Any Coffee drinkers on Dialysis?

[Tinah1968]

Hey IHD are there any Coffee Drinkers on Dialysis? I started Dialysis a little over a week ago and since I started Dialysis I can't seem to drink coffee in the morning. I LOVE COFFEE! I usually can not get to work without a cup of coffee in hand. But as of lately, it seems that the taste is awful so bad that it makes me  .  I thought maybe the coffee pot needed cleaning so I did that, Then I bought a different brand of coffee and that didn't work out for me either. It smells good but I am having trouble drinking it now. Has this happened to anyone else who drinks coffee or maybe with food that you used to like before??

[monrein]

I found that the ammonia metal taste in my mouth made everything taste a bit off when I first started D.  It went away as I became "cleaner", through better dialysis.  I stopped drinking coffee though because it carries a fair bit of potassium so I switched to tea.  It's probably OK to have one (maybe two) cups a day but I preferred to use my potassium up on fruit instead.

[Tinah1968]

I only have once 6oz cup daily. (not anymore) But that is a huge boost for me in the morning... Then I just watch the rest of my food and drink intake after my coffee. I got my labs back and they were really good so still no restrictions on me right now...

[monrein]

Are you having a funny taste in your mouth at all Tina?  My saliva used to dissolve gum at one stage pre-dialysis and even early on into D.  Hope the coffee starts to taste good again for you.

[Tinah1968]

Yes I am definately having a funny taste in my mouth, But, most everything still taste the same.

[KICKSTART]

I dont really drink coffee .. being british im a tea drinker  But one thing i did notice way back was that 'metal' taste ,in fact i had a spell where the only food that actually tasted like food was , apples and milk ! Sometimes its your tablets though that changed the way things taste , i found after i had been on them a while it did go. Frusimide is terrible for making things taste awful 

[twirl]

does hot tea count -- I never drank hot tea until I started dialysis -
my taste in foods have changed -
I now hate Subway-

[Tinah1968]

Maybe Hot Tea is the way to go.... I Love coffee but not anymore.

[jbeany]

Hang in there - once you've been on a while, the funny taste goes away some.  I had none of it while I was on home D.  Now that I'm back in-center, I'm getting it again.  All I want to eat is fruit and chicken.  That's not a bad thing, since I need to lose weight, but I'd like to be able to eat things I used to love.

[dwcrawford]

I had stopped caffinated coffee before dialysis but started back in the hospital that week.  I think it got me through some rouch times.

[cookie2008]

I always felt like  when I drank coffee, but since I started hemo dialysis I feel better now.

[staceyand joe92]

I still have my required Starbucks Late as often as possible....however I have found out that I can not stand the taste of any type of alcohol.  I would normally have a beer or two once a week or a glass of wine with dinner.  I also can't drink any type of diet drinks(orange soda). I get a terrible sweet metal taste for hours afterwards. 

[Hanify]

I went off coffee for months - it was terrible.  However, it did eventually come back.  My worst one was that I went off wine!  Arghhhh.  Never really regained my taste for wine I have to say.  Still tastes a bit metallic.  The coffee thing will come back - might just take a bit of time.

[MIbarra]

I noticed when I started dialysis, coke did not taste the same anymore.

[dwcrawford]

The only thing that doesn't taste the same to me is meat...   it doesn't have gravey on it.

[cherpep]

I went through the exact same thing.  I LOVE coffee.  After I started dialysis, I still loved the smell, but the coffee tasted funny.  It was very frustrating.  I tried different brands, making it stronger or weaker - but it just didn't taste the same to me.  I just kept trying it occasionally, and it eventually tasted good again.  It took a few months.  I really enjoy my coffee again, my blood tests all come back OK, so I haven't had to take it out of my diet.  Thank goodness!

[Tinah1968]

cherpep i hope that it happens that way for me my headaches are terrible

[Chris]

I have been a coffee drinker since I was very young. When I first started dialysis, I didn't drink or eat much for a bit, but after a month in the hospital I started drinking coffe again. Had to get use to using non dairy creamer though, but had my usual coffee in the morning, just not as much. My second dialysis center served 4 oz cups of regular coffee. I use to drink more than a pot of coffee a day too.

Just give yourself some time befor jumping the coffee ship and jumpig to tea 

Atleast you don't have to switch to decaf like I was told too.

[YLGuy]

It is 6:00am as I read this post.  Yes, I have my 1 cup of coffee in front of me right now.  I am still new to D and I do have a slight metalic taste in my mouth as I finish the cup.  I used to drink MANY cups of coffee a day so it is probably a good thing that I am down to just the 1. 

[dwcrawford]

Ditto.  Down to one cup a day.  Never had a metalic taste.  Supposed to be on Decaf but why bother.  For a while I would mix decaf with regular.  Cardiologist said on decaf and that he, being a heavy, strong coffee drinker had found Star Bucks Decaf satisfying.  I  said onlly  rich Cardiologists can have Star Bucks every  morning.

I don't know if it is  available everywhere, but I found one Decaf called Community Coffee that I could drink.  It is from Louisiana and full of Chickory (which could be worse that caffeine).  Very cheap coffee but nasty enough  to be effective.  lol   

[Tinah1968]

I Iced Tea the only time I drink Hot tea is if I have a cold... So I am sticking with Coffee and hoping that eventually it will taste great again

[cherpep]

You know, I totally forgot.  That's when I stopped putting creamer in my coffee.  I now drink it black.  The coffee just kept tasting funny, and I found that when I removed the creamer, the stronger coffee taste came through and that helped me get over that 'funny' taste after starting dialysis.   I totally forgot that. 

[dwcrawford]

been drinking real coffee since I was 3... stopped cream and sugar at age 6.  Doubt I'll ever stop and mmmm  it taste good.

[rookiegirl]

When I was on PD, I had a cup of Starbucks coffee in the morning everyday.  Sometimes on the evening, after dinner.  Now that I had a transplant, I still drink coffee.

[RichardMEL]

I had a cup of starbucks a couple of months ago and it was tasteless. I thought maybe that was dialysis related but maybe not :p

We have a great cafe at my work and they serve awesome coffee. Every morning at 10am I go with my co-workers for the morning cup. So lovely and I love the taste though i think I should ditch the regular milk for soy because of the phosphates as mine has been rising lately. Still I enjoy that and I make room in my fluid allowance for the regular cup... as much for the coffee as for the social time with my co-workers which I think is just as important...