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Author Topic: Hi from New England  (Read 3927 times)
kaeli211
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« on: June 15, 2009, 12:08:52 PM »
Hello to everyone - I'm 48, born in Connecticut, grew up in Massachusetts and now I live in southern New Hampshire. I've been on hemodialysis for 16 months (PKD, inherited from my dad) and I hate it even more than I hate the Yankees, and that's saying something :)
Seems like I should adjust after 16 months but it's getting harder to cope - I don't talk about it much to anyone and that's probably a bad idea, so here I am...
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Rerun
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Going through life tied to a chair!
« Reply #1 on: June 15, 2009, 12:15:19 PM »
Hi Kaeli,

Welcome to IHD!   :welcomesign;

This is the place to come vent about dialysis.  When your friends and family don't understand.... we do!

This is also a place to ask questions and learn about your new life on dialysis.  You will laugh again too.

Glad you found us!                 :waving;
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willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: June 15, 2009, 12:24:51 PM »
Hi, Kaeli,

My husband and I have been on the dialysis journey for about a year now. Although I'm glad he has this way to stay alive, it just sucks. And even though I hate dialysis, I really, really appreciate the family of support here at IHD.

Welcome.  :welcomesign;

May you find some relief here as I have.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
peleroja
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I have 16 hats, all the same style!
« Reply #3 on: June 15, 2009, 01:17:14 PM »
Welcome to our little corner of the world .  Lots of good information and shoulders to cry on.  Come on back and post often!
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Romona
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« Reply #4 on: June 15, 2009, 01:52:45 PM »
 :welcomesign;
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #5 on: June 15, 2009, 02:43:15 PM »
Welcome to our community, Kaeli!  There is one good thing I can say about dialysis - my IHD family!  So sad that this disease is what caused me to meet some of the greatest people on the planet!  So I am glad that you found us.  This is more than just a forum - it is a genuine family  :grouphug; This is just the place for information, lots and lots of support, and even fun at times.  Just keep reading and keep posting, and let us know how you are doing.




Bajanne,Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
monrein
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Might as well smile
« Reply #6 on: June 15, 2009, 02:49:30 PM »
 :welcomesign;  to the best place to talk and (most importantly) be listened to about kidney disease.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #7 on: June 15, 2009, 03:26:55 PM »
Hi Kaeli, good to meet you.  Is PD not an option?  Ask lots of questions and never be afraid to vent!  It's what keeps most of us same I think (that's for those of you who are sane...hello...hello).
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
kaeli211
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« Reply #8 on: June 15, 2009, 04:28:43 PM »
I guess maybe I should say I hate kidney failure - dialysis is horrible but what's got me going out of my mind is RLS; I've had it for years but it's increased exponentially in the last year. None of the medications or supplements have reliably helped and no matter what kind of of dialysis I choose, I can't walk around to ease my legs while I was doing it! Spent today's dialysis miserable because I couldn't sleep - spent the afternoon reading posts and I feel a little better - thank you all :) I try to keep my sanity by making things, but when the misery takes over on days like these, creativity seems to vanish.
Hopefully tomorrow will be a better day...
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YLGuy
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« Reply #9 on: June 15, 2009, 05:16:53 PM »
 :welcomesign;  Welcome.   :welcomesign;
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Jean
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« Reply #10 on: June 15, 2009, 10:50:36 PM »
Welcome to IHD Kaeli, this is a great web site and a whole lot of nice and informed people, who never get tired of the newbie's asking questions. RLS has got to be one of the miseries of dialysis. I take Robaxin every night, or I will kick my hubster out of bed. Sometimes in the daytime also, so that the cat can lay on my lap and not get bounced off!!!
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One day at a time, thats all I can do.
willieandwinnie
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« Reply #11 on: June 16, 2009, 03:30:55 PM »
 :welcomesign; Kaeli. This is a great place to have a good rant, learn loads and get support all the time. Hope we hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
aharris2
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Volcan Pacaya, Guatemala
« Reply #12 on: June 27, 2009, 12:29:12 PM »
You hate the Yankees? How can that be? Let me guess, you like Boston? (so it's a judgement thing...)

 :waving; and welcome (in spite of your "flaw", I'll try to see past it :) ) A lot has been posted on RLS, I hope you find something that helps. PD has been mentioned, perhaps even NxStage home hemo with the shorter but more frequent treatments would be more tolerable.

( :cheer: Reggie, Reggie, Reggie, Reggie... :cheer: (am I dating myself?) :cheer: ...Reggie, Reggie, Reggie, Reggie... :cheer: )

Alene
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
kellyt
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« Reply #13 on: June 27, 2009, 12:43:03 PM »
 :waving;   RLS is a real pain.  So glad you found us here.  You'll love it!   
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Joe Paul
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« Reply #14 on: June 28, 2009, 11:55:55 AM »
Welcome Kaeli, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
MandaMe1986
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« Reply #15 on: June 29, 2009, 06:48:35 AM »
 :welcomesign;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Maxridex
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« Reply #16 on: July 07, 2009, 06:00:25 AM »
 :welcomesign;
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'' Never give up '' & '' You will never walk alone ! ''

* ARSENAL FC for life *
* AVRIL LAVIGNE FAN *

Feel free to contact me on my msn.
matthew_as123@hotmail.com
Yvonne
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Yvonne
« Reply #17 on: July 07, 2009, 06:42:24 AM »
 :welcomesign; From  :ukflag; You will just love this site Yvonne the wife
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
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