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Brianna!
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I met adam lambert for my make a wish!
« on: May 25, 2009, 06:09:31 AM »
Hi everyone! My name is Brianna. I'm 16, and i've been on dialysis since december. I was listed as inactive on the list may 15th. I live in Wisconsin. I would really like to talk to people who know what i'm going through. =] I love this smiley. haha  :pics; wow.

-Brianna
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willowtreewren
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My two beautifull granddaughters

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« Reply #1 on: May 25, 2009, 06:13:38 AM »
Hi, Brianna.

You are going to enjoy this community. There are many young folks here (not me, though!  :rofl;)

Here at IHD we share information, frustration and community.

Welcome,  :welcomesign; welocme.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
willieandwinnie
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« Reply #2 on: May 25, 2009, 07:02:41 AM »
 :welcomesign; Brianna. You'll love it here. Great information and support for all things kidney related. Hope we hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
peleroja
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I have 16 hats, all the same style!
« Reply #3 on: May 25, 2009, 07:42:37 AM »
Hi, Brianna, and welcome to the group.  Tons of good information and lots of folks who really care about one another.  Come n back and post often!
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RichardMEL
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« Reply #4 on: May 25, 2009, 08:02:59 AM »
Welcome Brianna... wow 16 and having to deal with dialysios.. my heart and thoughts go out to you. You will find a few teens and relatives of teens with ESRD on here who can relate most fully to you, and us old folks too!!!

I've spent many fun times in Wisconsin (Madison & MKE in particular) so I love your part of the world... wishing you all the best with it all and you get ACTIVE on that list real soon!!!  :cuddle;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Brianna!
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I met adam lambert for my make a wish!
« Reply #5 on: May 25, 2009, 09:58:57 AM »
Thanks everyone for the warm welcome! Yeah, dealing with this at 16 is hard. But I was born with a mild form of spina bifida (Partial Sacral agenesis), it's very mild, I can walk and stuff, so i've dealed with a fair share of hardships in my life. But it makes me stronger.  :bandance; I just wish my dad was here. He died in august, and I stated dialysis in December. But yet, I don't want him to see me like this. Ya know what I mean. hmm. well thanks again for the warm welcome. I'll see you all around!!!

-Brianna

RichardMEL--I hate wisconsin! It's too cold there. Why do you like it? LOL. I only like it because of summerfest, and Milwaukee.  ;)

 :grouphug;
« Last Edit: May 25, 2009, 10:02:26 AM by Brianna! » Logged
Romona
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« Reply #6 on: May 25, 2009, 10:05:48 AM »
 :waving;
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monrein
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Might as well smile
« Reply #7 on: May 25, 2009, 12:30:08 PM »
 :welcomesign; Brianna.  I hope you'll post often with questions, advice, jokes or whatever.  This is a great site for anyone with kidney disease or our friends and relatives.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #8 on: May 25, 2009, 03:36:57 PM »
Hi Branna and welcome.  There are a couple of other ihd-ers your age too.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #9 on: May 25, 2009, 03:49:02 PM »
Welcome to our community,  Brianna!  I am glad you decided to be 'active'.  So sorry that you had to face this renal challenge at such an early age.  But I am hearing real strength in your expression.  You will make it through.  And now you have your IHD family to go through it all with you :grouphug;  There is lots of information and support here - there is even fun!  So keep reading and keep posting, so we will know how you are doing.



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
kellyt
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« Reply #10 on: May 25, 2009, 03:50:25 PM »
The title of this thread alone made me want to read your introduction and get to know you right away!    :)

Welcome to this wonderful site.  You'll find many friends and familiar stories here.   :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
RichardMEL
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« Reply #11 on: May 25, 2009, 06:08:22 PM »
Hey again Brianna... :)

I can relate to your comments about your dad and not seeing you "like this" - my own mother passed away 3 or so months before I was forced to start dialysis - and even though she knew it was coming along. I'm sort of glad that she didn't have to deal with seeing me actually go through it with all the other problems she had.

As for why I like WI? Well trufully I never visited in the winter (I'm smart you see!) and I have a great friend up there who I loved visiting so it was always fun.. plus with my accent I almost always got big smiles and great service!!!  >:D :yahoo;

Believe it or not, to me, the midwest can be cool!!!

I already promised my friend I will return just as soon as I get that darn transplant thing happening.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
MandaMe1986
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« Reply #12 on: May 25, 2009, 06:38:29 PM »
Hello Brianna I am 23 was a little younger then you when I first got sick.  A lot of us have been.  I am glad you found this site it is wonderful. Hope to see you around.

~Amanda  :waving;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
G-Ma
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« Reply #13 on: May 26, 2009, 08:43:22 AM »
 :welcomesign;    to a great group of people.  I'm sorry about everything you have to go through and sorry about your dad.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
David13
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A meow massages the heart.
« Reply #14 on: May 26, 2009, 12:02:33 PM »
 :welcomesign;
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
rdperez
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« Reply #15 on: May 26, 2009, 12:15:16 PM »
Hi Brianna.  Welcome.  I was on dialysis for 2 1/2 years.  So if there are any questions I can answer for you, please ask.  Am sure that anyone on here are willing to help you get thru this.     :waving;
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Joe Paul
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« Reply #16 on: May 28, 2009, 12:10:09 AM »
Welcome  Brianna, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Tinah1968
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ME
« Reply #17 on: May 28, 2009, 06:30:43 AM »
Hi Brianna only 16 WOW well we are all here and we can all relate to how you feel... WELCOME
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
paris
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« Reply #18 on: May 29, 2009, 06:37:28 PM »
 :welcomesign;   Brianna. I hate that you have to deal with this so young.  Life doesn't seem fair.  I hope you will find great support here and lots of friends.  We really care about each other.  Post often and let us get to know you better.  Glad you are here with us  :grouphug;




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
TeenHatesDialysis
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« Reply #19 on: June 04, 2009, 07:15:44 PM »
Hi Brianna,

I have three daughters, one is 15 years old and has been on dialysis for 18 months. Her name is Jaclyn. I will send you a PM with her email address. We are in Colorado, but her trasnplant team/hospital is Stanford in California (long story). My second daughter is 18 and has 20-25% kidney function and my oldest is 20 and has healthy kidneys, but A/B blood type so can't donate to sisters. It was really a shock when we found out their kidneys were failing. They have NPHP type 1, which is a recessive genetic kidney condition that causes kidneys to fail in teens between the ages of 13 and 19. I am so glad that I found IHD. This group is so supportive and knowledgeable.

I am sorry that you have to go through this. Hopefully, you will get a new kidney soon.  Please check out my daughter's website to learn more about her and us. www.cotaforjaclynp.com

Hopefully, you can get to know each other via email.
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
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