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Author Topic: Latest Planning Round and Report  (Read 2169 times)
joyfulmother
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Becky

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« on: May 20, 2009, 04:05:18 PM »
This past month has been a rough one for me.  Even though I went through training and was taught better, I managed to get myself dehydrated and felt rotten!  My blood pressure got low and they took me off my meds for that.  It kept getting lower and they put me on meds to get it higher (which I thought was awfully ironic).  In the middle of this, I had my kineticks (?) test and as they had thought since I was a low transporter, they added one manual exchange to my treatment in addition to the nightly cycler.  I didn't mind at all - I was ready to go back to four a day manuals if it would make me feel better.

Now I am hydrated and my bp is coming back up.  I do the exchange some time after lunch and it doesn't seem like a big deal at all (since I'm always home).  I am feeling better and ready for summer!!

My phosphorus was high a month ago and they put me on binders.  This month they changed my binders.  Now I am getting even more serious about my diet.  Good bye cheese!  I'm also working hard on losing weight!!  Overall I still feel like I am doing good!  I just hate this restless leg stuff!

God bless you all!
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Becky
44 years old, Christian, homeschooling mom to my boys, ages 7 & 9.
- PD Patient beginning 12/31/08
- Listed on September, 2009
- Transplant on March 28, 2010
pelagia
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« Reply #1 on: May 20, 2009, 10:32:29 PM »
It's great to hear that you are doing so well.  :cheer:
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
KICKSTART
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In da House.
« Reply #2 on: May 21, 2009, 03:45:20 AM »
Its a nightmare isnt it ! Try this, do that, you get so fed up ! As far as restless legs go there are several threads on here suggesting trying different things which might be worth a look?
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
willowtreewren
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My two beautifull granddaughters

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« Reply #3 on: May 21, 2009, 10:09:55 AM »
What does your potassium look like? High potassium can cause RLS.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
joyfulmother
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Becky

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« Reply #4 on: May 21, 2009, 11:09:41 AM »
I'm taking some thing for potassium but I believe the dr said it was creeping up a bit
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Becky
44 years old, Christian, homeschooling mom to my boys, ages 7 & 9.
- PD Patient beginning 12/31/08
- Listed on September, 2009
- Transplant on March 28, 2010
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