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Author Topic: Been lurking, but thought I'd join. Hello!  (Read 2580 times)
Tabbygirl
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« on: May 13, 2009, 07:45:45 PM »
Hello!

My name is Kerry, I'm 39 years old, user name comes from my beautiful cat that I lost two years ago, I still miss her!

About me:

1993-diagnosed with glomerulonephritis two months after my wedding, nice wedding gift.

1993-2005-did everything the doctor told me to do to keep off dialysis as long as possible.

2005-had pd catheter placed and started on the cycler after two days of training, little scary...

2005-present-On transplant list, working full time, doing pd every night.

I really am lucky in that I've had no troubles with pd, no infections (knock on wood), and have felt relatively good throughout.  Had my "woe-is-me" moments though.  And I'm lucky to have my husband who puts my bags on my machine everyday so it's just one less thing I have to do.  Yes, I do hate dialysis, but don't want to mention that to my friends or relatives lest they think I am ungrateful, so I thought here is a place for me to vent and share with people who actually understand.  So thank you for being here!
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kellyt
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« Reply #1 on: May 13, 2009, 08:27:37 PM »
Welcome Tabbygirl.  You were diagnosed about 1 year before me.  I also have glomerulonephritis.  I was able to hang on until 2008 and luckily I got a living transplant from my sis-in-law.  I was so thankful to avoid dialysis (at least for now).  You'll love this site.  No judgment on your thoughts and feeling about this horrible disease.   :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Zach
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"Still crazy after all these years."
« Reply #2 on: May 13, 2009, 08:36:30 PM »
Good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
TeenHatesDialysis
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WWW
« Reply #3 on: May 13, 2009, 11:09:25 PM »
 :welcomesign;

Glad you joined the group. I hope that you get your kidney transplant soon. :grouphug;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
G-Ma
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« Reply #4 on: May 14, 2009, 12:55:09 AM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Joe Paul
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« Reply #5 on: May 14, 2009, 02:44:44 AM »
Welcome Tabbygirl, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willieandwinnie
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« Reply #6 on: May 14, 2009, 06:05:11 AM »
 :welcomesign; Tabbygirl. You'll love it here. Hope to hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile
« Reply #7 on: May 14, 2009, 06:06:05 AM »
 :welcomesign;  Glad you found us.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
RichardMEL
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« Reply #8 on: May 14, 2009, 08:27:35 AM »
Welcome TabbyGirl!! You sound very much like me - diagnosed with FSGS in 1993, lasting until 2005(2006 for me)... OK I don't have the wedding part, or the PD part or the female bits... but the rest sounds very close... I am also owned by a tabby so I get that part of you also.. I am sorry you miss her so much  :grouphug;

Welcome to IHD!! You will find a great community of support here!! Hopefully you can get that transplant soon and get on with life!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
David13
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A meow massages the heart.
« Reply #9 on: May 14, 2009, 08:28:22 AM »
Welcome!   :welcomesign;

As you probably already have discovered, there is a lot of great information and support here.

I hope to see you posting often.
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
paris
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« Reply #10 on: May 14, 2009, 09:21:12 AM »
Tabbygirl, We are so glad you joined us.  As you can already tell, you have many friends here that understand what you deal with.  This is a great place to voice your feelings and someone will know just how you feel.  This is a wonderful support group and we really care about each other.  I look forward to reading more of your posts.   Welcome to the IHD family.   :grouphug;




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
willowtreewren
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My two beautifull granddaughters

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« Reply #11 on: May 14, 2009, 09:32:56 AM »
You have found the perfect community for sharing, Tabbygirl.  :welcomesign; :welcomesign;

Enjoy yourself here in the IHD family. Post often.  :)
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #12 on: May 14, 2009, 11:30:35 AM »
Welcome to our community, Kerry!  I love it when people lurk before joining.  It makes my task easier.  i don't have to try to convince you that this is the place to be.  You already know!!  I am sure by now you realise that this is much more than just a forum - it is a genuine family  :grouphug;  Just keep on reading and posting.


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
MandaMe1986
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« Reply #13 on: May 14, 2009, 11:32:55 AM »
Happy to have you. Glad you found us  :welcomesign;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Tabbygirl
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« Reply #14 on: May 15, 2009, 05:54:22 AM »
Thank you so much for the nice welcome.
For now I'm off to work so I can pay for my dialysis/medical bills! 
Hope to be back to hang out some more soon.
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Romona
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« Reply #15 on: May 15, 2009, 06:24:56 PM »
 :welcomesign;
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #16 on: May 20, 2009, 03:38:24 PM »
I'm new to the site too - after only (ha ha) 1 1/2 years on dialysis.  Wish I'd found it earlier.  Am still learning how to catch up with everyone's threads, so just found your one.  Welcome.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
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