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Author Topic: We Just Got THE CALL!  (Read 6589 times)
buffalogal
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« on: July 14, 2009, 12:54:54 PM »
Hey all - I haven't posted much, more of a lurker.  But wanted to share the news that my hubby got THE CALL today.  We have a date set for a transplant!  It'll be near the end of August.  The person didn't say who the donor was, not sure when we'll find that out.  But I'm so excited and now there seems like there is stuff to think about and plan.

Any advice on what's ahead of us? 

And thanks for all the info that I've found here, this is a great place to find the real stuff.
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okarol
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« Reply #1 on: July 14, 2009, 12:58:06 PM »

So it's a non-directed living donor I assume?
Congrats - great news!  :yahoo;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
circleNthedrain
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« Reply #2 on: July 14, 2009, 01:11:06 PM »
Great news!!  Please keep us posted.  Looks like its shaping up to be a GREAT summer.
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric  kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
Romona
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« Reply #3 on: July 14, 2009, 01:11:35 PM »
 :bandance; Best Wishes!
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David13
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« Reply #4 on: July 14, 2009, 01:30:14 PM »
Great!   :yahoo;
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kitkatz
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« Reply #5 on: July 14, 2009, 02:12:29 PM »
Good luck.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
paris
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« Reply #6 on: July 14, 2009, 03:15:27 PM »
Tell us more!  Congratulations on the good news.   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Wenchie58
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Always carrying the big silly grin!
« Reply #7 on: July 14, 2009, 04:05:44 PM »
Advice....

1) Take one day at a time
2) Buy a notebook and write everything down, they will bury you in information
3) KEEP SMILING!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
marie
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Just living life day by day!
« Reply #8 on: July 15, 2009, 07:38:40 PM »
Congrats !!!   :yahoo;
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-Diagnosed with ESRD mid Sept. of 08
-Started Dialysis mid Sept. of 08

 My kidney's failed a month after I gave birth to my beautiful daughter becaused the doctors mis-diagnosed me when I had gallstones which went into my pancreas causing pancreantitis. Now im just waiting to be put on the transplant list :)

I'm very thankful to have a chance to see my lil girl grow up !!
MandaMe1986
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« Reply #9 on: July 16, 2009, 11:31:16 AM »
Congrads  :yahoo; :yahoo; :yahoo;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

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monrein
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Might as well smile
« Reply #10 on: July 16, 2009, 11:45:46 AM »
Best of luck and please keep us updated.  You know how much we love this kind of news.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kellyt
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« Reply #11 on: July 16, 2009, 01:06:45 PM »
Congratulations!  That's wonderful news.  Get the house super clean.  Clean out pantry and get rid of things that are either expired or close to being expired.  Do the same with the fridge and your spices.  I steam cleaned the furniture and everything.  It's great that you have some time to plan.

Take a blanket to the hospital and your own pillow.  Also, take a towel. The towels at my hospital were painfully hard!

Buy some big sweats or shorts so that there is no pressure on the incision. 

Good Luck!  I can't wait to hear all about it.  God Bless the donor!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
buffalogal
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« Reply #12 on: July 23, 2009, 07:36:31 PM »
So sorry about the delay in coming back to respond.  We have been super busy!  Thank you all for your well wishes and advice, I just love them all. 

Yes, it is a live donor, a man from our church.  Hubby is A the donor is O, and everything else checked out.  There's the final blood matching the week before, of course.  The donor said that they took his case to committee twice but finally decided it was a go. 

Oddly enough, we are happy but not as excited as friends and family.  Not to say that we aren't happy to get a donor - but I think that we're putting our noses to the grind and trying to get things done and plan for the after.  I'm not sure if this is strange or not!  But I really am glad about him getting a donor - 5 months after all this started.

I do have some questions and probably this is the umpteenth time they've been asked, so please direct me old threads if you'd like.

What do we do now to prepare?  I love the advice of cleaning out the kitchen.  Will we need our house to be super clean when he comes home?

What will the diet be like on the other side?

What can I expect as I wait at the hospital and during that stay?  Should I plan to be there most of the time?  Will there be a lot of down time or will it be busy?

Anything you did that you thought was good - or wish you would've done? 

Thanks for any wisdom you can pass on.  I'll also search out some old threads too.    ;D
« Last Edit: July 23, 2009, 07:38:19 PM by buffalogal » Logged
kellyt
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« Reply #13 on: July 23, 2009, 08:18:24 PM »
The house should be clean, yes.  Mainly kitchen and bathrooms.  If you have indoor cats talk to your transplant team.  If you have birds you may want to find them another home.  No knew pets for the first year following transplant, by the way.

I bought a recliner for my living room and was so glad I did.  It was nice and comfy and I was able to take the pressure off my incision.  Get nice, big, comfy sweats for him to wear.  Something that won't be to tight around the incision.  I had the living room furniture steam cleaned, but we have two indoor dogs.  They needed them, too.  Since it was me that was receiving the kidney I cleaned a lot of stuff that my husband would have never touched like baseboards, ceiling fans, closets, etc.  I knew I'd be down for a few months.  I also premade some food for the freezer so that my husband could "make" dinner.  He went back to work the day after I came home.  I was doing really well and didn't feel I needed that much help.  I just sat in the recliner and watched the Food Channel.  Not a good idea when on steroids!!

If he's on Prednisone, and he probably will be, he will be HUNGRY!!  Get him fruit and veggies.  His diet will not be restricted post surgery unless he is diabetic, then he'll follow a diabetic diet.  Otheriwse, high protein in the beginning to help with healing.  Low sodium, low fat, low carbs (to minimize weight gain which is normal with steroid usage).

If you want more info you can email me.  I'd love to help!   kellytalbert@satx.rr.com

I'm so excited for him!   And you!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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« Reply #14 on: August 13, 2009, 12:38:27 AM »
You can read others experiences in some previous threads of members who have had transplants:
Jenna's story http://ihatedialysis.com/forum/index.php?topic=1721.0
Tamara's journey http://ihatedialysis.com/forum/index.php?topic=3356.0
Monrein's surgery http://ihatedialysis.com/forum/index.php?topic=11970.0
and many more in the transplant section.
Good luck!!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile
« Reply #15 on: August 13, 2009, 06:28:00 AM »
One often overlooked thing to clean are the aerator thingys that are attached to many taps.  Unscrew them and soak in bleach.  These were the culprits of some infections in a hospital.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
joannalee74
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« Reply #16 on: August 13, 2009, 07:47:07 PM »
 :yahoo; I love it when someone gets a kidney!!!! I read the other posts and one thing I can think of (since I work in acute dialysis at the hospital). Some people will need dialysis after they get their transplant while the kidney adjusts to it's new home. So don't be discouraged! I'm so excited for you guys!! What an amazing, selfless donor! We need more like him!! Good luck and keep us posted!! :2thumbsup;
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Joanna
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5 years hemodialysis experience
Employed with Fresenius
=)
buffalogal
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« Reply #17 on: August 24, 2009, 06:43:17 PM »
Thank you all for your help and support!!

I just got back from the hospital, today was THE DAY.  We got up at 3:30am and wow, am I tired now.

The surgery went great, it was a little longer for my husband because of some old scar tissue.  But the kidney is already working!  It looks like everything went well, the donor is doing great too.  The nurses said that he's making enough urine for the entire ward. 

It's been 6 months to the week from when the crisis happened.  It's hard to believe that the transplant was today.  Sometimes it seems like forever, but I know that we had a short time to wait compared to most.  We are so blessed!
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paris
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« Reply #18 on: August 24, 2009, 06:48:50 PM »
Great news   :2thumbsup;   It is good to hear when someone gets a transplant and in a short time.  Sending good wishes to all of you    :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #19 on: August 24, 2009, 07:02:51 PM »
 :yahoo; Yay! Best wishes for a speedy recovery!
Living donors ROCK!!  :thumbup; :thumbup; :thumbup; :thumbup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jbeany
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« Reply #20 on: August 24, 2009, 07:47:08 PM »
 :bandance;

Love hearing good news!
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Des
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« Reply #21 on: August 25, 2009, 02:27:41 AM »
YEAH YEAH

Happy "P" Day!

I hope he recovers soon.!

hugs
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
sico
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« Reply #22 on: August 25, 2009, 04:37:56 AM »
Best wishes to your husband and his new kidney!
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Brad      "Got myself a one way ticket, going the wrong way" - Bon Scott

6/11/08 diagnosed with ESRF, dialysis that day

HD and PD

8th of April 2010 Live kidney transplant from my father.
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #23 on: August 26, 2009, 04:47:09 PM »
Yahoo!
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
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« Reply #24 on: September 04, 2009, 06:54:44 PM »

Any update??
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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