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Author Topic: It's all going wrong  (Read 18933 times)
rose1999
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« on: August 05, 2009, 12:40:04 AM »

Oh dear it feels as if life is all going wrong just now.  Yesterday Dad was told that the 'pressure sore' on his heel is gangrenous and his lower leg will need to be amputated.  We have been here before with the other leg and they managed a bypass, but that is not possible for this leg as the veins are too calcified.  The pressure sores were caused because he has his line in this leg (thigh) and so has to keep it still for the 4 hours of dialysis pressing against the bed (well chair).  The District Nurses have been coming for about 5 or 6 weeks to dress this but until Mum noticed the awful smell and called the GP nothing was said. One day I will be complaining but at the moment there is too much to worry about.  At nearly 81 and now very frail with heart problems, an aneurysm, arteriosclerosis  and high blood pressure it is going to be a lot for him to withstand an amputation.

Mum is making herself ill with worry, she is scared he won't survive, scared he will survive and she won't be able to manage him, scared she will become ill (she has very high blood pressure now) and won't be abel to look after them both..........well you can imagine how she feels, just plain scared. 

He will have to go to a hospital that is a 2 hour drive away and there is only me to take Mum every day, he could be there for weeks and weeks.  There is nothing nearer with the facilities to do the operation AND give dialysis.

To add to all of this Molly my fur baby (spaniel) is ill, she has insulinoma and has survived it for 2 years (she was given 10 to 12 weeks at diagnosis) but now the steroids are taking their toll and I'm waiting for blood test results to see if anything can be done. 

Oh my friends, I'm scared and upset and I know no one can change things but please spare a moment to think of us and send positive thoughts, prayers  etc our way for the strength to get through this.

Thank you. Rose xx
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: August 05, 2009, 12:45:07 AM »

 :cuddle; :cuddle; :cuddle;
Rose, I am so sorry. It sounds awful and overwhelming. Your dad has been through so much, and I don't blame your mom for being worried. I wish I could give you a hug.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
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RichardMEL
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« Reply #2 on: August 05, 2009, 12:45:53 AM »

My thoughts are with you and your family Rose. What a terrible shock.. My thoughts are with you and your mum.  :cuddle; :cuddle; :cuddle; :cuddle; :cuddle; :cuddle;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
breezysummerday
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« Reply #3 on: August 05, 2009, 01:00:55 AM »

...my father will be deep like a rose
...tall like a rose...

dear god:

please bless rose with the strength to carry on
bless her with the knowledge that we are surrounding her
with thoughts of love and encouragement to deal with the
tribulations that she must bear.... bless her dad and mum for
making the person she is today...

tall like a Rose...deep like a Rose....
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Rerun
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Going through life tied to a chair!

« Reply #4 on: August 05, 2009, 01:26:24 AM »

Just back up to one moment at a time and stomp out each fire.  One bite of the elephant at a time and you will eat it.  Hang in there.

                    :flower;
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MIbarra
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« Reply #5 on: August 05, 2009, 03:09:22 AM »

 :cuddle; Oh Rose, I'm so sorry!
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paul.karen
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« Reply #6 on: August 05, 2009, 04:20:37 AM »

Oh Rose im sorry to read this.
Prayers to your father your mother and much respect and prayers to you for being there for them.
Please take time for yourself to try and relax and stay healthy yourself.

And wishing the VERY best to molly as well.
You have a full plate as do your parents.
 :grouphug;
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monrein
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Might as well smile

« Reply #7 on: August 05, 2009, 04:29:59 AM »

I was so sad this morning to read your post, Rose.  My thoughts are with you all right now.
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Pyelonephritis (began at 8 mos old)
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New upper-arm fistula April 2008
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Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #8 on: August 05, 2009, 05:17:42 AM »

 :grouphug; Rose, I am so sorry, all my thoughts and prayers are headed your way.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
rose1999
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« Reply #9 on: August 05, 2009, 06:33:14 AM »

Thank you all SO much for your kind words, good wishes and prayers which are all gratefully received. 

The GP rang this lunchtime and Dad has an appointment with the vascular surgeon tomorrow afternoon, which is frightening in its speed as our NHS usually takes a while to get you a consultant's appointment, but good that we don't have too much time to 'what if'.  By this time tomorrow we should be hearing what is to be done and when, and then we can start to get our heads around it.   - Rerun you are right, I CAN eat that elephant!!

I hope yo all know how much your messages and PMs mean to me, I now feel I may have the strength to do this.
xxx
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The Wife
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« Reply #10 on: August 05, 2009, 07:56:12 AM »

Oh dear.  Hang in there Rose.  My thoughts are with all of you.

Sending love...
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cookie2008
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« Reply #11 on: August 05, 2009, 09:00:26 AM »

 :grouphug; :grouphug; :grouphug;
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MandaMe1986
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« Reply #12 on: August 05, 2009, 09:04:38 AM »

I am so sorry we are here for all of you.  :grouphug; :grouphug;
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Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
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Tinah1968
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« Reply #13 on: August 05, 2009, 09:40:15 AM »

Oh Rosse i am so sorry to hear this... I am thinking of you and your family and hoping that you all find the Strength to think positive and I will pray for you.
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Tina
Fistula Oct 2007
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rose1999
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« Reply #14 on: August 05, 2009, 09:56:31 AM »

The x-ray on Molly (dog) this afternoon showed a bladder full of stones, she has to have an operation tomorrow but with her tumour and associated problems there are no guarantees.  You may think she is only a dog, but since Barry (my husband) died 5 years ago she has been my friend and companion, always here and always pleased to see me.  While she is under the knife I will be with Dad finding out his fate.  Tomorrow will be a make or break day and I'm so pleased I have you all to 'listen' to me, or I may just crack under the pressure, thank you so much xxxxx
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David13
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« Reply #15 on: August 05, 2009, 10:01:22 AM »

Rose, I am so sorry to hear about both your father and Molly.  We are here for you!   :grouphug;
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jbeany
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« Reply #16 on: August 05, 2009, 10:16:04 AM »

 :grouphug;
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« Reply #17 on: August 05, 2009, 12:00:49 PM »

Oh, my heart is heavy for you, Rose.  I will have you, your dad, your mum, and your sweet Molly on the top of my prayer list tonight and tomorrow.  We'll be waiting to hear the news from the doctor and the vet.  Hang in there, Rose.  Take care of yourself, too.  Love you!
Petey and Marvin
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paris
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« Reply #18 on: August 05, 2009, 03:32:42 PM »

I am sitting here crying for you and with you.  There is just too much to handle at one time.  I will keep all of you in my prayers.  We just need to get through one day, and then the next.  I am sorry, Rose.  Sending you love and good thoughts.   :grouphug;
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #19 on: August 05, 2009, 03:37:35 PM »

Oh Rose - what a terrible time.  Your family are so lucky to have you looking after them.  Try to look after yourself too.  Know we are all thinking of you and prayeing for you.  Thinking of Molly too.  Oh my gosh you have so much to deal with! 
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
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« Reply #20 on: August 05, 2009, 03:46:28 PM »

I'm sitting here with tears in my eyes and hope in my heart that you will find the strength to bear all this, Rose.

I wish we could be there to help you during this difficult time, but sending hugs,  :grouphug; and support and thinking of you. I understand about Molly. And it just seems like so much for one person to have to deal with.

 :cuddle;

Aleta
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Carl transplanted with cadaveric kidney, February 3, 2011. :)
G-Ma
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« Reply #21 on: August 05, 2009, 04:01:51 PM »

 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
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Aug 5, 08, trained NxStage and Home on 9/3/2008.
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« Reply #22 on: August 05, 2009, 11:35:09 PM »

Oh Rose, that is so sad. I have tears in my eyes just thinking of what you are going thru now and I am so sorry. I wish i could give you a big hug and let you ncry on my shoulder. Keep your chin up honey and we will all be praying for you.
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One day at a time, thats all I can do.
rose1999
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« Reply #23 on: August 06, 2009, 12:20:57 AM »

Again my friends thank you for caring.  Sadly I had to have Molly put down this mornign, I found her in a state of collapse when I got up early to see how she was and I called the vet out.  She went very quickly and peacefully, she had been a happy dog until 2 days ago so I have no regrets............but I will miss her, she was always happy to see me, always by my side.  i hope things go OK wiht Dad later on and I will keep yo posted.  You are my rock.  :grouphug;
Richmel thanks for the PM and helping me smile through the tears, it means a lot. :cuddle;
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #24 on: August 06, 2009, 01:49:47 AM »

 :'(
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
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