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Author Topic: Seeking your support again  (Read 23352 times)
rose1999
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« on: May 13, 2009, 08:39:05 AM »
Hi everyone,

Dad has to go into hospital on Friday morning for a chemical sympathectomy to hopefully stop the pain in his foot caused by vascular disease.  He's been in a lot of pain for weeks now and even morphine and pain patches have not helped much.  The surgeon did try to operate on his leg to do a bypass but his veins were too calcified, this procedure should stop the pain and open up the veins a bit to get more blood to the toes.  It does not work for everyone and we would appreciate your positive thoughts, good wishes, prayers, vibes etc. in the hope that it will work for him.   He will be going in at 8.00 a.m. but as it is a 2 hour journey from here we are going over tomorrow afternoon and he and Mum will stay in a hotel near the hospital overnight.  I will travel over there again on Friday morning, early!

He has been through such a lot, please spare a moment's thought for him.

Thanks for your support.
Rose xxx
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« Reply #1 on: May 13, 2009, 08:41:28 AM »
Rose,
I'm sending you warm wishes for your dad's full recovery.  :cuddle;

I'll be thinking of you and your family.
Aleta
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« Reply #2 on: May 13, 2009, 09:23:46 AM »
 :grouphug; :grouphug; :grouphug; :grouphug;
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paul.karen
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« Reply #3 on: May 13, 2009, 09:30:04 AM »
Of course positive energy and good wishes with prayers coming your guys way.
Sorry to hear he is in so much pain..........
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« Reply #4 on: May 13, 2009, 09:42:11 AM »
We'll be praying for complete healing and God's will to be done.

With Love,
Leon
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willieandwinnie
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« Reply #5 on: May 13, 2009, 09:46:07 AM »
 :grouphug; Oh rose, thoughts and prayers are with your Dad and you.  :cuddle;
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paris
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« Reply #6 on: May 13, 2009, 09:56:36 AM »
There will be lots of prayers said for your Dad, Rose.  Hopefully, this will give him relief from all the pain he has been in.   Sending you lots of hugs   :cuddle;
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cherpep
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« Reply #7 on: May 13, 2009, 10:00:32 AM »
It's so hard to watch someone you love be in so much pain.  My thoughts and prayers are with you both. 
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David13
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« Reply #8 on: May 13, 2009, 10:04:21 AM »
Rose, I will be sending my thoughts and prayers to both you and your father.  Please let us know how he is doing.   :cuddle;
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MandaMe1986
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« Reply #9 on: May 13, 2009, 10:21:41 AM »
 :cuddle; :grouphug; :cuddle; :grouphug; :cuddle; :grouphug; :cuddle; :grouphug;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
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« Reply #10 on: May 13, 2009, 10:38:12 AM »
Sending love and hugs to you both Rose. :cuddle;
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rose1999
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« Reply #11 on: May 13, 2009, 11:31:29 AM »
I can't believe there are so many replies already, you guys are the best  :thumbup;. Thank you so much xxx
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paris
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« Reply #12 on: May 13, 2009, 12:46:42 PM »
Quote from: rose1999 on May 13, 2009, 11:31:29 AM
I can't believe there are so many replies already, you guys are the best  :thumbup;. Thank you so much xxx

We love you, Rose and want you to know we are here for you.    :grouphug;
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Sluff
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« Reply #13 on: May 13, 2009, 02:33:26 PM »
Rose we are not going anywhere. We are always here.  Good Luck for Dad.  :grouphug;
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monrein
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« Reply #14 on: May 13, 2009, 02:45:06 PM »
Sending all my best thoughts over the pond to you Rose, as well as to your Dad and your Mum.  I'm keeping everything crossed that this will work for him, if it works for some then he may indeed be one of those successes.    :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
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« Reply #15 on: May 13, 2009, 11:13:02 PM »
 :grouphug; John and I are sending all our best wishes to your Dad and hope that the pain will soon be under control. Love to you and your Mum  also. :bestwishes;
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Sunny
« Reply #16 on: May 14, 2009, 12:25:14 AM »
I am sending good thoughts your way and hoping this procedure works to releve pain. Hope all goes well.
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rose1999
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« Reply #17 on: May 14, 2009, 03:50:41 AM »
Thanks everyone, I'm off soon to take them to the hotel where they will stay until morning.  I will let you know later on tomorrow how things go but I am so grateful for all this support and love  :grouphug;
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kitkatz
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« Reply #18 on: May 14, 2009, 08:07:09 PM »
Prayers for Dad from us here in California.  :grouphug;
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rose1999
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« Reply #19 on: May 16, 2009, 09:57:12 AM »
Just to update you, we are so upset, Dad did not get the sympathectomy. It's a long story but typical of the way the NHS is these days I'm finding - no communication between depts.  We arrived at 7.50 a.m. and at 9.15 the consultant came to talk to Dad and check his medical history.  At 12.15 he was taken the theatre and Mum & I went for a coffee, when we got back about 20 minutes later a nurse said the consultant wanted to see us, at that stage we feared the worst.  It turned out that they had not tested his blood for platelets and because he had ITP at the start of the year they could not do the procedure until they knew they were over 100.  We told them that at the last test they were still going up and had been 136 but they would not take our word for it and were unable to contact the hematologist for confirmation.  We can't understand why the results were not on is records but it means that he has had to come home, still in pain that Fentanyl and morphine are not controlling adequately, and wait for another appointmet.

My Mum is so upset, she has had a bad couple of weeks as her youngest sister died unexpectedly 10 days ago and with Dad in this pain they are getting little sleep, at 78 she's feeling the strain of seeing him suffer.  We hope they will get him in early next week, please keep those thoughts going.

Thanks everyone  :grouphug;
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paris
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« Reply #20 on: May 16, 2009, 10:42:18 AM »
Aw Rose, I am so sorry.  Your poor Dad must be sick of all of this.  I am so very sorry about your Aunt.  Your Mum has had so much dumped on her lately and I can only imagine how tired and worried she is.  And I worry about you, always trying to take care of everyone.  You are in my thoughts and prayers daily.   :cuddle;   :cuddle;
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monrein
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« Reply #21 on: May 16, 2009, 10:52:45 AM »
Now I'm steaming furious and seriously fuming too, Rose.  Platelets can be checked pretty darn quickly I do believe and it is inexcusable that your Dad is being shuttled from pillar to post as if he were a sack of flour with no apparent thought of the distance he's traveled let alone the pain he's in.  If you write a letter we'll all sign it in support, heck I might come over to deliver it.

I do hope the hospital gets its act together SOON and that your Dad's pain can be relieved a bit.    :Kit n Stik;  for the hospital
 :flower; :flower;  for you and your Mum
 :cuddle;  for your Dad
« Last Edit: May 16, 2009, 12:05:08 PM by monrein » Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
David13
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« Reply #22 on: May 16, 2009, 10:55:31 AM »
Sorry to hear about this setback, Rose.  I will be sending more positive thoughts your way and hope this can all soon be sorted.   :cuddle;
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« Reply #23 on: May 16, 2009, 11:10:34 AM »
Oh, Rose!  I'm fuming for you right now.  Bloodwork to test platelets is one of the easiest and quickest tests to do!  Marvin has ITP, too.

I'm thinking of you and your parents.  Hang in there!

Love you----
petey and Marvin
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Darthvadar
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« Reply #24 on: May 16, 2009, 01:13:33 PM »
Aaaaw Rose....

That's DREADFUL!... So it's not just Irish Hospitals who make these kind of errors, then....

When Mum was to have an AV Fistula created, they weren't going to do the op because my mum 'Didn't have the blood tests done last week like she had been told to do on her last Outpatient appointment'... She wasn't told... I got the reply "She must have been confused and forgot she was told to get the blood tests done"... To suggest that my mum was 'confused' because they made a stupid mistake made my blood boil... I very politely (through firmly gritted teeth) replied "IF Mum HAD been confused and forgotten, which she hasn't, I CERTAINLY haven't... I was with her at that appointment!"... They backed down pretty quickly, got the bloods done, and had her in theatre within the hour!... So it can be done if the will is there... Might have helped that I made not so veiled threats about making an official complaint to the hospital's CEO... It was dreadful for Mum, I can only imagine the stress your poor dad is going through...

All I can do is wish your poor dad, and your family all the very best, and may they get this sorted sooner rather than later...

 :grouphug; :grouphug; :grouphug; to you all...

God bless...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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