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angellady07
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« on: May 26, 2009, 09:55:12 PM » |
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Please send me your positive thoughts. I had my pd cath surgery on the 14th. and began feeling very ill the following day with fever , abdominal pain and diarrhea. I became increasingly worse and was hospitalized on the 20th when I was simply too weak to finish my treatment. Every culture came back negative. As, I may have mentioned before this is my third cath and have had similar illness whenever a new cath has been inserted or my transfer set has been used. I've also had peritonitis and other complications requiring surgery with my other caths. Today, I called the surgeon regarding removal of the cath. He put up a fight and suggested we " experiment' with the new cath. I'm afraid I don't want to end up back in the hospital. I'm feeling very defeated about the whole experience. I was also told right before discharge that I have "suggestive" colitis . Blood was found my stool. I need to have colon studies. Then in a matter of fact manner I was told I have a solid mass on my uterus. They don't believe it's cancer but I need to have it dealt with. I was in so much pain why didn't they do the colon studies or the consult for the tumor during my hospitalization. I was speechless. Today, I just feel lost like everyone is dropping the ball and the argument with the surgeon didn't help. Sorry for the long post. Please send me positive thoughts.
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« Last Edit: May 26, 2009, 10:49:28 PM by angellady07 »
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rose1999
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« Reply #1 on: May 26, 2009, 10:39:12 PM » |
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Sending you positive thoughts by the bucketload  I wish I could do more  |
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G-Ma
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« Reply #2 on: May 27, 2009, 04:02:14 AM » |
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07. Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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monrein
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« Reply #3 on: May 27, 2009, 04:08:12 AM » |
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That does sound very discouraging and I hope things get sorted out so you can start to feel better.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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cookie2008
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« Reply #4 on: May 27, 2009, 04:38:47 AM » |
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
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willowtreewren
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« Reply #5 on: May 27, 2009, 04:52:03 AM » |
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Angellady, Many positive thoughts are coming your way. I hope you can get this frustrating situation taken care of soon. My heart goes out to you. Aleta |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011.  |
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paul.karen
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« Reply #6 on: May 27, 2009, 05:03:42 AM » |
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Sorry to read this :-(
And i so agree if they saw problems with you while you were in the hospital why didnt they do tests then and there???
I hope you get it all worked out soon.
Good positives vibes coming your way.
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Curiosity killed the cat
Satisfaction brought it back
Operation for PD placement 7-14-09
Training for cycler 7-28-09
Started home dialysis using Baxter homechoice
8-7-09
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Rerun
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« Reply #7 on: May 27, 2009, 05:12:23 AM » |
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You are in my prayers. I hope that is ok.  |
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KICKSTART
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« Reply #8 on: May 27, 2009, 11:31:46 AM » |
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There is no understanding hospitals and doctors sometimes. I hope what ever you have to go through is swift and gives you the answers you want |
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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Savemeimdtba
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« Reply #9 on: May 27, 2009, 12:52:15 PM » |
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Question: During all this, do you have a hemo-cath in? My nurse told me that she's seen those hemo-caths cause an infection when starting PD. As soon as I had my hemo-cath removed, I felt much better and peritinitus went away. Just wanted to throw that out there as an option just in case you did have one.
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-Kristi-
12/2008 - Began Hemodialysis
03/2009 - Began P.D.
"You gotta swim, swim for your life, swim for the music that saves you when you're not so sure you'll survive"
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Neo
Full Member
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Gender: 
Posts: 256
Dont let dialysis stop you...
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« Reply #10 on: May 27, 2009, 12:53:18 PM » |
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Angellady you will be in my thoughts and prayers. Try to keep your head up, i know its hard, don't give up. |
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bette1
Full Member
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Gender: 
Posts: 316
My dear daughter
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« Reply #12 on: May 27, 2009, 02:05:48 PM » |
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I am sending you positive thoughts and love. |
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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant #2 5/24/10
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okarol
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« Reply #13 on: May 27, 2009, 02:24:15 PM » |
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Take care angellady - sending you good thoughts and HUGS!
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mcmkids
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« Reply #14 on: May 27, 2009, 05:45:43 PM » |
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I am frustrated for you angellady  Here's hoping that tomorrow brings better news! Sending lots of good thoughts, wishes and prayers your way!!! |
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angellady07
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« Reply #15 on: May 27, 2009, 07:44:17 PM » |
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Thanks for positive thoughts and prayers. Feeling stronger today. I have a graft for hemo access and the pd cath. Thanks again.
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MandaMe1986
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« Reply #16 on: May 27, 2009, 08:04:45 PM » |
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You are in my thoughts sweetie |
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.
Matthew 5:3-9
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serpico
Newbie
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« Reply #17 on: May 29, 2009, 07:13:58 PM » |
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Everyday I say a Hail Mary for those of us with kidney disease!
I preface the Prayer by saying Our Lady of Peace pray for those of us with kidney disease especially, (name of person).
Today Angellady07 will be the special person!
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Hanify
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« Reply #18 on: May 29, 2009, 07:16:50 PM » |
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Sending positive thoughts your way.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008. Now on PD with a cycler. Working very part time - teaching music. Love it. Husband is Paul (we're both 46), daughter Molly is 13.
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celtic warrior
Jr. Member
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« Reply #19 on: May 29, 2009, 07:19:24 PM » |
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Stoday
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« Reply #20 on: May 29, 2009, 07:33:27 PM » |
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Sorry to hear you're not so well.
It won't last. Tomorrow will be better...
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
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angellady07
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« Reply #21 on: May 29, 2009, 11:25:17 PM » |
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Thanks for all of the positive thoughts and prayers. I'll keep you posted. Serpico, thank you so very much. |
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kristina
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« Reply #22 on: May 30, 2009, 07:11:27 AM » |
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I send you lots of positive thoughts and wish you all the best. |
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
He was completion and fulfillment in itself, like a meteor which follows its own path.
- Robert Schumann -
... Oportet Vivere ...
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kitkatz
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« Reply #23 on: May 30, 2009, 10:55:46 AM » |
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My positive thought this morning: Thank you God for a husband who did not mind being awakened last night at 2:45 to come get his wife who cramped so bad she came off at 2:30 instead of 4 this morning.
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 lifenotonthelist.com Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5 Remember your present situation is not your final destination. Take it one day, one hour, one minute, one second at a time. "If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1 |
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serpico
Newbie
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Gender:
Posts: 26
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« Reply #24 on: June 01, 2009, 11:55:11 AM » |
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How are you doing? Hope you are feeling better!
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