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Author Topic: UNOS public comments accepted until Sept. 14, 2009  (Read 5435 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: August 02, 2009, 08:52:00 PM »

Make your voice heard:

Please go to http://www.unos.org/PoliciesAndByLaws/PublicComment/Proposals.asp

Only proposals currently available for public comment are listed. 

Items 1 to 7 are the are current proposals available for public comment.

UNOS public comments accepted until Sept. 14, 2009

1. Kidney Transplantation Committee - Proposal to Include Non-Directed Living Donors and Donor Chains in the Kidney Paired Donation Pilot Program (Affected Program: Kidney Paired Donation Pilot Program) *

2. Living Donor Committee - Proposal to Improve the ABO Verification Process for Living Donors (Affected Policies: Policy 12.3.1 - ABO Identification; Policy 12.8.1. - Reporting Requirements) *

3. Living Donor Committee - Proposed Guidance for the Medical Evaluation of Living Liver Donors ) *

4. Membership and Professional Standards Committee - OPTN Notification Requirements for OPOs, Transplant Hospitals, and Histocompatibility Labs When Faced with an Adverse Action Taken by Regulatory Agencies (Affected Bylaws: Appendix B (Sections I, II, III): Criteria for OPO, Transplant Hospital, and Histocompatibility Laboratory Membership) *

5. Membership and Professional Standards Committee - Proposal to Change the UNOS Bylaws to Reconcile Discrepancies in Patient Volume Requirements for Full and Conditional Program Approval When Qualifying Kidney, Liver and Pancreas Primary Transplant Physicians (Affected Bylaw: Appendix B, Attachment I) *

6. Membership and Professional Standards Committee - Proposal to Add Language to the OPTN/UNOS Bylaws Requiring Transplant Center and OPO Members to Follow State Law Regarding Anatomical Gifts (Affected Bylaws/Policy: Article I, Sec 1.10, Appendix B, Section I and II, and Policy 3.4: Organ Procurement, Distribution and Alternative Systems for Organ Distribution or Allocation) *

7. Organ Procurement Organization (OPO) Committee - Proposal to Change Requirements for Labeling and Packaging Organs Procured by Visiting Transplant Center Teams and for OPO Labeling of Tissue Typing Materials (Affected Policy: Policy 5.0 Standardized Packaging, Labeling and Transporting of Organs, Vessels and Tissue Typing Materials (Organ Procurement Organization) (OPO) Committee) *
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #1 on: August 03, 2009, 12:16:08 AM »

Will have to look further into this. Just reading it here, 4 and 6 makes me need an example.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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