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Author Topic: Introducing myself  (Read 2913 times)
esherman77
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« on: May 14, 2009, 03:16:37 AM »

HI.  :waving;  My name is Elaine and I am new here. I have been on dialysis for 6 years (hemodialysis) and I can't believe I finally found a dialysis support group. Oh and by the way, I love the name of this site. Anyway, I am a 52 year old women with diabetes, end renal failure and gastroparesis. Try working with that mess. LOL

Anyway, I still work (overnights) and I seem to be having trouble working my full eight hours. MY body  :thumbdown;   seems to be having trouble staying awake for that long of a period. It just shuts down. I do know that my iron is low (9.6) so I know thats part of my problem.

I am thinking of getting the Gastric bypass because my weight is out of control and diets don't seem to help me. I lose weight and then gain it back. Has anyone here done the bypass and want to share their experience? It would really be nice to talk to people about it.

Thanks
Elaine


Edited: Fixed smiley error - paris, Moderator
« Last Edit: May 14, 2009, 10:03:08 AM by paris » Logged

Elaine

REMEMBER: YOUR ARE YOUR BEST ADVOCATE. IF YOU DON'T DO IT, NO ONE WILL!!!
twirl
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« Reply #1 on: May 14, 2009, 04:12:29 AM »

welcome   :flower; :flower; :flower;

and read the pm from me   ;D

we are here to help  :-*
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willieandwinnie
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« Reply #2 on: May 14, 2009, 06:03:52 AM »

 :welcomesign; Elaine. Glad you found us, lots of support here for everything and information is by far the best. Please post often. I know all about the dialysis, gastroparesis, transplant mess. My husband has had a real bad week. Please post often.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile

« Reply #3 on: May 14, 2009, 06:28:02 AM »

 :welcomesign;  I'm glad you finally found this site and feel sure that you will find it both supportive and informative.  Post often.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MizzKristi
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« Reply #4 on: May 14, 2009, 07:46:41 AM »

 :yahoo;  Hi Elaine, You'll find so many caring people here, many with some of the same problems. This is a GREAT  :bandance;  place to be. Welcome  :welcomesign;



Edited: Fixed smiley error - paris, Moderator
« Last Edit: May 14, 2009, 10:04:44 AM by paris » Logged
paris
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« Reply #5 on: May 14, 2009, 10:09:14 AM »

Welcome Elaine.  You have found the best place for information and support.  We all care very much and give great help to one another.  I think you will find many who can relate to your situation.  I look forward to learning more about you and reading more of your story.  Welcome to IHD!   :2thumbsup;




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
esherman77
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« Reply #6 on: May 14, 2009, 09:10:00 PM »

 :thx; Everyone. It's good to know I have found somewhere to post about dialysis. I just can't believe that it took me 6 years to find you guys. Thanks for making me feel welcome!!
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Elaine

REMEMBER: YOUR ARE YOUR BEST ADVOCATE. IF YOU DON'T DO IT, NO ONE WILL!!!
Joe Paul
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« Reply #7 on: May 14, 2009, 11:05:42 PM »

Welcome Elaine, good to have you aboard.
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« Reply #8 on: May 14, 2009, 11:39:56 PM »

Welcome to our community, Elaine!  we are glad that you found us and decided to join.  This is the place to be for anyone dealing with this renal challenge.  This is  now much more than a forum - it is a genuine family, caring and sharing. :grouphug;  Just keep reading and keep posting.  Let us know how you are doing on your job.  I can't help about the bypass, but  my caring thoughts are with you  :cuddle;
We have a great group of 50+ people here - the best age group alive - old enough to appreciate the strong values of yesteryear and young enough to enjoy all the modern technology!
Looking forward to hearing more from you.





Bajanne, Moderator
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I LOVE  my IHD family! :grouphug;
kellyt
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« Reply #9 on: May 14, 2009, 11:46:23 PM »

Welcome!  My sister-in-law, a.k.a.  my donor, had gastric bypass a few years ago and she has done really well.  I've heard of horror stories, but she's done really well with her weight loss and health.  She was healthy enough to donate!   :thumbup;

So glad you found us.  It's a great site.  You will love it here!    :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
G-Ma
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« Reply #10 on: May 15, 2009, 12:27:20 AM »

 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Maxridex
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« Reply #11 on: May 15, 2009, 02:30:59 AM »

 :welcomesign; Happy to have you here :) explore the forum and keep posting ;)
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« Reply #12 on: May 15, 2009, 07:52:45 AM »

Hi, Elaine,

 :welcomesign;

So glad you found this community. I look forward to learning more about you and hope that you post often. I think you'll like it here!  :cuddle;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Zach
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"Still crazy after all these years."

« Reply #13 on: May 15, 2009, 07:54:59 AM »

Good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
MandaMe1986
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« Reply #14 on: May 15, 2009, 08:11:17 AM »

Happy to have you  :2thumbsup;  :welcomesign;
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Blessed are the meek, for they will inherit the land.
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #15 on: May 15, 2009, 05:40:23 PM »

Welcome Elaine.  Good to have another addition to our IHD family.  Yes, it's a great place to rant or just chat with people who really know how you feel!
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Romona
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« Reply #16 on: May 15, 2009, 06:23:02 PM »

 :welcomesign;
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esherman77
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« Reply #17 on: May 18, 2009, 07:08:59 PM »

Thanks everyone  :bandance; . I have been looking so long and now that I found you I feel very welcome.
 
So, let me tell you more about myself. i have been on dialysis for 6 years. I am a diabetic and I also have gastroparesis due to the diabetes. :puke;  Dialysis is always fun for me because we always play the what's my blood pressure now? game. Anyone else have problems with their blood pressure? I have some really funky readings. My best one was 25/15 standing. But I have had readings like 40/90, 249/132 and lets not get into my pulses. I have gotten 39 to 182. But don't worry, they were all false readings. I was fine. The machine was crazy  :2thumbsup; . Luckily I have been at the same clinic all this time, so they are used to my odd readings. Thank God because I don't think I want to train new people at this stage.
Well, I guess I ought to go back to work. Oh, did I mention I still work? Yeah well I do. I work overnights, so you will most likely see me during the night hours posting.

Well hope everyone has a wonderful night. Will post more later. ;)
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Elaine

REMEMBER: YOUR ARE YOUR BEST ADVOCATE. IF YOU DON'T DO IT, NO ONE WILL!!!
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