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Author Topic: Got the call and Jaclyn gets a kidney!  (Read 17874 times)
Chris
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« Reply #25 on: July 05, 2009, 03:31:03 PM »
Thought I responded last night to this, but anyway, Congrats to her for getting a transplant.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #26 on: July 05, 2009, 04:07:48 PM »

 :flower; Good to hear the update! Sending lots of love and hugs!!  :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
thegrammalady
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« Reply #27 on: July 05, 2009, 04:52:24 PM »
... what okarol said....
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RichardMEL
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« Reply #28 on: July 05, 2009, 07:07:58 PM »
Waiting for the happy "pee shot" (Tamara started the trend!! :D )

So very very happy for the young lady! Every time I hear of an IHD transplant I am filled with such hope and happiness for them (yes and a tinge of 'when's my call?')....

So glad the kidney loves her and is working already(that's what I take that to mean!).. AWESOME!!!

freedom from Dialysis. What more could you want on July 4th?!!  :bow; :yahoo;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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« Reply #29 on: July 05, 2009, 07:30:55 PM »
Oh, Susan,
Tears of joy for you and Jaclyn and your whole family! This is such wonderful news.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
monrein
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Might as well smile
« Reply #30 on: July 06, 2009, 02:40:52 AM »
 :clap; :2thumbsup; :bow; :flower;  :cheer: :bandance;
This is such good news.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paul.karen
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« Reply #31 on: July 06, 2009, 07:52:31 AM »
 :yahoo; :clap;

Excellent news to read :thumbup;
Praying all stays well and the kidney lasts a lifetime.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
paris
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« Reply #32 on: July 06, 2009, 09:58:33 AM »
What wonderful news.  You will all be in my prayers.  Also, the family who so graciously gave this gift in the midst of their own grief.   We are all thrilled for your family.   :2thumbsup;
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chris73
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« Reply #33 on: July 06, 2009, 05:40:44 PM »
Always great to hear some one gets off dialysis...God Bless the Donor's family!!!  May it last years to come.. Hope many more get "that call" :clap;
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11/10/07 esrd
12/07/07 permcath placed
dialysis started 2 days later
transplant 4/15/08  from close friend and coworker  of 12 yrs. Thanks Jeff!!
okarol
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« Reply #34 on: July 06, 2009, 10:46:32 PM »
Here's an update from Jaclyn's aunt on facebook:

Karen Becker Hillers says " Happy 4th of July to Jaclyn! She received a new kidney! Freedom from Dialysis! She's up and walking around the hospital looking for the closest Subway! Miracles of Medicine! Now the kid can be a kid again! Keep Smiling! I Love You! Aunt Karen"
« Last Edit: July 08, 2009, 01:56:59 PM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Des
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« Reply #35 on: July 06, 2009, 10:56:22 PM »
SO COOL!!!!!!!

Congrats and may she enjoy being a kid......
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Darthvadar
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« Reply #36 on: July 07, 2009, 01:41:24 AM »
What wonderful news!!!...

Congratulations!... :yahoo;

My God bless and protect her...

Thoughts and prayers for the donor's family... Thank you for your bravery and compassion in donating your precious loved ones organs... May you be rewarded a thousand fold... :flower;

Love to all...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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« Reply #37 on: July 07, 2009, 07:24:28 AM »
That's awesome. Hopes everything goes ok. Can't wait to hear back from you. It's like the process of entering a new world !  :thumbup;
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Sunny
« Reply #38 on: July 08, 2009, 01:28:33 PM »
This is wonderful news. I am so happy that little darling of yours got what she needed.
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Chris
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« Reply #39 on: July 08, 2009, 02:54:44 PM »
Any updates?

Wonder if she will get out as soon as Jess will post tx.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
TeenHatesDialysis
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« Reply #40 on: July 08, 2009, 09:18:06 PM »
Jaclyn's creatinine was 1.3 on Monday, 1.1 on Tuesday. She ate pizza yesterday and power walked around the hospital today. :~) She had a frosty and fries and was in heaven on earth. God bless organ donors. Jaclyn is scheduled to leave the hospital on Friday and we will be staying at the Ronald McDonald house in Palo Alto, CA for 3-4 months. Life is good (GREAT!) Never give up.

 :yahoo; :yahoo; :yahoo; :2thumbsup; :2thumbsup; :2thumbsup; :grouphug;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #41 on: July 08, 2009, 09:46:34 PM »
 :flower; I am so happy for Jaclyn!
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
YLGuy
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« Reply #42 on: July 08, 2009, 09:56:35 PM »
This is awesome news!  I hope you all can get out and enjoy the Bay area a little during her stay.  I worked in downtown Palo Alto for 3 1/2 years. 
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Chris
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« Reply #43 on: July 08, 2009, 10:07:57 PM »
That's great, but what did she really think of the hospital's pizza taste?  :rofl; :rofl;

Staying there 3 to 4 months, that's a long time to be away from home.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
TeenHatesDialysis
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« Reply #44 on: July 11, 2009, 05:24:46 PM »
Jaclyn was discharged from the hospital yesterday, Friday, 7/10. If anyone is struggling with what to send a kidney transplant recipient while recovering, her 3 favorite gifts while inpatient were....
Ghiradelli chocolate
Round Table Pizza
Bottle of Dr. Pepper

We are a walking pharmacy. She is on the following meds:
Prograf 6mg at 8am and 8pm
Cellcept 500 mg at 8am and 8pm
aspirin 81 mg at 8am
Pepcid 20mg at 8am and 8pm
Valcyte 450 mg at 8am
Norvasc 5 mg at 8am
Magnesium plus protein 133 mg at 8am and 8pm
Cipro 500 mg at 8am and 8pm

Vicodin 500 mg as needed (1 yesterday, 0 today...so far)

No steroids. :~)

The past 6 days have been overwhelming! I have never seen so many people come into a hospital room to check out urine! Pee, wonder pee! One after another, "You need to see Jaclyn's perfect pee"  :cheer:

Then, she was not allowed to have water or ice chips until she passed gas. I thought we would have to hire a stunt pooter to pass gas to get Jaclyn ice chips, but it finally came and the docs and entire staff were ecstatic! :cheer:

Last, Jaclyn could not leave the hospital until she had a bowel movement. Wow!  :yahoo; too much excitement when that occurred. Its all about the pee, poots and poo. :clap;

We are staying at Ronald McDonald house. She has met a couple of new friends, 15 yr old Jessica who received a kidney 5 weeks ago and doing great and 14 year old Tatiana who received a heart transplant 6 weeks ago. The kids here are fighters, very supportive group.

Life is GREAT. Never give up.
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
willieandwinnie
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« Reply #45 on: July 11, 2009, 05:39:42 PM »
 :clap; Susan, wonderful news indeed. Give Jaclyn a hug from me.  :cuddle;
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« Reply #46 on: July 11, 2009, 05:55:21 PM »
What wonderful news!   :yahoo;
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« Reply #47 on: July 11, 2009, 06:55:35 PM »
 :bandance; :bandance; :bandance; :bandance;
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Romona
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« Reply #48 on: July 11, 2009, 07:10:49 PM »
 :yahoo; I am so happy for Jaclyn!
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okarol
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« Reply #49 on: July 11, 2009, 07:16:28 PM »

Fabulous!! :yahoo;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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