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Author Topic: Hello from Alaska  (Read 3198 times)
Jie
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« on: July 19, 2009, 05:40:57 PM »
Hi,

My name is Jie and I am from Alaska. I have PKD and have been on PD dialysis for more than a half year.  Just ran across this web site and now I am on board.   --Jie 
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willowtreewren
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My two beautifull granddaughters

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« Reply #1 on: July 19, 2009, 05:43:40 PM »
So glad you found us! This is a great place to get your questions answered by those who have similar experiences.

 :welcomesign;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Romona
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« Reply #2 on: July 19, 2009, 05:44:29 PM »
 :welcomesign;
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Wallyz
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« Reply #3 on: July 19, 2009, 06:42:32 PM »
Welcome! Wherein Alaska are you? I was working in Southeast when I got sick.
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #4 on: July 19, 2009, 08:16:29 PM »
Nice to meet you.  Post often.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
breezysummerday
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« Reply #5 on: July 19, 2009, 08:36:16 PM »
                                   :welcomesign;    :welcomesign;

                                                    :waving;

Hi Jie!
I'm in Anchorage
My s/o Ray is on dialysis
Hope to here more from you..................debs
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
Jie
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« Reply #6 on: July 19, 2009, 09:37:01 PM »
Thanks for everyone. Glad to meet two Alaskans here. I am at Juneau, Southeast Alaska, and one of two PD patients in town. My dialysis clinic is at Anchorage, about 600 miles away.   --Jie
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willieandwinnie
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« Reply #7 on: July 20, 2009, 04:20:08 AM »
 :welcomesign; Jie. 600 miles to the clinic, we have a winner for who has to drive long longest distance. WOW! We are happy that you joined us and look around at some of the older post too. Loads of information and support to be shared here. Hope we hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile
« Reply #8 on: July 20, 2009, 09:36:19 AM »
 :welcomesign;  on board.  Look forward to knowing you better.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
peleroja
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I have 16 hats, all the same style!
« Reply #9 on: July 20, 2009, 10:42:53 AM »
Welcome aboard, Jie.  I was in your lovely state 2 years ago, one week cruise and one week land.  Wow, you have really clean smelling air!  Glad you could join us.  Come on back and post often.
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Jie
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« Reply #10 on: July 20, 2009, 09:08:44 PM »
Hi Willieandwinnie, I cannot drive 600 miles. The 600 miles are air miles. If driving, it takes 2 days, total close to 750 miles, including 50 miles of ocean. The nurse and neph fly down here once a month.  I need to fly a lot too. My PD cycler has earned close to a MVP status with our airline so far this year.


 
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Wallyz
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« Reply #11 on: July 20, 2009, 09:50:02 PM »
I was diagnosed in Petersburg- I came down to Seattle, where my wife was living when I got sick.  I love Juneau, Admiralty, BAranoff, POW, the whole area. 

Y'all can see pics at www.pacificcatalyst.com. I was the engineer in2007.
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boxman55
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« Reply #12 on: July 21, 2009, 07:57:08 AM »
Welcome to the site. glad you found us

Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Jie
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« Reply #13 on: July 21, 2009, 08:51:53 PM »
Hi Wallyz,

This was a great job to have. These are great areas to travel around.

Hi Peleroja,

You must have stopped by Juneau during your cruise. We have about 5 cruise ships to stop by each day during summer.  Tourists are far outnumbering locals at downtown Juneau during summer summer.
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Jean
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« Reply #14 on: July 21, 2009, 10:20:54 PM »
 :welcomesign;
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One day at a time, thats all I can do.
silverhead
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« Reply #15 on: July 22, 2009, 08:14:47 AM »
Welcome to the site, We lived in Juneau from '64 to '88, Our son Randy is still there, working at the State Jail as a guard......
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Do not argue with an idiot. He will drag you down to his level and beat you with experience.
paul.karen
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« Reply #16 on: July 22, 2009, 08:23:50 AM »
 :waving;

Glad you found us here at IHD.
Hope to see you post often in many threads
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
kellyt
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« Reply #17 on: July 22, 2009, 08:44:07 AM »
 :waving;   It's great to have you with us.  I was going to say (jokingly, of course) that 600 miles is a heck of a drive!  ;)   I would love to visit Alaska.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
TeenHatesDialysis
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WWW
« Reply #18 on: July 25, 2009, 01:49:33 PM »
 :welcomesign;

I am glad you joined. Lots of support and reliable information. I think that all Nephrologists should recommend this forum.  :grouphug;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
marie
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Just living life day by day!
« Reply #19 on: July 25, 2009, 08:14:51 PM »
 :welcomesign;           
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-Diagnosed with ESRD mid Sept. of 08
-Started Dialysis mid Sept. of 08

 My kidney's failed a month after I gave birth to my beautiful daughter becaused the doctors mis-diagnosed me when I had gallstones which went into my pancreas causing pancreantitis. Now im just waiting to be put on the transplant list :)

I'm very thankful to have a chance to see my lil girl grow up !!
Jean
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« Reply #20 on: July 25, 2009, 11:05:04 PM »
BTW, what happens if the weather is bad up there, and the planes can't fly?
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One day at a time, thats all I can do.
Jie
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« Reply #21 on: July 26, 2009, 12:04:06 PM »
Hi Jean,

This is a good question. We have a glacier near to the airport and there are foggy weather from time to time during winter. In the past, if the visibility is low (like below 2 miles), the planes cannot fly. Now some air planes have satellite navigation that can deal with the bad weather. But if the weather is very bad, we still cannot fly. That could be potential problems if we have a kidney transplant and and if we need to fly to the center in an emergency.  Overall, it is not too bad. I flighted a lot during the last 20 years and have only a few times with this problem, mostly occurring 10 years ago. 
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Jean
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« Reply #22 on: July 26, 2009, 07:07:32 PM »
Well, at least it is all thought out. I whimper at the thought of a snowflake anymore.
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One day at a time, thats all I can do.
kitkatz
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« Reply #23 on: August 02, 2009, 07:17:39 AM »
Welcome!  There is another member from Alaska on the boards, too. I just welcomed them!   This board is a great place for support no matter what stage of dialysis you are in.




kitkatz,Moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #24 on: August 02, 2009, 11:49:05 AM »
Welcome to our community!  And a special welcome from someone at the other end of the weather spectrum - the Caribbean - summer 365 days a year!  A dear friend just came back from an Alaskan cruise.  We still have to meet so I can hear all about it and get my Alaska keychain (I collect them)  Here you have found more than just a forum - this is a genuine family  :grouphug;  caring and sharing.  Just keep reading all you can, and post all you can!




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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