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I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: Spouses and Caregivers
It's all going wrong
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Topic: It's all going wrong (Read 18933 times)
rose1999
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It's all going wrong
«
on:
August 05, 2009, 12:40:04 AM »
Oh dear it feels as if life is all going wrong just now. Yesterday Dad was told that the 'pressure sore' on his heel is gangrenous and his lower leg will need to be amputated. We have been here before with the other leg and they managed a bypass, but that is not possible for this leg as the veins are too calcified. The pressure sores were caused because he has his line in this leg (thigh) and so has to keep it still for the 4 hours of dialysis pressing against the bed (well chair). The District Nurses have been coming for about 5 or 6 weeks to dress this but until Mum noticed the awful smell and called the GP nothing was said. One day I will be complaining but at the moment there is too much to worry about. At nearly 81 and now very frail with heart problems, an aneurysm, arteriosclerosis and high blood pressure it is going to be a lot for him to withstand an amputation.
Mum is making herself ill with worry, she is scared he won't survive, scared he will survive and she won't be able to manage him, scared she will become ill (she has very high blood pressure now) and won't be abel to look after them both..........well you can imagine how she feels, just plain scared.
He will have to go to a hospital that is a 2 hour drive away and there is only me to take Mum every day, he could be there for weeks and weeks. There is nothing nearer with the facilities to do the operation AND give dialysis.
To add to all of this Molly my fur baby (spaniel) is ill, she has insulinoma and has survived it for 2 years (she was given 10 to 12 weeks at diagnosis) but now the steroids are taking their toll and I'm waiting for blood test results to see if anything can be done.
Oh my friends, I'm scared and upset and I know no one can change things but please spare a moment to think of us and send positive thoughts, prayers etc our way for the strength to get through this.
Thank you. Rose xx
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okarol
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Photo is Jenna - after Disneyland - 1988
Re: It's all going wrong
«
Reply #1 on:
August 05, 2009, 12:45:07 AM »
Rose, I am so sorry. It sounds awful and overwhelming. Your dad has been through so much, and I don't blame your mom for being worried. I wish I could give you a hug.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
RichardMEL
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Re: It's all going wrong
«
Reply #2 on:
August 05, 2009, 12:45:53 AM »
My thoughts are with you and your family Rose. What a terrible shock.. My thoughts are with you and your mum.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!
BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
breezysummerday
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Re: It's all going wrong
«
Reply #3 on:
August 05, 2009, 01:00:55 AM »
...my father will be deep like a rose
...tall like a rose...
dear god:
please bless rose with the strength to carry on
bless her with the knowledge that we are surrounding her
with thoughts of love and encouragement to deal with the
tribulations that she must bear.... bless her dad and mum for
making the person she is today...
tall like a Rose...deep like a Rose....
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
Rerun
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Going through life tied to a chair!
Re: It's all going wrong
«
Reply #4 on:
August 05, 2009, 01:26:24 AM »
Just back up to one moment at a time and stomp out each fire. One bite of the elephant at a time and you will eat it. Hang in there.
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MIbarra
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Stopping to smell the bluebonnets
Re: It's all going wrong
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Reply #5 on:
August 05, 2009, 03:09:22 AM »
Oh Rose, I'm so sorry!
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Cadaver transplant April 29, 2007
paul.karen
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Re: It's all going wrong
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Reply #6 on:
August 05, 2009, 04:20:37 AM »
Oh Rose im sorry to read this.
Prayers to your father your mother and much respect and prayers to you for being there for them.
Please take time for yourself to try and relax and stay healthy yourself.
And wishing the VERY best to molly as well.
You have a full plate as do your parents.
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Curiosity killed the cat
Satisfaction brought it back
Operation for PD placement 7-14-09
Training for cycler 7-28-09
Started home dialysis using Baxter homechoice
8-7-09
monrein
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Might as well smile
Re: It's all going wrong
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Reply #7 on:
August 05, 2009, 04:29:59 AM »
I was so sad this morning to read your post, Rose. My thoughts are with you all right now.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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Re: It's all going wrong
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Reply #8 on:
August 05, 2009, 05:17:42 AM »
Rose, I am so sorry, all my thoughts and prayers are headed your way.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
rose1999
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Re: It's all going wrong
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Reply #9 on:
August 05, 2009, 06:33:14 AM »
Thank you all SO much for your kind words, good wishes and prayers which are all gratefully received.
The GP rang this lunchtime and Dad has an appointment with the vascular surgeon tomorrow afternoon, which is frightening in its speed as our NHS usually takes a while to get you a consultant's appointment, but good that we don't have too much time to 'what if'. By this time tomorrow we should be hearing what is to be done and when, and then we can start to get our heads around it. - Rerun you are right, I CAN eat that elephant!!
I hope yo all know how much your messages and PMs mean to me, I now feel I may have the strength to do this.
xxx
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The Wife
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Re: It's all going wrong
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Reply #10 on:
August 05, 2009, 07:56:12 AM »
Oh dear. Hang in there Rose. My thoughts are with all of you.
Sending love...
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cookie2008
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Re: It's all going wrong
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Reply #11 on:
August 05, 2009, 09:00:26 AM »
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
MandaMe1986
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Re: It's all going wrong
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Reply #12 on:
August 05, 2009, 09:04:38 AM »
I am so sorry we are here for all of you.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.
Matthew 5:3-9
Tinah1968
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ME
Re: It's all going wrong
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Reply #13 on:
August 05, 2009, 09:40:15 AM »
Oh Rosse i am so sorry to hear this... I am thinking of you and your family and hoping that you all find the Strength to think positive and I will pray for you.
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
rose1999
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Re: It's all going wrong
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Reply #14 on:
August 05, 2009, 09:56:31 AM »
The x-ray on Molly (dog) this afternoon showed a bladder full of stones, she has to have an operation tomorrow but with her tumour and associated problems there are no guarantees. You may think she is only a dog, but since Barry (my husband) died 5 years ago she has been my friend and companion, always here and always pleased to see me. While she is under the knife I will be with Dad finding out his fate. Tomorrow will be a make or break day and I'm so pleased I have you all to 'listen' to me, or I may just crack under the pressure, thank you so much xxxxx
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David13
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A meow massages the heart.
Re: It's all going wrong
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Reply #15 on:
August 05, 2009, 10:01:22 AM »
Rose, I am so sorry to hear about both your father and Molly. We are here for you!
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
jbeany
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Cattitude
Re: It's all going wrong
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Reply #16 on:
August 05, 2009, 10:16:04 AM »
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.
petey
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Re: It's all going wrong
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Reply #17 on:
August 05, 2009, 12:00:49 PM »
Oh, my heart is heavy for you, Rose. I will have you, your dad, your mum, and your sweet Molly on the top of my prayer list tonight and tomorrow. We'll be waiting to hear the news from the doctor and the vet. Hang in there, Rose. Take care of yourself, too. Love you!
Petey and Marvin
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paris
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Re: It's all going wrong
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Reply #18 on:
August 05, 2009, 03:32:42 PM »
I am sitting here crying for you and with you. There is just too much to handle at one time. I will keep all of you in my prayers. We just need to get through one day, and then the next. I am sorry, Rose. Sending you love and good thoughts.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
Re: It's all going wrong
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Reply #19 on:
August 05, 2009, 03:37:35 PM »
Oh Rose - what a terrible time. Your family are so lucky to have you looking after them. Try to look after yourself too. Know we are all thinking of you and prayeing for you. Thinking of Molly too. Oh my gosh you have so much to deal with!
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008. Now on PD with a cycler. Working very part time - teaching music. Love it. Husband is Paul (we're both 46), daughter Molly is 13.
willowtreewren
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My two beautifull granddaughters
Re: It's all going wrong
«
Reply #20 on:
August 05, 2009, 03:46:28 PM »
I'm sitting here with tears in my eyes and hope in my heart that you will find the strength to bear all this, Rose.
I wish we could be there to help you during this difficult time, but sending hugs,
and support and thinking of you. I understand about Molly. And it just seems like so much for one person to have to deal with.
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
G-Ma
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Re: It's all going wrong
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Reply #21 on:
August 05, 2009, 04:01:51 PM »
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07. Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Jean
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Re: It's all going wrong
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Reply #22 on:
August 05, 2009, 11:35:09 PM »
Oh Rose, that is so sad. I have tears in my eyes just thinking of what you are going thru now and I am so sorry. I wish i could give you a big hug and let you ncry on my shoulder. Keep your chin up honey and we will all be praying for you.
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One day at a time, thats all I can do.
rose1999
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Re: It's all going wrong
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Reply #23 on:
August 06, 2009, 12:20:57 AM »
Again my friends thank you for caring. Sadly I had to have Molly put down this mornign, I found her in a state of collapse when I got up early to see how she was and I called the vet out. She went very quickly and peacefully, she had been a happy dog until 2 days ago so I have no regrets............but I will miss her, she was always happy to see me, always by my side. i hope things go OK wiht Dad later on and I will keep yo posted. You are my rock.
Richmel thanks for the PM and helping me smile through the tears, it means a lot.
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
Re: It's all going wrong
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Reply #24 on:
August 06, 2009, 01:49:47 AM »
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008. Now on PD with a cycler. Working very part time - teaching music. Love it. Husband is Paul (we're both 46), daughter Molly is 13.
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