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Author Topic: I would like to introduce myself  (Read 3157 times)
kidneyless_In_PA
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« on: July 24, 2009, 08:47:09 AM »
  Hi my name is Robin and I am from Schuylkill Haven Pennsylvania. I started at my clinic on September 26,2008.  I started out on 3rd shift on Monday - Wednesday- Friday and then switched to Tuesday- Thursday- Saturday on 2 nd shift. Now I am on 1st shift on Tuesday- Thursday- Saturday. My clinic is the BMA of Pottsville. Well I came to this after a long road. I was diagnosed with kidney problems on June 12, 1970 and from that time I had many operations , had my right kidney removed cus it was dead in 1980 and a kidney transplant October 26, 2000 and it died cus the Dr that was watching me wasn't doing his job and I rejected 60 % of the kidney and it was down hill till it died in September.I know I will be on dialysis till I die cus they found out not to long ago I have cancer and might have cancer on my other side. I also have a heart condition. My kidney condition is from my dad filling car batteries with lead and when my parents made me it got in me. I know its rare, my old nephrologist did some research and I am the last one remaining from the battery plant that has the illness. :flower;
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Busy 3 times a week and the other 4 days so cold and weak etc.
David13
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« Reply #1 on: July 24, 2009, 09:01:45 AM »
Welcome, Robin!   :welcomesign;

I am sorry to hear about the difficulties with your transplants.  Look around the site.  You will fine a great deal of both support and useful information here.

I hope to see you posting often.
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
monrein
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« Reply #2 on: July 24, 2009, 09:08:17 AM »
 :welcomesign;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paul.karen
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« Reply #3 on: July 24, 2009, 10:50:06 AM »
 :waving;
Hello Robin glad you found us here at IHD.
Interesting story about the whole battery plant.  Sorry you have to be one of the people who have to suffer the side effects.
But glad you found your way here.
See you around the boards :thumbup;
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
kellyt
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« Reply #4 on: July 24, 2009, 11:01:28 AM »
 :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
peleroja
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« Reply #5 on: July 24, 2009, 02:33:55 PM »
Wow, it sounds like you really have your plate full.  Welcome to the group.  Really great people with waterproof shoulders here.  Come on back and post often.
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MandaMe1986
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« Reply #6 on: July 24, 2009, 03:20:28 PM »
 :welcomesign;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Romona
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« Reply #7 on: July 24, 2009, 06:06:15 PM »
 :welcomesign; Hi Robin. I am sorry you have had to endure so much.  :grouphug;
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Jean
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« Reply #8 on: July 24, 2009, 07:58:30 PM »
 :welcomesign;
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One day at a time, thats all I can do.
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #9 on: July 24, 2009, 08:55:28 PM »
Wow you've had a hard road!  Nice to meet you.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
kidneyless_In_PA
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« Reply #10 on: July 25, 2009, 09:52:00 AM »
I was ok with all that was wrong with me till lately . It seems like every time I turn around they find another thing wrong with me. :banghead;
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Busy 3 times a week and the other 4 days so cold and weak etc.
willieandwinnie
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« Reply #11 on: July 25, 2009, 01:35:09 PM »
 :welcomesign; kidneyless. We hope to hear more from you.  :cuddle;
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kitkatz
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« Reply #12 on: August 02, 2009, 07:24:18 AM »
Welcome.  I too, am stuck on dialysis for the rest of my life, so far.  Come on over and join the crowd.  There is a lot of information and support here on IHD.com




kitkatz,Moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Bajanne
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« Reply #13 on: August 02, 2009, 11:35:38 AM »
Welcome to our community, Robin!  I am glad that you found us.  This is just the place for you to be - lots of information, loads of support and barrels of fun!  What a set of challenges you have had!  But I see that you have a strong spirit!  That will see you through!  And we will see you through too.  You see, you had just become a member of the IHD family  :grouphug; a caring and sharing group of people.  Just keep reading and keep posting.




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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