Jess21 gets 2 kidneys from pediatric donor

[Jess21]

Just thought I would give an update!
My 2nd post-transplant appointment went very well- I got my prednisone knocked down to 15mg (and the PA said that I would be on prednisone "for a long time"...does that maybe mean not FOREVER?!?  ), I got off my stomach acid med, and I was told the next time I go in (my 3 month post-transplant appointment), I'll be just seeing a nephrologist!  Also I got both stents out..which just so happened to come out both at the same time.  The doctor said she was going to go play the lottery, cause that NEVER happens. 
However, my prograf level did go up...It has been 7 or 8.  On Monday's draw, it said 7, but on Thursday's draw it said 11.  My coordinator was surprised my creatinine stayed down (1.1 for the last 2 weeks!!!  ), so she said they would just adjust my level depending on this week's level, which they should get the results on either Thursday or Friday  .  I was worried that if my prograf level was still high, my creatinine would be up this week, but it was still 1.1 on Monday.  However, my BUN dropped down to 7 from like 12 last week.  LOL...Why doesn't anything normal ever happen to me?
I asked if I could get lowered on my BP meds since my BP has been running around 105/60 in the morning.  But of course, it was in the 120s/80s the whole time I was there.  The PA told me they like to have patient's BP as low as possible without being light headed, then they will drop the meds down.  Well, this week I've had 2 readings of around 95/60, so I have a feeling that may be happening sooner than later.  I also signed up at the gym today...I was at this gym before I got sick, so it will be nice to get back into it!   

[okarol]

  Great overall Jess!
We had to fight to reduce Jenna's BP meds, actually we just had her taking half and checked her BP twice a day - when the neph saw it was still low he stopped her meds.
Congrats! Hope things continue to level out! 

[Chris]

Seems odd they have you stopping the stomach acid med with the effects some of these immunosuppressants have on the stomach. Your the first I've seen taken off that med. Hope they will check on your bones later also due to the effects of prednisone.

[Jess21]

Seems odd they have you stopping the stomach acid med with the effects some of these immunosuppressants have on the stomach. Your the first I've seen taken off that med. Hope they will check on your bones later also due to the effects of prednisone.

The PA took me off the stomach acid med since I haven't had any stomach problems since taking the meds, and she said because of my age she's not really concerned with me developing ulcers.  She told me to start taking it again if I develop heartburn.  And yes, I have to get a bone scan done in 3-6 months so they will have a baseline for in the future.

[Wattle]

   Yay Jess,


It is all up from here!! Graduating soon, a new car and perfect creatinine!!  I am grinning from ear to ear for you.        

[Jess21]

I went for my 3 month post transplant appointment Thursday (even though it's not 3 months until tomorrow!).  My creatinine was the lowest it has ever been... 0.9!!!!!!!!!!!!!!!!!!! 
My prograf level keeps going up...7...then 9...2 weeks ago 12.  My appointment wasn't until the afternoon, so I took my AM prograf Thursday.  Then I got a call from the hospital friday because they got my prograf level from Thursday...it was 15.  Well DUUUUH.  I had prograf in my system!  So lets hope it goes down this week.
I also hope this allergies/sinus problem I'm having goes away!  It literally started an hour after I left the cliniic..and has been attempting to kick my butt since! 

[okarol]

Hey Jess! Great news! 

[Chris]

You probably already know this, but Prograf leavels are rare to be the same week after week, even day after day. My tx clinic did the same thing and they knew I took my morning dose. We're not going to take our meds to late so you can take blood test when you feel like it.

Good to hear your Creat is that low.