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Author Topic: New member with dual relationship to kidney disease.  (Read 1999 times)
my4kidsma
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This is life! Swinging with my little girls.

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« on: August 08, 2009, 08:47:49 AM »
I am the mother of an almost 14 year old son who had a kidney transplant when he was 2.  We were blessed to avoid dialysis and go directly to a living donor transplant.

In January my best friend's husband was diagnosed with kidney failure and was immediately put on dialysis.  Since then, 2 of his sisters were tested, the surgery scheduled and within 3 days cancelled because they each have some issue with the kidney they would be left with. It has been disheartening to say the least.

Now Monica, his wife, is scheduled to donate.  The surgery date is 8/19 & I have started fundraising for them.

It has been a amazing to be able to see the ravages of dialysis and watch this family and their struggle with it.

I'm glad to be here & hope to learn lots.

Mary Ann
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willowtreewren
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My two beautifull granddaughters

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« Reply #1 on: August 08, 2009, 08:54:01 AM »
Welcome, Mary Ann.

You WILL be able to learn lots here. there is so much collected wisdom among this family of IHD!

You sound like the kind of friend any family would cherish!

 :welcomesign;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
monrein
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Might as well smile
« Reply #2 on: August 08, 2009, 08:58:02 AM »
 :welcomesign; Monica.  Nice to have you here.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #3 on: August 08, 2009, 09:55:24 AM »
 :welcomesign; Mary Ann. We are happy you found us and keep us updated on things. We are a great group and you will find all kinds of information and support here. :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #4 on: August 08, 2009, 10:07:56 AM »
Welcome to our community, Mary Ann!  It is great to see that concern for your loved ones has brought you here! This is a great place to be.  We have lots of information here, lots of support and even fun.  This is not just a website - it is a genuine family :grouphug; caring and sharing.  Please let Monica know that donors are consider angels and heroes(heroines!)  around here.  Invite her to join us as well.  that way we will be with her all through her journey. 
I hope that your fundraising is very successful.  Please keep us up to date on how that and the whole transplant journey is progressing.




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Romona
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« Reply #5 on: August 08, 2009, 08:31:30 PM »
 :welcomesign; I'm glad you son is doing well. Best Wishes to your friends.
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kitkatz
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« Reply #6 on: August 09, 2009, 12:25:08 PM »
Welcome! I cannot imagine what it must be like to be a parent of a child with a kidney transplant.  Blessing to you and your family!

kitkatz,Moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #7 on: August 09, 2009, 05:06:45 PM »
Welcome
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
paris
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« Reply #8 on: August 09, 2009, 07:15:33 PM »
 :welcomesign;  We are glad you are here too!   You will be a great help to your friend and her husband.  You know first hand how this disease effects the whole family.  I can't imagine what you went through with your son at 2 years old. It is good to read that he is a teenager and doing well.  You are a special friend.   :2thumbsup;   Let us know how things go with upcoming transplant.  And we would love to hear more about your son.   Welcome to IHD   :grouphug;




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Jean
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« Reply #9 on: August 09, 2009, 11:46:16 PM »
 :welcomesign; Glad to have you here.
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One day at a time, thats all I can do.
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