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Author Topic: One Year Down  (Read 2140 times)
Laurie
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May 13, 2008

« on: May 13, 2009, 11:27:56 AM »

One year ago today, I received my kidney transplant. I still can't believe it actually happened.
Things have been going good. My creatnine tends to stay between 1.3 and 1.6. I've gained a lot of weight but am trying to work on losing it.

A couple of weeks ago I received a letter from my donors son. My donor was a single father with 2 sons (19 and 26). He passed away due to complications from a motorcycle accident. He was 48 about to turn 49. After reading his letter I immediatley knew who my donor was. While in the hospital I was reading the obituaries in the local paper. I came across a man and I had a very strong feeling that he was my donor, but his age was listed as 48 and the hospital told me my donor was 49. I went online and found the obituary and sure enough it was him. This week has been very emotional for me. I'm feeling very guilty.
I wrote a reply letter and am hoping I will get a response and maybe get to meet the family. I'm hoping if I can see that they are doing ok, it will help me.

Another thing I think is ironic is that a month after my transplant I let my husband buy a motorcycle. He had been wanting one for a couple of years. Now people refer to my kidney as the biker kidney.  8)

Anyway, I hope everyone is doing well. 
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
willowtreewren
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My two beautifull granddaughters

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« Reply #1 on: May 13, 2009, 11:49:57 AM »

Quote
I'm feeling very guilty.

Laurie,
You shouldn't feel guilty. In a way you have kept part of your donor alive. His family was carrying out his wishes and theirs. I'm sure they would want you to live each day to its fullest.

Take care. :grouphug;
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
paris
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« Reply #2 on: May 13, 2009, 01:59:30 PM »

Laurie,  Congratulations on your one year anniversary.   How wonderful that your donor's son wrote to you.  It must help all of his family to know that he lives on through you.  Don't feel any guilt -- just enjoy and appreciate this incredible gift he gave you.   :cuddle;  :cuddle;
« Last Edit: May 13, 2009, 04:04:25 PM by paris » Logged



It's not what you gather, but what you scatter that tells what kind of life you have lived.
monrein
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Might as well smile

« Reply #3 on: May 13, 2009, 03:28:07 PM »

Congratulations on the one year milestone.  Now you fall into the "successful transplant" category for statistical purposes.
Forget the guilt!  You did not cause your donor's death you merely provided the opportunity for some good to come from such a tragic loss and that must be some small comfort to his family.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
G-Ma
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« Reply #4 on: May 13, 2009, 03:29:43 PM »

 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Sunny
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Sunny

« Reply #5 on: May 14, 2009, 12:50:22 AM »

How very touching to receive a letter from the deceased donor's son. I think it's wonderful they want to know about you and I hope you don't feel guilty because it's obviously what that family wanted. I'm sure they feel very good about the fact someone like you was able to have a successful transplant. I hope it lasts a long time.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Romona
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« Reply #6 on: May 14, 2009, 05:38:11 PM »

 :clap; Happy Anniversary!
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MandaMe1986
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« Reply #7 on: May 14, 2009, 06:09:30 PM »

I am happy for you.  This is great news.  :2thumbsup;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
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