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grannyM
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« on: August 02, 2009, 09:49:42 AM »
Hello, my name si grannyM, I am searching for information and found this site.  I went to a health fair and had some blood work done. Recieved the results in the mail yesterday.  Said my GFR was 10.  Letter stated results of 15 is kidney failure. So I guess a 10 is not too good.  Not sure what this all means or what I need to do next.   A copy was sent to my family Dr so he should get it anyday now.
I am not sure what questions to even ask.  How do I make an informed decision when I don't understand what I am getting into?
So I will read some posts.

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kellyt
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« Reply #1 on: August 02, 2009, 10:19:11 AM »
Welcome.  Once you are sent to see a Nephrologist you will find out lots more about your health.  Yes, 10 is where "most" people begin dialysis.  But hopefully you'll be referred to a good Nephrologist very soon and more tests will be run.  My GFR was at 10 for a while and I still felt relaitvely good.  I transplanted in Nov 2008 and at that time my GFR was 7.  Again, other than being tired and run down, I still felt relatively good.

So happy you found us.  Read, read, read!  Ask any question you want.  This site is filled with extremely experienced people who are more than happy to share their experiences!   :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
monrein
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« Reply #2 on: August 02, 2009, 10:29:44 AM »
 :welcomesign;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Bajanne
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« Reply #3 on: August 02, 2009, 11:09:56 AM »
Welcome to our community, GrannyM!  You found our site at the exact time that i found it 4 years ago - just when I found out my GFR was at the stage that I would need dialysis.  This site was a God-send and provided me with lots of helpful information from people who had actually experienced these things.  The support here is awesome!  this is much more than just a forum - it is a family.  :grouphug; You will find that these caring people will be with you as you undertake this journey - lots of cybershoulders to lean on!
Read lots, ask lots of questions, and post lots!
Hope everything goes well with you  :cuddle;





Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
willowtreewren
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My two beautifull granddaughters

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« Reply #4 on: August 02, 2009, 11:29:34 AM »
Welcome, GrannyM!

This is a great place to find the kind of information you need to make an informed decision. And you'll find support and humor here, too.

Read though the posts and ask lots of questions. You are starting quite a journey, but we re here for you!

 :welcomesign;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #5 on: August 03, 2009, 12:47:19 AM »
Welcome - ask lots of questions and get familiar with the search thingy!
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
willieandwinnie
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« Reply #6 on: August 03, 2009, 05:31:30 AM »
 :welcomesign; grannyM. You'll find the answers to your questions here and we will be around to support you as you begin your journey. Please post often and ask your questions.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
MandaMe1986
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« Reply #7 on: August 03, 2009, 08:30:19 AM »
Wow, you just found out.  The only thing I can say is call your doc and get in to see him as soon as possable. Be prepaired to be admitted in the hospital and start dialysis right away.  Some kidney docs don't like it getting that low. They might want a biopsy to see if they can figure out what caused it.  Be prepaired to get overwhelmed time and time again.  But I am so happy you found this site right off the bat. There is so much support and love in this site.  I am sure everyone is more then willing to help you get though it in any way possable. Keep us updated and good luck.  :cuddle;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Marsh
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« Reply #8 on: August 03, 2009, 03:23:53 PM »
GrannyM, welcome!!  Come back often.
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peleroja
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« Reply #9 on: August 04, 2009, 06:42:31 AM »
Welcome, grannyM.  Get yourself a good nephrologist, start eating renally (low sodium, low potassium, low phosphorus), and go from there.  Come on back here and post often with all your questions and concerns.  We'll be here for ya!
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kitkatz
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« Reply #10 on: August 04, 2009, 02:55:00 PM »
Welcome.  You need to call your doctor and talk to him about those results. It depends on how you are feeling as to when you start dialysis and your blood work results.  Good luck. Welcome to the site!





kitkatz,Moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
paris
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« Reply #11 on: August 04, 2009, 04:48:35 PM »
Wow! You have a lot to absorb in a short time. Like others have said, you may want to call your doctor and talk to him and not wait until Sept.  But, I will say, some of us have been at a low GFR for awhile and aren't on dialysis yet. I have been around 14 for two years.  Your other lab numbers will help the nephrologist determine when dialysis will begin.  You found this site at a good time.  Please keep asking all the questions you can think of so you will be really prepared when you see the doctor.  There will be someone here that can answer almost anything you ask.  Welcome to IHD. Keep posting and let us know how you are doing. 


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It's not what you gather, but what you scatter that tells what kind of life you have lived.
grannyM
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« Reply #12 on: August 04, 2009, 06:24:42 PM »
Many thnaks to everyone.  I did talk to the Dr and that is the appointment given me.  That is why I thought it may not be too bad because he was in no hurry.  Nearest town with a kidney Dr is 90miles away.  I would just have to pick one out the book.  I thought I would let my family Dr refer me. 
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Jean
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« Reply #13 on: August 04, 2009, 11:25:47 PM »
 :welcomesign; Granny M. This is the place. Dont feel like your questions aren't important. Every one here has been where you are. Come back and post often.
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One day at a time, thats all I can do.
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