Question for those on PD for 3years or more

[bmevans]

  Do any of you have trouble walking?  Pain and weakness in your feet, angles and legs?
Have you acquired RLS since on dialysis?  If you have, what medication helps you?  At over 4 years,
I'm having difficulty walking without pain in my lower extremities, not to mention weakness.  I developed RLS about 2 years ago and wonder whether or not this has anything to do with the pain in my legs.  After having it checked out, my blood flow seems to be fine.  All of the new medications for RLS I've tried with no success.  Ultram seems to take the edge off.  Thanks for sharing!   

[Hanify]

I'm halfway there 0 - but not 3 years yet.  However, I had problem from when I started because I had been so sick that a lot of my muscles had wasted away.  I still cannot walk more than about 200 metres at one time.  I went to a physiotherapist who gave me some small exercises to help develop the muscles again and to build on my core balance.  It's really hard when normal exercise is out of the question.  I truly hope this isn't going to get worse cos of the dialysis.  Good luck.

[KICKSTART]

RLS can start at any time , i wouldnt think the pain is related to it though. The only thing that comes to mind with pain/weakness is high phos , i dont know if you have had yours checked recently or take binders? I take a brilliant drug for RLS called Co-beneldopa , but im in the UK so you might not have it over there?

[peleroja]

Six years on PD as of yesterday.  As far as I know, whatever pains I feel seem to come from arthritis.  I also have RLS, and some nights it absolutely drives me crazy.  I've not yet tried any medication for the RLS.  The only thing I take for my pains is ibuprofen, 600 mg.  Nothing else touches it, and I've tried em all!

[bmevans]

   Thanks for your comments!  KS, your right about the RLS.  Lots of people have it that are not on dialysis.  It drives me up the wall.  As I said earlier, I've been perscribed numerous meds including levadopa but have had serious side effects from them all.  I know there are other meds out there and I probably need to see a neurologist.  The sleep study docs nor my nephrologist can seem to solve the problem.  My phosphorus has never been normal and I do take binders.  I also take sensipar and hectorol.
I'll bring this up when I see my doc this next week.  I wasn't aware that high levels of phosphorus could cause the kind of pain and weakness I've been feeling in my lower extremeties.  And, yes, arthritis is something I have thought about but this pain doesn't seem to come from my joints except my hip and it sometimes feels like a nerve type pain.  In fact, it all feels like a nerve problem!  Thanks for being nice