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Author Topic: BR belle from Texas  (Read 2416 times)
BR_belle
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« on: August 08, 2009, 04:48:30 PM »
Hello y'all-

I have been reading this message board for a while now, had a little trouble with registering initially, but am finally here.

A bit about me. I am not on dialysis yet, but will be in the near future. Diagnoses with PKD/ some sort of "renal dysplasia" back in 2001. I'm on the transplant list for 2 years now, so here's hoping......

Other than that, I'm a lady who loves to travel, explore new places, spoil my neices and nephews, shop eat, anything girly........... ;D

All I can say is that I hope this ^&*%*^% disease does not slow me down too much - hey I'm 42 I still got places to go things to accomplish! I know, I know that may  be a bit too much to hope for, but I'm still in pretty good shape healthwise. I am also just starting the lovely Medicare maze as well.  ::)

Anyway, have really appreciated all of the information and support you guys provide on this board. Hope to get to know y'all a bit better!
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #1 on: August 08, 2009, 06:02:08 PM »
Nice to meet you!  Post often.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: August 08, 2009, 06:07:20 PM »
Hi, Belle,

And welcome to IHD!

There are quite a few wonderful folks from Texas here! Welcome to the club!

My husband has PKD. You are fortunate to be on the transplant list before needing dialysis. With luck you will get a kidney without having to start the big D.

This is a good place to find out information.

 :welcomesign;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
kellyt
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« Reply #3 on: August 08, 2009, 06:35:53 PM »
 :waving;    From one Texan to another!     Welcome!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
willieandwinnie
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« Reply #4 on: August 08, 2009, 07:11:31 PM »
 :welcomesign; Belle.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Romona
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« Reply #5 on: August 08, 2009, 08:27:30 PM »
 :welcomesign;
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monrein
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Might as well smile
« Reply #6 on: August 09, 2009, 05:57:13 AM »
 :welcomesign;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #7 on: August 09, 2009, 11:19:59 AM »
Welcome to our community!  I am glad you finally got to join.  I know that I don't have to convince you that this is the best place to be for information, support, and even fun.  You must have seen by now that this is a genuine family :grouphug; caring and sharing.  Just continue to post and let us know how you are progressing and we will be with you all the way.





Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
kitkatz
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« Reply #8 on: August 09, 2009, 12:22:13 PM »
Welcome to the site. I was 36 when dialysis hit my life.   I have tried not to allow this darned disease and treatment to slow me down. I have place to go and people to see.



kitkatz,Moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
paris
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« Reply #9 on: August 09, 2009, 07:40:09 PM »
 :welcomesign;   Glad you finally got through the registration process and joined our family.  You have a good attitude and sometimes that is half the battle.  You already have found out that this site is amazing.  We really care about each other.  We have some great members from Texas!    Welcome to IHD  :2thumbsup;   




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
dwcrawford
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Getting the heck out of town.
« Reply #10 on: August 09, 2009, 08:02:09 PM »
Welcome from Houston, Y'all.   That's in Texas you know.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
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