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Author Topic: Started to train on NxStage  (Read 7044 times)
cookie2008
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« on: May 18, 2009, 01:44:02 PM »
I started the training today my husband is my partner, it is so different it feels like it is going to be less confining more freedom and less restrictions. I have read alot of the posts about being on the NxStage machine how everyones labs are better and how you feel I cant wait it sounds so good. :cheer: :cheer:
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
willowtreewren
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« Reply #1 on: May 18, 2009, 02:19:54 PM »
Keep us posted!  :cheer:

I'm sitting right here in my den with the NxStage machine humming beside me!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Zach
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« Reply #2 on: May 18, 2009, 03:14:05 PM »
 :clap;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
jbeany
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« Reply #3 on: May 18, 2009, 04:19:01 PM »
 :bandance;

More fluid, more food choices, more energy, more freedom - what's not to love!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Wallyz
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« Reply #4 on: May 18, 2009, 10:11:45 PM »
wOOt!  Its a pain to train, but its worth it.
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cherpep
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« Reply #5 on: May 19, 2009, 07:16:06 AM »
You are gonna like having more control over your treatments.  Don't worry if you stumble a little in the beginning - it all smoothes out rather quickly.  Be sure to ask if you have any questions, many of us have been using that machine for a long time. 
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willowtreewren
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« Reply #6 on: May 19, 2009, 07:48:32 AM »
I've been using the bags with ours, but we are switching to Pureflow in a couple of weeks. Go in for two days of training and then switch. Looking forward to that.

NxStage is awesome.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Adam_W
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« Reply #7 on: May 19, 2009, 09:59:25 AM »
 :2thumbsup;
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
cookie2008
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« Reply #8 on: May 19, 2009, 02:11:36 PM »
Second day of training is finished my husbnd Dave put my needles in I was a little nervous but he did fine. I set the machine up and my  nurse that is training us told me it will get easy the more I set it up.
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Started PD in 11/07
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willowtreewren
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« Reply #9 on: May 19, 2009, 02:13:30 PM »
Oh, my! I did not stick my husband until week three, I think! But now I'm a pro!  :clap;

I admire you and Dave! Way to go! :cheer: :cheer: :cheer:

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cookie2008
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« Reply #10 on: May 20, 2009, 06:13:30 PM »
we had to stop training today my fistula was acting up the arterial pressure we tried three different needle sites and still had problems. tomorrow the surgeon is going to perform an fistulagram and raise my fistula so i will be getting another permacath fun fun.
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Started Hemo in 7/08
Started NxStage 5/09
Dan.Larrabee
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« Reply #11 on: May 20, 2009, 06:52:34 PM »
Sorry, I went through the same thing. It's still worth it, don't give up or get discouraged.
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AKA Dialysis Dan
Feeling the best I can because of Home Hemo
Doing it the best way I can by making it Nocturnal
Sharing it to help everyone feel they best they can
www.youtube.com/dialysisdan
cookie2008
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« Reply #12 on: May 21, 2009, 05:16:39 PM »
everything went fine today surgery took 2 hours and 45 mins im home now and in some pain but it is worth it hopefully less needle sticks after im healed, my husband dave was at the hospital thru out the whole procedure and is here now helping me.  :cuddle;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
willowtreewren
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« Reply #13 on: May 21, 2009, 05:18:57 PM »
I'm glad it went well, Cookie. Rest up, now.  :waving;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
David13
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« Reply #14 on: May 21, 2009, 05:21:42 PM »
Glad to hear your surgery went well.   :grouphug;
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
cookie2008
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« Reply #15 on: May 25, 2009, 11:57:31 AM »
Training is going good we are using my permacath now while my fistula heals, my arm looks terrible bruised and swollen, 27 stitches.
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
willowtreewren
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« Reply #16 on: May 25, 2009, 12:54:58 PM »
Ouch! You'll be able to tell some stories on that!

Keep us posted on the rest of your training.

I blogged about our NxStage training. You can read about it at:

http://willowtreewren.livejournal.com/

I look forward to your posts!  :clap;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cookie2008
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« Reply #17 on: May 26, 2009, 05:42:02 PM »
Today Dave hooked me up to my permacath he did great.  :yahoo;
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Started NxStage 5/09
cherpep
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« Reply #18 on: May 27, 2009, 06:13:33 AM »
Yeah Dave!!!!
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petey
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« Reply #19 on: May 27, 2009, 06:06:59 PM »
Way to go, Dave!

You've obviously got a good one there, Cookie!

I know that I started cannulating my Marvin during our second week of NxStage training.  I was scared to death, but I didn't let it show.  I just took those needles (and I had never TOUCHED needles before) like they were mine, I followed the nurse's directions, and away I went.  Marvin said I was so confident -- he couldn't see that all of my insides were quivering.  I've been the only one to cannulate Marvin's fistula now for almost two years.  Nothing to it.  Why was I so scared?
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cookie2008
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« Reply #20 on: June 04, 2009, 08:16:13 PM »
Training is going good, I had my stitches out today and my surgeon will check it again in 4 weeks he wants to give my fistula time to heal which I am happy. We start at home on wed 6/10, my nurse that is training us is coming to our house on wed to help and make sure everything is setup ok. We will be using the bags.
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
willowtreewren
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« Reply #21 on: June 05, 2009, 08:05:06 PM »
Keep up the good work, Cookie.  :cheer:
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cookie2008
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« Reply #22 on: June 09, 2009, 11:34:55 AM »
 :cheer: :cheer: we finished our training today, we brought home all the supplies and our first delivery is due tomorrow. Donna our training nurse will be coming over in the morning for our first treatment at home. Its really exciting and I know I havent been on it long only 3 weeks but I feel so much better and my labs has shown a big improvement.  :bandance; :bandance;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
willowtreewren
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« Reply #23 on: June 09, 2009, 03:26:22 PM »
Yay!  :flower;

I hope you "enjoy" your NxStage as much as we do!  :yahoo;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cherpep
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« Reply #24 on: June 10, 2009, 07:26:57 AM »
Good luck!!!  When it comes time to use the fistula - will you need another session with the nurse since you weren't able to use it as much during the training?  Do you have all the supplies necessary (needles) for dialysis with the fistula? 
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