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Author Topic: Hello from Oklahoma  (Read 3067 times)
danbaskett04
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Live To Live
« on: August 02, 2009, 05:11:18 PM »
Hello, I've found this forum and thought i would introduce myself (I'm not very good at this). My name is Dan, I'm 31 years old I've been diagnosed with CKD about 9 months ago. Well I went to the ER in Dec. 08 for pneumonia and found out that my GFR was 19 (didn't know what GFR was till a month ago). I was hospitalized for 4 days. Then 2 weeks later i went back to the ER for dehydration and found out that my spleen and gall bladder are enlarge and that i have Hodgekins Lymphoma. I was hospitalized for a week. My PCP referred me to a Neph. My Neph told me at my last visit that my GFR is 13 and wants to talk about starting dialysis soon. It's kind of scary, I don't know much about CKD or Hodgekins Lymphoma. I have many questions that i would like to ask. Any advice, I would greatly appreciate it.

Thanks
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marti824
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« Reply #1 on: August 02, 2009, 05:37:01 PM »
Hi Dan, welcome aboard.  I've been on dialysis for  year and a half, and I still don't know much about it.  but, this is the place for you.  there are many wonderful and very knowledgeable people here.  They are a wealth of information.  Just keep coming back.
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Razman
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« Reply #2 on: August 02, 2009, 06:46:35 PM »
  It's great that you joined and I think that you've found the best place to get information. Many people with years of experience.  Please look around the site and if you can't find the answere then ask questions.  You are not alone. We are a group that sticks together and understand where you are.  We've been there ourselves.   :grouphug;
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kitkatz
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« Reply #3 on: August 02, 2009, 06:50:41 PM »
I like to think IHD.com is the best place for information about kidney disease, dialysis and treatments on the net for patients.  So welcome to the boards!





kitkatz,Moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #4 on: August 02, 2009, 07:07:34 PM »
 :welcomesign; :welcomesign;

This is the place for you, Dan.

Welcome to our IHD family.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Romona
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« Reply #5 on: August 02, 2009, 08:02:44 PM »
 :welcomesign;
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #6 on: August 03, 2009, 12:08:13 AM »
Welcome to IHD.  Ask lots of questions - someone will know the answer.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
willieandwinnie
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« Reply #7 on: August 03, 2009, 05:33:50 AM »
 :welcomesign; Dan. Glad you found us and we will be happy to answer your questions about anything you want to know. Check out the older threads too, tons of stuff there. When you need support and a good rant we are always here. Hope to hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #8 on: August 03, 2009, 07:35:05 AM »
Welcome to our community!  I totally understand the feeling of being thrown it at the deep end!  But what we both have going for us is - IHD!!!  This is the place where I received the help to cope in my first days of dealing with this renal challenge.  This is just the place for information, support and even fun at times.  You will find that this is a genuine family  :grouphug; - a group of caring and sharing people who will be with you every step of journey.  Just keep reading and keep posting so we will know how you are doing.





Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
MandaMe1986
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« Reply #9 on: August 03, 2009, 08:21:50 AM »
Welcome Dan, this site is wonderful for advice and to have questions anwsered. Anything that is on your mind you come and tell us.  I don't know if you will find another site with as much support as we have here.  Good luck and hope to see you around.

God Bless
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
paris
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« Reply #10 on: August 05, 2009, 03:43:13 PM »
 :welcomesign;  We are glad you joined us.  There is so much to learn, but everyone here is very willing to help answer questions and give support.  It sounds like you are dealing with a lot. Looking forward to seeing more of your posts.  Welcome to IHD.




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
G-Ma
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« Reply #11 on: August 06, 2009, 11:43:06 AM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
twirl
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« Reply #12 on: August 19, 2009, 03:16:02 AM »
Howdy :bandance;
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monrein
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Might as well smile
« Reply #13 on: August 19, 2009, 07:39:06 AM »
 :welcomesign;  Glad you joined us.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paul.karen
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« Reply #14 on: August 19, 2009, 08:02:47 AM »
Hey Dan glad you found us.
Well GFR of 13 is for sure time to start thinking dialysis.  you could stay at 13 for awhile or slip down faster then expected it is tough to say.  But what i learned from this site when i joined that my Neph never mentioned was that there is more then one way to do dialysis.  I thought it would be needles time off of work and sitting in center.  At everyones beck and call except my own.  Then i learned of PD.  Which i do at home on my schedule.
So i would say study your options and see what will fit best into your schedule.

This place got me out of denial and into reality.  it truly is the best site on the net for dialysis patients and information.
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
jessup
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Gemma - the tucker monster
« Reply #15 on: August 19, 2009, 08:27:21 PM »
G'day and  :welcomesign;
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tyefly
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This will be me...... Next spring.... I earned it.
« Reply #16 on: August 19, 2009, 09:58:53 PM »
     All of these people on here have a wealth of information.......  I am pretty new as well   and  I have learned so much from everyone..... Plus there is so really good studies out there giving us hope for a very good life with dialysis.......   So good to have you ........

          Kathy
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Maxridex
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« Reply #17 on: August 28, 2009, 04:01:49 AM »
Welcome :)
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'' Never give up '' & '' You will never walk alone ! ''

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