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Author Topic: Whoo hoo! A Reprieve  (Read 3613 times)
Deanne
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« on: August 05, 2009, 07:43:55 PM »

I saw my neph today. I was so nervous about going. Two weeks ago my blood tests showed a creatinine of 3.2, BUN 79, and potassium of 6.0. She told me earlier that when my creatinine reached 3.0 she'd refer me to start the transplant evaluation process. She took me off lisinipril and had me retest. Today my creatinine was 2.3 and my potassium was 3.3. I'm gonna have a banana and a baked potato and I'm NOT gonna start the transplant evaluation process yet.  :yahoo;
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #1 on: August 05, 2009, 08:37:58 PM »

Yahoo - sounds good!
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
kellyt
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« Reply #2 on: August 05, 2009, 09:16:46 PM »

 :2thumbsup; :clap; :2thumbsup; :clap;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #3 on: August 05, 2009, 09:25:56 PM »

 :flower; It's good to have some positive news!!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Jean
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« Reply #4 on: August 05, 2009, 09:45:09 PM »

 :cheer:  WHOO-HOO!!!!!!!
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One day at a time, thats all I can do.
KICKSTART
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In da House.

« Reply #5 on: August 06, 2009, 02:48:01 AM »

What good news ..so whats your secret? how did you manage that ? Here's your  :bandance;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
willieandwinnie
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« Reply #6 on: August 06, 2009, 02:53:00 AM »

 :yahoo; Deanne, that is wonderful news.  :bandance;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Deanne
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« Reply #7 on: August 06, 2009, 07:32:10 AM »

I think my secret mostly has to be genetics.

I try to eat reasonably well, but I sure don't obsess over it. If I really want that dish of ice cream with choc syrup, I have it -- I just make sure I avoid any other forbidden foods that day. I try to get plenty of exercise and spend a lot of time outside in the summer (My vitamin D level was *very* high). I make sure I get 8 hours of sleep every night. I try to avoid high-stress situations (traded in a high stress job for a low stress job). I just try to be "normal."

I'm not sure who was more surprised -- me or my neph. She keeps telling me she thought I'd be on dialysis years ago. I went in to my appointment sure she was going to refer me to a transplant center and have me schedule a fistula setup.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Wattle
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« Reply #8 on: August 08, 2009, 07:50:50 PM »

 :cheer:  Great news. The longer you avoid Dialysis the better!
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
monrein
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Might as well smile

« Reply #9 on: August 09, 2009, 06:59:13 AM »

Deanne, that's so great.  Keep it up, whatever "it" is.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
lola
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I can fly!!!

« Reply #10 on: August 09, 2009, 07:25:19 AM »

 :bandance; :bandance;
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willowtreewren
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My two beautifull granddaughters

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« Reply #11 on: August 09, 2009, 09:33:19 AM »

It is always great to share in good news. Yea!  :bandance; :bandance; :bandance; :bandance;

Enjoy that banana!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
thegrammalady
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« Reply #12 on: August 09, 2009, 10:00:55 AM »

yea! for you. keep up the good work.  :2thumbsup;
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
rose1999
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« Reply #13 on: August 09, 2009, 12:28:07 PM »

I'm so pleased for you  :yahoo;
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*kana*
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« Reply #14 on: August 09, 2009, 07:11:05 PM »

Have some ice cream for me!

  I was told that Lisinipril does that and most nephs will take you off of it when your kidney function gets worse.  My creatine did the same thing when I went off my lisinipril  but went back up after a short time.     
 
« Last Edit: August 09, 2009, 07:15:35 PM by *kana* » Logged

PD started 09/08
PKD kidneys removed 06/17/09

Failed donor transplant-donor kidney removed,
suspected cancer so not used 06/17/09

Hemo 06/2009-08/2009

Liberty Cycler-11/09-5/13
Nx Stage-current tx
Diagnosed with SEP 2014
Deanne
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« Reply #15 on: August 09, 2009, 07:29:28 PM »

Thanks all! I know my reprieve is temporary so I'm trying to enjoy every minute of it. I had a latte today, ice cream yesterday. I even drank a glass of milk. I'm thinking about getting a potato to bake (gasp!). It's hard not to feel guilty about eating these things since for so long I've thought of them as forbidden.

I'm feeling much more perky off lisinipril, too. It had been "normal" to feel like I was going to pass out upon standing up every time I bent over. I can go out to pull weeds in the garden now and bend over without giving it a second thought.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
*kana*
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« Reply #16 on: August 09, 2009, 08:12:30 PM »

Thanks all! I know my reprieve is temporary so I'm trying to enjoy every minute of it.

You deserve to enjoy every minute of it!  I would too!  I hope my post wasn't too.....uhm, not sure what word to use.   :)
« Last Edit: August 09, 2009, 08:14:07 PM by *kana* » Logged

PD started 09/08
PKD kidneys removed 06/17/09

Failed donor transplant-donor kidney removed,
suspected cancer so not used 06/17/09

Hemo 06/2009-08/2009

Liberty Cycler-11/09-5/13
Nx Stage-current tx
Diagnosed with SEP 2014
Deanne
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« Reply #17 on: August 09, 2009, 08:42:32 PM »

Thanks all! I know my reprieve is temporary so I'm trying to enjoy every minute of it.

You deserve to enjoy every minute of it!  I would too!  I hope my post wasn't too.....uhm, not sure what word to use.   :)

Honest?  :thumbup;

I appreciate knowing other peoples' experiences. It's what I expect to happen and If I didn't already expect it, I'd rather be told now than be devasted by an unhappy surprise later.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
*kana*
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« Reply #18 on: August 10, 2009, 03:17:54 PM »

Ok good, I wrote it and rewrote it about 10 times because I didnt want it to sound rude.  I am so brutely honest and not many people like hearing that kind of stuff. 
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PD started 09/08
PKD kidneys removed 06/17/09

Failed donor transplant-donor kidney removed,
suspected cancer so not used 06/17/09

Hemo 06/2009-08/2009

Liberty Cycler-11/09-5/13
Nx Stage-current tx
Diagnosed with SEP 2014
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