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Author Topic: I'm joining the club tomorrow  (Read 2696 times)
Stoday
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« on: June 03, 2009, 08:19:36 AM »

I'm joining the club tomorrow by having my first (and last, I hope) surgery to establish an A/V fistula. I want it ready to go when I need to have hemo. I wouldn't like to have to start with a catheter.

I'm just beginning to feel a little apprehensive...

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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
David13
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« Reply #1 on: June 03, 2009, 08:23:02 AM »

Good luck tomorrow, Stoday! 

I think you are very smart to be getting the fistula surgery so you will be ready when dialysis starts.  Sometimes catheters can't be avoided, but a fistula is usually a better option if possible. 
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
KICKSTART
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In da House.

« Reply #2 on: June 03, 2009, 08:27:38 AM »

Best of luck  :2thumbsup;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
paul.karen
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« Reply #3 on: June 03, 2009, 08:58:44 AM »

Good move.

Best to have a mature fistula ready to go for sure.

I may have waited to long for my PD operation.  My funtion feel fast this last month.  I have a consult with the surgeon on the 10th. 
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Curiosity killed the cat
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Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
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MandaMe1986
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« Reply #4 on: June 03, 2009, 10:53:42 AM »

Good Luck.  You will be in and out no problem wait and see.  ;) :cuddle;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
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Rivy
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« Reply #5 on: June 03, 2009, 11:07:41 AM »

Good ideal.  I had mine in three month before I decided that I had to go in a dialysis center.  I was happy I did and it was a smart thing to think head. Now I'm fixed with button holes.


It's a smart thing, Rivy

I'm joining the club tomorrow by having my first (and last, I hope) surgery to establish an A/V fistula. I want it ready to go when I need to have hemo. I wouldn't like to have to start with a catheter.

I'm just beginning to feel a little apprehensive...
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twirl
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« Reply #6 on: June 03, 2009, 12:24:03 PM »

I am in that club and I didn't even know there was one  :cheer: :cheer:
when I started dialysis - it was ready and waiting
 :cheer: :flower; :cheer:
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willowtreewren
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« Reply #7 on: June 03, 2009, 02:01:24 PM »

Way to go. My husband had his fistula done about 9 months before he needed it. Boy were we glad. His sister did not and had to start with a catheter.

Will be thinking of you.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Wallyz
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« Reply #8 on: June 03, 2009, 02:52:21 PM »

Welcome.  Its a crappy club to be in, but we're glad you're here. :2thumbsup;
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Rerun
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« Reply #9 on: June 03, 2009, 03:52:13 PM »

Where is your fistula going to be placed?  Ask your Surgeon when you should start squeezing the ball.  It is supposed to help mature your fistula.
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jbeany
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« Reply #10 on: June 03, 2009, 04:58:12 PM »

 :cuddle;

Welcome to the club.  I had mine over a year before I started  Best to have it and not need it right away than the other way around!
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pdpatty
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« Reply #11 on: June 04, 2009, 03:13:32 AM »

welcome to the fistula club. Remember to PUMP that ball every day,not just a few times but HUNDREDS. I still use it  and try to do 3-4 hundred pumps a day. My thumb is continously sore from it but fistula is getting bigger. That is all yhat matters.
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Stoday
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« Reply #12 on: June 05, 2009, 06:51:59 AM »

Well, I've got it now.

Discharged from the hospital 5 hours ago with a leaflet on how to look after my new fistula. All the usual stuff, except NOTHING about a squeezy ball — or squeezy anything else for that matter.

Maybe they have a different opinion of the effectiveness of a ball here in the UK.

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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
willowtreewren
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« Reply #13 on: June 05, 2009, 06:56:51 AM »

Hi, Stoday,
Regarding the squeezy ball, they don't start you with that exercise right away. The fistula has to heal first. Ask about it when you go back in to have it checked. You really so want to develop it, because the larger the fistula is, the less likely that it will clot.

Best wishes.
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
tyefly
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This will be me...... Next spring.... I earned it.

« Reply #14 on: June 05, 2009, 08:01:24 AM »

I have a question about sqeezing the ball and building up the fistula...... sqeezing the ball would be getting your muscles a work out...how does that help the vein or artery.....is it the strenght of the muscle that make the fistula work....and a fistula is simple a vein and artery hooked togeter right????   And  why does it have a sound and buzz to it...what makes the buzz.....does anyone know......  there is nothing in there but tissue and veins...right..... I had a chance to feel one the other day and boy this was a big vibration.... I was quite surprised...... 
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
MandaMe1986
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« Reply #15 on: June 05, 2009, 08:35:10 AM »

It helps the blood flow
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
glitter
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« Reply #16 on: June 05, 2009, 08:37:37 AM »

sounds like your doing the right thing- good luck to you- I will be rooting for your success!
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Jack A Adams July 2, 1957--Feb. 28, 2009
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RCC
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dialysis april 14,2006
monrein
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« Reply #17 on: June 05, 2009, 12:03:49 PM »

I have a question about sqeezing the ball and building up the fistula...... sqeezing the ball would be getting your muscles a work out...how does that help the vein or artery.....is it the strenght of the muscle that make the fistula work....and a fistula is simple a vein and artery hooked togeter right????   And  why does it have a sound and buzz to it...what makes the buzz.....does anyone know......  there is nothing in there but tissue and veins...right..... I had a chance to feel one the other day and boy this was a big vibration.... I was quite surprised......

What you hear and feel when touching a fistula is the sound and movement of arterial blood (which is oxygenated and pumped at great pressure by the heart) being pumped by the heart, turning the corner and rushing into the vein, to which the artery has been attached.  The vein gets bigger to accomodate the greater flow and the greater pressure so it basically becomes an artery.  Veins are closer to the surface than arteries but the blood flow in them is more passive and veins also have valves that help to keep the blood moving along and back to the lungs to be oxygenated and sent out again via the arteries.  The reason that our fistulas don't collapse on themselves, like the veins of people who shoot up drugs, is because they are really arteries that have been diverted into a vein so the blood flow is that much greater.   
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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