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Author Topic: Rejection?  (Read 5176 times)
MIbarra
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Stopping to smell the bluebonnets
« on: June 22, 2009, 09:10:34 AM »
I just got back from my appointment with my neph. My creatinine has ranged from 1.5-1.7 since the transplant. Today's bloodwork shoed 2.4! And BUN 49.

They are scheduling a biopsy for tomorrow. I am freaking out and wondering what I did for this to happen.  :(
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paul.karen
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« Reply #1 on: June 22, 2009, 09:47:01 AM »
Dont blame yourself.

Sometimes these things happen with cadaver kidneys are even kidneys from a perfectly healthy person.
Hopefully they can get it figured out and all will be ok ....
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Curiosity killed the cat
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« Reply #2 on: June 22, 2009, 11:18:40 AM »
Unfortunately there's no way you can predict how long a kidney will last - they give us averages, which means some last a long time and some do not. You can only do the best you know how - and I know you've taken good care of yourself.

Try not to panic -wait for the biopsy report. They should get it done quickly and you will know the next step.

Have they been checking you levels on anti-rejection meds? Sometimes you can get toxicity and it can be reversed. There are lots of rescue therapies available for rejection.

Sending you some love MI -  :cuddle;  :cuddle;  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
harley08
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« Reply #3 on: June 22, 2009, 12:34:25 PM »
My prayers and thoughts are with you, hoping all turns for the best.  :grouphug;
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kellyt
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« Reply #4 on: June 22, 2009, 01:55:38 PM »
I'm sorry!  I posted a response to this on your Facebook and I wasn't thinking it was a transplanted kidney when I did!  Sorry, I forgot!

Anyway, I'm praying hard that you are not rejecting!  Hopefully it's a medication thing!  Please, please, please be a medication thing that can be adjusted!

Keep up posted!!!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
willieandwinnie
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« Reply #5 on: June 22, 2009, 02:59:47 PM »
 :grouphug; Oh MIbarra. I'll say extra big prayers for you.  :cuddle;
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willowtreewren
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« Reply #6 on: June 22, 2009, 03:51:09 PM »
I know it must be hard not to be stressed, but I am really, really hoping that the biopsy will give the answers for a clear course of action to help you keep your kidney.

Many hugs.  :grouphug; :grouphug;

Aleta
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MIbarra
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Stopping to smell the bluebonnets
« Reply #7 on: June 22, 2009, 04:03:05 PM »
Thank you everyone. I am trying to keep my hopes up.
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pelagia
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« Reply #8 on: June 22, 2009, 05:47:25 PM »
I know the waiting is hard.  Please try not to worry.  I will keep you in my thoughts and prayers.  :grouphug;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Wattle
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« Reply #9 on: June 22, 2009, 06:28:51 PM »
 :cuddle;  Wishing you luck with the biopsy. 
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« Reply #10 on: June 22, 2009, 11:32:16 PM »
Sorry for being late MIbarra . I hope it is not rejection and just something going around and you need more fluid intake.

As others have stated, don't freak out, that puts more stress on your body which isn't good. Try watching some comedies or something you enjoy to help relax and get mind off panic mode.

Good Luck
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Diabetes -  age 7

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Diagnosed with ESRD June 29, 1999
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charee
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« Reply #11 on: June 23, 2009, 01:55:40 AM »
thinking of you :cuddle;
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rose1999
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« Reply #12 on: June 23, 2009, 03:36:30 AM »
Manuela you are in my thoughts and prayers  :cuddle;
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tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #13 on: June 23, 2009, 04:38:30 AM »
More thoughts more prayers  :cuddle;
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after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
monrein
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Might as well smile
« Reply #14 on: June 23, 2009, 05:02:03 AM »
Thinking of you.    :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
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Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #15 on: June 23, 2009, 05:31:27 AM »
 :grouphug;  :grouphug;
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lola
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« Reply #16 on: June 23, 2009, 08:12:00 AM »
 :grouphug; :grouphug; hope all is well
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Romona
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« Reply #17 on: June 23, 2009, 09:02:56 AM »
 :grouphug;
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MIbarra
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Stopping to smell the bluebonnets
« Reply #18 on: June 23, 2009, 01:23:36 PM »
Thanks for your well wishes!

We spent the day in the hospital - only to have no biopsy done. I was running fever so the doctor did not want to have it done. He sent me home with antiobiotics. My creatinine was down to 1.9 (2.4 when blood was drawn last Wed.) so this was hopeful. Maybe after antiobiotics takes care of whatever infection this is, my creatinine will get back to "normal" ???

I am keeping fingers and toes crossed. Can you cross a dog's toes? I'd cross those too if I could on my little mutts.   ;D
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Sunny
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Sunny
« Reply #19 on: June 23, 2009, 03:18:43 PM »
I hope the antibiotics help and that it takes care of the problem so you can get back to your usual self. Get lots of rest if you can.
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Sunny, 49 year old female
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paris
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« Reply #20 on: June 23, 2009, 03:56:54 PM »
I will be praying for things to settle down and there is no rejection.    :grouphug;
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kellyt
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« Reply #21 on: July 13, 2009, 05:57:35 PM »
Any new news MIbarra?  How are your labs?  How are you feeling?  What has your doctor said?  Sorry for all the questions.  Rejection is always on the mind (in the front or back) of a transplant recipient.  :)
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
MIbarra
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Stopping to smell the bluebonnets
« Reply #22 on: July 13, 2009, 09:52:39 PM »
Sorry I haven't updated! My creatinine came down from 2.4 to 1.9 to 1.7 -- still a little higher than my normal, but close enough. Doc thinks it was a UTI that went undetected - I don't usually get symptoms until I'm running fever and pretty sick. So I avoided the biopsy - since I was running fever that morning! Thank goodness and things seem to be running ok again. Thanks for asking, Kelly!

And yes, rejection is ALWAYS on my mind. I know it shouldn't be, but I just can't help it. Sometimes I have to push myself to stop worrying and tell myself to enjoy what I've got right now!
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Cadaver transplant April 29, 2007
kellyt
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« Reply #23 on: July 13, 2009, 09:58:32 PM »
Amen!  Keep me posted.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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« Reply #24 on: July 13, 2009, 11:22:18 PM »

When creatinine goes up it's hard not to worry!
I am pleased to hear you are doing better!
xoxoxoxox
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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