You are joking !!!

[KICKSTART]

Ive just got back from clinic and as most of you know they started me on a new BP med the other week that totally floored me. So today while im waiting to see the doctor (only running an hour late today!) the nurse decides to do my BP  now remember i was on average  220/130 and she told me it was ..wait for it ...85/65, is it any wonder i feel rubbish and cant do anything ! Anyway the good part is they whacked me with a double dose of Epo and are trying to get some iron in me asap, everyone said i looked awful today  (  thanks guys!) Crazy thing is they are not doing anything about my BP dropping so fast ..so onward with the struggle.


Edited: Fixed smiley error - paris, Moderator

[willowtreewren]

Well, Kickstart, at least you know that the BP meds are working! 

Let's hope they get you all straightened out and back on your "energetic" feet soon!

Aleta

[YLGuy]

I can relate.  When I had gone to the ER my BP was 235/123.  My BP after 1 of my dialysis sessions was 83/57.  I talked to the neph as I was completely floored.  He had me stop taking my evening dose of Norvasc and told me not to take ANY BP meds the mornings I have dialysis.  This has helped.

[cherpep]

I used to take medicine for high blood pressure.  Now my blood pressure hangs around 80/60 all the time.   I take Midodrine now to increase my bp, but it never gets ups to normal bps.   It dips REAL low many times during dialysis.  No wonder I feel like crap most of the time, huh?!

[willowtreewren]

Yes, my husband is no longer on any BP meds. His BP drops very low as soon as we fire up the dialysis machine, but then it levels out. He is very fortunate. I feel for all you folks who are battling LOW BP. I know it just sucks.
Aleta

[hurlock1]

Ive just got back from clinic and as most of you know they started me on a new BP med the other week that totally floored me. So today while im waiting to see the doctor (only running an hour late today!) the nurse decides to do my BP  now remember i was on average  220/130 and she told me it was ..wait for it ...85/65, is it any wonder i feel rubbish and cant do anything ! Anyway the good part is they whacked me with a double dose of Epo and are trying to get some iron in me asap, everyone said i looked awful today  (:thumbup;thanks guys!) Crazy thing is they are not doing anything about my BP dropping so fast ..so onward with the struggle.

I too have a new BP med and I too end up with 89/58 etc after dialysis so I don't take the BP med the night before Dialysis. So far it's working out for me. BUT not taking the BP med is hard for me on the night before because I take a mouthful of pills every night. If my wife arranges my pills in the weekly pill thingy, ya' know Sun., Mon., Tue., . . . I only have to remember what day it is. . . BUT! I try to take responsibility for my meds, etc., Because she is an RN and she works hard and has just recently had back surgery and blah blah blah, and probably because of her pain, it is hard for her to remember to do my pills, and etc., etc.

[dwcrawford]

The first week of dialysis my bp was all over the place (up, down, occasionally even normal).  I stopped (under dr's orders) all bp meds and it evened out the 2nd week.  Now I just have to watch toward the end of the session the fluid removal.  Occasionaly they have to adjust but that's because they can't determine dry weight.  We're still trying.  Its difficult because we can't tell just how much urine I am making.  I still don't want to measure it.

[kitkatz]

After I started on nocturnal I had to drop all BP meds.  I was on four strong meds. The doc wants me on Cozaar, but the BP does weird things when I am on the machine, so I quit taking it and things normalized out for me.

[Jean]

That is really interesting. Wow, it would be nice not to have to take all the BP meds I take. Does it work that way no matter what kind of dialysis you are on?

[monrein]

I also was able to go off all (4) of my BP meds when I started D.  Since trx, my BP has stayed good but I remember last time I was transplanted, it slowly crept up as the years passed.