Working on Dialysis

[G-Ma]

Yes Scatterbrain..I feel you, I hear you....another reason I went back to incenter was me living alone and having to drag all the cases of supplies into my storage room from outside as UPS refused to bring them in for me..I was more worn out than ever before.  I can't believe NxStage doesn't have some kind of arrangement with UPS etc to bring supplies in the house for patients..from what I have heard a lot of people in the Charlotte area have gone back to incenter just because of the stocking issue.  I don't have money to hire a stock person...   

[SeaSand]

I have been on dialysis since Dec 28, 2007 and have been working full time the whole time.  I used all sick/vacation days and went on short term disability while training for home hemo.  Tried home hemo for 5 months, and decided it was not for me.  I thought it would give me more time and flexibility to work, but it seemed to take more time and energy, and made me miss more work than when I went to clinic.  Now i am back in clinic M-W-F, from 4:00-8:00pm so I am able to keep my normal work schedule.  I work for a software company, and my manager has been most excellent.  He lets me work from home (so I can sleep an extra 1 1/2 hrs in the morning - no commute).  So now I can work, and when I get really tired I can take a short break and lay down for a few minutes.  Those short power naps are the only thing that keeps me going because I get SOO tired .  I am thinking I will go on disability next year - my heart isn't in the work anymore and I want to spend time with my familiy.  right now it seems like all I do is work, dialysis and sleep.  There's gotta be more to it 

[willieandwinnie]

SeaSand, all I can say is you have a great employer.  My husband became critically ill in 2001 and went on short term disability and then social security disability's and long term through his employer when his kidneys failed. I had my own business until 2003 and just closed it up because I couldn't be there and couldn't dedicate the time that was required. My husband had his transplant last year and things aren't going as well as we had hoped. I miss working but I want to spend as much time with my husband that I can. You will know when your body has said it has had enough. Keep us posted. 

[okarol]

Seasand, Is nocturnal something you have considered?