (urinary tract infection) for which I am on antibiotics. Just make sure that is not the problem. A simple urine dip test at the doctor office can rule it out.

[Jean]

I think that is my problem also. Did the urine specimen and if I have one, will know by Monday I am sure. ( My Dr. reads slowly)And, will also let you know. I am one of the rare ones who have no other symptoms when I have one,no burning, no stinging. I am grateful for that.

[Tallons5]

I too have the same issues am always self conscious and after using the bathroom I spray cleaner hoping to cover up the smell I am waiting on results from labs right now, last few days have been in more pain during urination also it has been so foamy I have since learned it is caused by protein in the urine don't understand how I could be losing so much protein when I don't take in very much, Oh and I have been very active the last few days we are in the process of painting our house there is much to do to get ready and am determind to do as much as I can! perhaps that has something to do with it.
again you are not alone, there is comfort in that I have found.

[paul.karen]

beachlover your at 3.9?  What?

Sounds like you should be on dialysis a few months ago.

[monrein]

Most likely his creatinine, Paul.   My urine had zero smell before I started D...It was purely water, no toxins etc.   Important to see about UTI's that can travel upwards and potentially cause trouble.

[silverhead]

We are convinced that the cause of Sharon's kidney failure was from untreated UTI, she had several bouts of it, and I'm sure she built up some tolerance to it, anyway it caused a lot of scarring in the Ureters leading to the Kidneys, it blocked the flow and her Doctor at the time never tested her for UTI, just treated her for bad back pain, finally took her into the ER and they quickly caught the fact her Creatinine was at 11, by then both Kidney's were to far gone to save.......

[monrein]

That's what happened to me at 8 months old, an UTI and reflux (ureter valves not developed enough to stop backflow)  sent infected urine up into the kidneys causing a whack of grief.  A simple antibiotic at the right time would have been nice but alas in Jamaica in 1953 they said I had PKD. 

[Hanify]

Oh Lord.  I sometimes feel sorry for myself, then I come onto ihd and realise the amazing strength people show through years of trials.  8 months!!