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Author Topic: I'm new here  (Read 1980 times)
jeannea
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« on: July 25, 2009, 06:41:34 PM »
Actually I've been lurking a little but decided to join.  My kidney transplant (3/98) failed and I've been on dialysis since early May.  I'm doing hemo right now but thinking of switching to PD.  I'm currently on long term disability from my job and living with my parents so they can help me recover (so strange to move back in at the age of 40).  I've been in and out of the hospital 5 times since the beginning of the year so recovery is slow.  I don't remember a lot from my one visit so I don't even remember consenting to dialysis so it was strange to find out I was doing it once I was more conscious.  I don't love it but my body has finally gotten used to it.  I'm lucky beccause I only have a 3 hour treatment.  I guess that's my intro for now.  I like this site.

Jeanne
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willieandwinnie
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« Reply #1 on: July 25, 2009, 07:05:12 PM »
 :welcomesign; Jeanne. We are glad you came out of lurking to join us. We are a wonderful group and we love to share information and support. You have found a extended family and we hope to hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Wattle
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« Reply #2 on: July 25, 2009, 07:21:45 PM »
 :waving;  Welcome
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
willowtreewren
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My two beautifull granddaughters

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« Reply #3 on: July 25, 2009, 07:55:43 PM »
 :welcomesign;

We are glad you introduced yourself. Welcome to the IHD family.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Romona
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« Reply #4 on: July 25, 2009, 07:57:21 PM »
 :welcomesign;
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #5 on: July 25, 2009, 11:03:19 PM »
Nice to meet you.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Jean
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« Reply #6 on: July 25, 2009, 11:24:24 PM »
 :welcomesign; Glad to have you with us.
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One day at a time, thats all I can do.
monrein
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Might as well smile
« Reply #7 on: July 26, 2009, 06:12:40 AM »
 :welcomesign;  Sorry about your failed transplant but I hope you can get another if at all possible.  I just had my second one in February of this year and so far so good.  I'm glad you found this site because it's really really helpful for all of us who must cope with this kidney stuff.  Post often.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
peleroja
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I have 16 hats, all the same style!
« Reply #8 on: July 26, 2009, 06:16:14 AM »
Hi, Jeanne, and welcome aboard.  Glad you decided to de-lurk.  I'm on PD and would be happy to answer any questions you may have. 
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kellyt
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« Reply #9 on: July 26, 2009, 08:34:11 AM »
Welcome.  What caused your transplanted kidney to fail?  I'm sorry you're back on dialysis, but so glad you found us here.   :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
breezysummerday
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« Reply #10 on: July 27, 2009, 09:30:07 PM »
 :waving;

Hi Jeannea!
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
jeannea
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« Reply #11 on: July 29, 2009, 04:54:16 PM »
Thanks for the welcome everyone.

To answer the question, my kidney probably failed as a result of Prograf toxicity.  Although I also have a problem with CMV.  And it might be age also because my kidney is now 67.  I had so many problems that they don't have a decent answer for me for the rejection.

The doctor told me last night that although he thinks I'll be fine on PD he wants me to wait to switch from hemo until the CMV and c. diff are better.  Sigh.
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MandaMe1986
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« Reply #12 on: July 30, 2009, 10:41:01 AM »
 :welcomesign;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
kitkatz
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« Reply #13 on: August 02, 2009, 07:06:34 AM »
I am so glad you found us here at IHD.com.  We are a super support group.  Dialysis can sure take over your life.  Remind yourself to have some fun once in awhile.
Welcome!





kitkatz,Moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #14 on: August 03, 2009, 07:23:15 AM »
Welcome to our community!  I particularly like delurkers!  I don't have to convince you that this is the best place for information, support and fun!  All I have to let you know is that you are now part of the IHD family  :grouphug; a group of sharing and caring people who will be with you all along this renal journey.  Just keep reading and keep posting.





Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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