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TeenHatesDialysis
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« on: July 04, 2009, 04:58:21 PM » |
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After having several potential living donors rejected, several more had been going through the lengthy process when we got "THE CALL" at 2am this morning. A 22 year old organ donor was brain dead from a vehicle accident and being kept alive by machines. His relative decided that he would not want to be kept alive artificially and graciously agreed to donate his organs. He was either at Stanford, our transplant hospital, or close by and he is a 3 antigen match and negative crossmatch for Jaclyn. We flew from Denver to San Francisco at 6am this morning. All airlines were full and our 3 seats were $1900 each! Crazy! Yes, the airlines knew that she had to get to San Francisco for a kidney transplant and still refused to give us a better deal. I am hoping that the insurance company covers most of it, but I knew that she had to be on the plane and at Lucile Packard Childrens Hospital asap. She went into surgery at 2pm. Our surgical team is out this weekend due it being the 4th of July holiday weekend, but we have always been impressed with the transplant staff at Stanford and they brought forward a very impressive team. Jaclyn's surgery will continue 4-5 hours so I do not expect her to be done with surgery until 7pm tonight. It has been 2 1/2 hours and I wish that I would get an update, but nothing yet. Please pray or send positive healing vibes her way. It is ironic that Independence Day has always been her favorite holiday. She loves fireworks and is quite the piromaniac. She will get her new kidney and celebrate her new found freedom from dialysis every 4th of July! I will post an update as soon as I hear anything. Thank you for your support, prayers and positive vibes!   |
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Susan, mom of Jaclyn, Deziree and Valerie www.cotaforjaclynp.comJaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07 Jaclyn started dialysis 1/2/08 Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA Deziree in denial Jaclyn listed 5/08 Deziree listed 1/09 ("Inactive") Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!) |
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willieandwinnie
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« Reply #1 on: July 04, 2009, 05:06:11 PM » |
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 Susan, what wonderful news. I will pray that everything goes well for Jaclyn and will keep your family my thoughts. Donors are angels. 
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« Last Edit: July 04, 2009, 05:10:33 PM by willieandwinnie »
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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okarol
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« Reply #2 on: July 04, 2009, 05:15:46 PM » |
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cariad
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« Reply #3 on: July 04, 2009, 05:27:21 PM » |
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria
People have hope in me. - John Bul Dau, Sudanese Lost Boy
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Romona
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« Reply #4 on: July 04, 2009, 05:44:22 PM » |
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Hanify
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« Reply #5 on: July 04, 2009, 05:45:43 PM » |
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Thanks for keeping us informed. Thinking of you all.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008. Now on PD with a cycler. Working very part time - teaching music. Love it. Husband is Paul (we're both 46), daughter Molly is 13.
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pelagia
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« Reply #6 on: July 04, 2009, 05:54:40 PM » |
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 this is great news Can't wait for the updates!
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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lola
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« Reply #7 on: July 04, 2009, 06:17:35 PM » |
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Rerun
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« Reply #8 on: July 04, 2009, 07:42:31 PM » |
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Praise God for the donor's family to give such an amazing life saving gift. I pray for the surgeon's hands and for Jaclyn's body to accept this new kidney as its own. Independence for years and years to come! Keep us posted! |
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thegrammalady
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« Reply #9 on: July 04, 2009, 08:33:40 PM » |
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fantastic. what a wonderful celebration for the 4th |
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s
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If you can smile when things go wrong, you have someone in mind to blame.
Lead me not into temptation, I can find it myself.
Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.
Some mistakes are too much fun to only make once.
Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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MIbarra
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« Reply #10 on: July 04, 2009, 10:42:40 PM » |
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What terrific news on such a perfect day for it. I hope all goes smoothly and the kidney works immediately! |
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Cadaver transplant April 29, 2007
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breezysummerday
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« Reply #12 on: July 05, 2009, 12:08:21 AM » |
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I am adding my prayers to the circle..
Oh baby girl Jaclyn, hoping it's the best possible outcome
for you. Thank you Dear Lord for the generosity of the
doner's family and that his family has peace of mind knowing
that his passing was not in vain.
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
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RichardMEL
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« Reply #13 on: July 05, 2009, 12:36:13 AM » |
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Oh wow!!! What an Independence day for you to celebrate!!!!
What wonderful news! I hope this kidney lasts for years and years and years.. What fantastic news!!!!
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 3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions  27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!  BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE! |
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kristina
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« Reply #14 on: July 05, 2009, 01:43:43 AM » |
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Great news! I do hope everything is well!
Please keep us posted, kind regards and good luck from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
He was completion and fulfillment in itself, like a meteor which follows its own path.
- Robert Schumann -
... Oportet Vivere ...
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Wattle
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« Reply #15 on: July 05, 2009, 02:37:02 AM » |
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Wonderful news. Wishing Jaclyn a speedy recovery.
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
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kellyt
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« Reply #16 on: July 05, 2009, 04:50:21 AM » |
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Any news yet? I can't wait to hear that Jaclyn's recovering comfortably in a private room! God Bless the donor's family. What a wonderful gift.  |
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1993 diagnosed with glomerulonephritis. Oct 41, 2007 - Got fistula placed. Feb 13, 2008 - Activated on "the list". Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta. Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  |
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Joe Paul
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« Reply #17 on: July 05, 2009, 05:38:21 AM » |
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Great news!! I hope all is well  |
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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rookiegirl
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« Reply #18 on: July 05, 2009, 07:27:57 AM » |
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I'm so happy for your family. Praying for a quick recovery.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
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Sluff
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« Reply #19 on: July 05, 2009, 07:59:44 AM » |
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Awesomeful news1 |
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TeenHatesDialysis
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« Reply #20 on: July 05, 2009, 12:15:43 PM » |
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Jaclyn is loving her new kidney and her new kidney is loving her! God bless her kidney hero and his family. Thank you for all of your support. Life is good!
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Susan, mom of Jaclyn, Deziree and Valerie www.cotaforjaclynp.comJaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07 Jaclyn started dialysis 1/2/08 Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA Deziree in denial Jaclyn listed 5/08 Deziree listed 1/09 ("Inactive") Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!) |
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willieandwinnie
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« Reply #21 on: July 05, 2009, 12:17:04 PM » |
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Jaclyn Bless her donor and please keep us updated.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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lola
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« Reply #22 on: July 05, 2009, 01:19:27 PM » |
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kellyt
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« Reply #23 on: July 05, 2009, 02:02:21 PM » |
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1993 diagnosed with glomerulonephritis. Oct 41, 2007 - Got fistula placed. Feb 13, 2008 - Activated on "the list". Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta. Nov 5, 2011 - THREE YEARS POST TRANSPLANT! |
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Romona
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« Reply #24 on: July 05, 2009, 03:25:25 PM » |
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I am so happy for all of you!
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