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Author Topic: Bone Marrow Drive Lets You Register For Free (IHD member lola!)  (Read 2426 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: June 17, 2009, 10:56:08 PM »

 Jun 17, 2009 6:01 pm US/Central
Bone Marrow Drive Lets You Register For Free
Reporting
Dennis Douda
(WCCO)

An estimated 10,000 children and adults need life-saving bone marrow transplants each year. Less than a third will find a donor match in their family.

Maybe you are the life-saving donor one of them needs and, this week you can sign up without the usual $52 processing expense through the National Marrow Donor Program.

The Minneapolis-based agency is waving laboratory fees for DNA analysis through June 22 with its "Be the Match Marrowthon."

In Brooklyn Park, Otto Machado understands the value of tissue donors. Since childhood a degenerative condition, called Alport Syndrome, has slowly destroyed his kidney function.

He has had two kidney transplants -- the second of which failed last October -- and again the generosity of strangers saved his life.

"So they had to pull that kidney out and they had to give me bags and bags and bags of blood," said Machado. "If it wasn't available, I wouldn't be [talking to you] right now."

Now, tubes and pumps push dark red blood through a computer controlled console as part of Machado's lifeline.

"This is my kidney, in a way," he said, pointing to a home dialysis machine.

Five mornings a week, for three hours per session, it filters toxins from his blood.

Still, at age 38, he refuses to slow down; playing with his 3-kids, riding off-road motorcycles and working a full time job.

Machado's wife Amy is so thankful that the man she has known since they were children was given a second chance, that she organized a blood and bone marrow drive in his honor.

On Sunday June 21, she will be signing up new members for the National Marrow Registry. It is as simple as filling out a confidential form, swabbing your inner cheek and then remembering your commitment.

"If they call you, you are the only person in the world that can save that individual [who needs a bone marrow transplant]," she said. "So, it is a commitment when you sign up."

"Be the Match Marrowthon" hopes to sign up 46,000 new potential donors.

The Blood & Bone Marrow Drive is Sunday, June 21, from 9 a.m. -2 p.m. at Prince of Peace Lutheran Church at 7217 West Broadway Avenue in Brooklyn Park.

Those interested in joining the Marrow Registry may simply show up.

They may also register online by clicking here. http://www.marrow.org/index.html

Those who wish to give blood should make an appointment at 763-561-7211 or e-mail Amy Machado.

TO WATCH VIDEO GO TO: http://wcco.com/health/bone.marrow.drive.2.1048986.html (UPPER RIGHT)

Photo: In Brooklyn Park, Otto Machado understands the value of tissue donors. Since childhood a degenerative condition, called Alport Syndrome, has slowly destroyed his kidney function. 
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #1 on: June 17, 2009, 11:45:49 PM »

To me it just seems odd that they would charge you the $52 if your willing to donate. That just seems wrong and like being charged to help save someone is not really donating in my mind. Not sure if this is true for each state or center though.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: June 18, 2009, 12:29:01 AM »

When I signed up for our local registry they also mentioned that a $52 fee was required. However, they would waive the charge if you donated blood or plasma (which I did) or if you were from a minority group that they really needed.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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Posts: 9219


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« Reply #3 on: June 18, 2009, 05:20:00 AM »

I know that plasma a person gets some sort of payment for, blood, usually a cookie or something to drink, but still find it odd that you are charged to donate marrow and have to be ready when called to come in as the article mentioned. Seems they should have given you atleast $104 for the marrow, plasma, and or blood.

If they want people to donate, they shouldn't charge them. Of course I could be missing some that is not mentioned in the article.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
cariad
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What's past is prologue

« Reply #4 on: June 18, 2009, 07:24:21 AM »

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« Last Edit: May 19, 2017, 01:01:28 AM by cariad » Logged

Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
lola
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I can fly!!!

« Reply #5 on: June 18, 2009, 09:06:46 AM »

The fee should always be free but for whatever reason it's not, that's why we wanted to take full advantage and have this drive since it's being fully funded by Be the match. And to say SAVE a person's life it is not irresponsible in my eye's as with out it there is no HOPE what so ever.
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cariad
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What's past is prologue

« Reply #6 on: June 18, 2009, 09:23:30 AM »

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« Last Edit: May 19, 2017, 01:01:06 AM by cariad » Logged

Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
lola
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Posts: 2167


I can fly!!!

« Reply #7 on: June 18, 2009, 01:51:23 PM »

Oh don't worry, and believe me Otto and I know far to well how a transplant can become deadly instead of life saving.
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