Bad "D" Day

[jpearce]

 I started dialysis around 8 am this morning, at 9 am my line starts pulling. I can feel where the line is trying to suck up the flow, it starts to pulsate visibly. This has been happening for 3 weeks now. They can't get much fluid off cause my blood volume drops to 60% within the first hour. The Dr. tells me I must of put body weight on I says no, I know I'm drinking 1.5 Lt daily, and if their only getting 2.9 off it all adds up.  The Dr. has increased my dry weight 2.8kilos and now I feel like crap, my belly is swollen out I lose my breath faster, no energy whatsoever. What do you do when they can't get at the fluid?

[monrein]

How's your sodium intake? 

[twirl]

I ended in the hospital with conjestive heart failure when they were not getting enough fluid off -
I felt no engery -- tired -- hard to walk very far -- and swollen feet
so be careful

[LightLizard]

i know it's difficult, but for a while you might benefit from cutting back on your fluid intake. from 1.5 liters to one liter, for instance. and make absolutely sure that any food you consume is sodium-free.

[KICKSTART]

I agree you need to cut back on the fluid for a while.

[jpearce]

I'll try to cut back on the fluid, everything else reads normal. I follow a low sodium diet and feel good other then being so heavy laden with the fluid. Thank you for all your input

[jbeany]

Exercise can help increase your circulation, and that can make it easier to pull fluid.

If you still have periods, your hormones are going to make you retain fluid once a month that no amount of dialysis can pull off, too.  I usually have to add .3 to .5 to my dry weight for a week, then drop back down after.

[RightSide]

I'll try to cut back on the fluid, everything else reads normal. I follow a low sodium diet and feel good other then being so heavy laden with the fluid. Thank you for all your input

I found that when I cut my sodium intake below 1,000 mg a day, it made managing fluid much, much easier.  Now my sodium intake is only 800 mg a day, if that.

[Rerun]

Sweat it off.  Either exercise or try sitting in a sauna for a few minutes.  I go sit in my hot car but I know that is probably not a good suggestion.

                                                               

You might ask your clinic or doctor for an extra day on dialysis only pulling fluid.  I think they call it a PUFF.