Seeking your support again

[rose1999]

Thanks again for all your support, I do appreciate it.   

I haven't been able to tell the hospital exactly what I think of them because Dad still has to be treated and I do want them to fit him in as soon as possible.  But once he has been treated and assuming it works (please God) then I will be writing a letter of complaint/constructive criticism suggesting that these sort of tests be carried out routinely.  After all, how do they know that a 'normal' person doesn't have low platelets?  Clearly Dad's were low before symptoms ever presented, so if it is that important to the procedure then surely everyone should be routinely tested?

I am promised a phone call tomorrow with a new date (but as those in the UK will certainly understand I'm not holding my breath).  If I do not hear by early afternon I will chase it up because we have a bad enough week with my Aunt's funeral on Wednesday. 

Thank you for the hugs and love for Mum & Dad, I will pass those on as it is a comfort to them to know that there are people who care about what is happening to them.  So far this week Dad has had dialysis Monday (1hour each way trip), a trip of 2 hours each way Tues to get his line sorted as it was blocking, dialysis weds, a trip of 2 hours to the hotel on Thursday ready for Friday, wasted day at hopsital on Friday and 2 hour trip home and dialysis yesterday as he missed Friday.  At nearly 81 with all the pain plus poor circulation, heart problems etc it is too much.  I just hope they can get him an early date and then surely they wont mess him around again.

I'll let you know how things go,thanks again for the support.
Rose xx

[okarol]

    

[paris]

Rose, you Dad is continuously in my thoughts and prayers.  My brother has ITP and has had a very bad time the past few weeks. His platelet count has been at 5,000(!) for three weeks. And, yes, normal is way over 100,000.  They are doing everything and anything to help him. I am very worried. We all know he could start bleeding internally and there would be nothing to do fast enough.  He is at home, but can't do anything. And he is feeling horrible. The medications are making him very sick.  Sorry, kind of took this off topic.  I raised Jack, we are very close.  So, your Dad and Jack are all I can think about right now.  God must be getting tired of me!  "Hello God,it is me again!  Watch over Jack and Rose's Dad, make them better"      Sending you love, Rose   

[G-Ma]

God will never get tired of any of us, my prayers to Paris and Rose and others.  I just imagine God has this HUGER than huge internet and fast fingers and he gets all our prayermails.

[rose1999]

Just to update - I had the promised phone call from the hospital yesterday followed by a confirmation letter to Dad this morning.  They will admit him on Thursday (subject to a bed being available and we've been there before  when there wasn't one ............. ) we have to ring at 9.30 Thursday.  If there IS a bed they will take bloods so they have the results for the next morning (yes I too wonder why they did not do this last time!) and he is scheduled to go for his Sympathectomy on Friday morning, if all goes well he can come home that afternoon.  So once again I ask you to please keep him in your thoughts.  It is my Aunt's funeral tomorrow (Mum's youngest sister) so please keep my Mum your thoughts too as, at 79, she has a lot to cope with.

Bless you all for your kindness 

[Maxridex]

I'm sorry to hear your lost of your mother's sister. R.I.P

I give your Dad the warmest wishes to a speedy recovery.

-Matt

[Ken Shelmerdine]

Rose I've only just been reading this thread. The inexplicable practises of the NHS make my blood boil. What an incredible amount of suffering is this bringing to your poor dad and the stress involved for you and your Mum.

I do hope there's a bed for him on thursday and that everything can go ahead and hopefully ease his suffering and give you and your Mum some peace of mind.
My thoughts are with you all.

[Darthvadar]

Hi again, Rose...

I hope that it all works out for your dad on Thursday...

The death is an awful burden for your poor mum... May her sister RIP... I fully understand what's going on in her mind at the moment... My brother's been gone for almost five weeks now RIP...

I'll be thinking of, and praying for you all...

to you all....

Love...

Darth....

[David13]

I'm sending you lots of love and support, Rose, as well as my condolences on the loss of your Aunt. 

Please continue to keep us updated.   

[pelagia]

Hi Rose, I've only been on IHD intermittently over the last few weeks and I have completely missed this thread.  Will they never get it right for your dad?  Maybe just once you could go and they would treat him well and handle his case efficiently and with care.  I'll keep envisioning that and hoping it comes true.  Please give your mom my condolences on the loss of her sister.   

[Yvonne]

Hi Rose a big day today for you, I do hope there will be a bed for Dad, I can remember what it is like having to make that phone call keeping your fingers crossed while making it. I don't think human beings work for the NHS, I think when any one gets a job there they are sent off to a special school to learn how to cut off feelings for anyone. Just can't understand the way they work.

I do wish Dad all the luck in the world to get him through this ordeal to day, and hope it will take place.

also to you and Mum for the loss of her Sister and your Aunt

[rose1999]

Thanks Yvonne, Linda and everyone else.  We have to call at 9.30 today (it's 7 now) I just pray they say come on over (it's a 2 hour drive in heavy traffic so the sooner we can get started the better).  I'll let you know what happens.
Love to all, Rose xx

[Darthvadar]

Hi Rose...

Is there any news???...

God bless...

Darth....

[rose1999]

Well we got to the hospital at 12.15, had some lunch in the cafeteria and then went up to the ward at 12.45 (having been told to be there by 1).  They didn't appear to be expecting Dad and asked if we'd like to go to the cafeteria and have a cup of tea?  No, we replied, we had just had a meal and a drink and didn't fancy traipsing back down a floor and across 2 long corridors.  Oh well, they had nowhere to sit us so could we sit out in the corridor until they sorted a bed WTH!!  Anyway long story short they eventually found a bed on a another ward (the plastic surgery ward! – Mum and I wear tempted to jump into an empty bed and see if we could get a face lift).  But is beyond a joke.  I only hope that tomorrow they will get things moving and Dad will be treated and home by this time.  We shall see and I'm not holding my breath!

| Will let you know how tomorrow goes as soon as I can, thank you all for your concern.

Rose xxxxxxxxx

[monrein]

Rose, if it doesn't get done this time, it may be time to lose it and yell at them about insensitivity and cruelty.   I'm keeping everything crossed that all will work out and that your Dad will have less pain.

[David13]

Oh, Rose, you are and your father are in my thoughts.  Your father is fortunate to have you for an advocate in this frustrating situation.  Please let us know how it all goes.   

[Darthvadar]

Hi Rose...

Great to know that your dad is finally in hospital...

I have to agree with Monrein... If they don't get it right tomorrow, it's time to throw a tantrum... As a hospital chaplin at our local hospital told me when Mum was two days on a trolley in A&E waiting for a bed, and was on the verge of just stopping treatment she was so distressed... "It's time to be a B with an itch, Darth!"... He was right... I threw a tantrum that any two year old would have been proud of... Told the CEO that he had an hour to sort out a bed for her or I was going screaming to the media... Twenty minutes later, he called me to say that there'd be a bed for her within the hour!... I'm not proud of how I behaved, but when your back is against the wall, and it's your loved one suffering, you'll fight like a tiger to get them treated properly... And let's face it, if WE don't fight their corner for them, who will???...

I wish your dad and all of your family all the very best over the next few days... Please keep us informed...

How did your mum cope with the funeral???...

God bless...

Darth...

[pelagia]

"B with an itch" - I'm going to remember that one    I'm sure the hospital staff would think it out of character for someone with the name Rose to become B with an itch, but that would make it all the more effective, wouldn't it?!

[Darthvadar]

Yep Pelagia... And they never expected this middle-aged wheelchair using, carer to turn into the Patient Relative from Hell, but I did... ... Suppose it made my rant more effective, though!...  ...

I'm told that the staff on the ward have a greater respect for me now that they know I'll fight tooth and nail to ensure that my mum's properly taken care of...

Love...

Dart...

[pelagia]

 

[Yvonne]

Rose my fingers are still crossed for your Dad, I do hope all goes well and he is home today.

What on earth is going on with the NHS, if you read back on one of my letters were I had to write a letter of complaint to PALs as it took them from 9.30am to 4.30 pm to have John signed out of his bed.  I kept saying to them there must be some one else who is waiting for this bed if you sign him out they can have it. He still had the needle thing in his wrist and was waiting for it to be removed but at 4pm I completly lost it and told one of the nurses I'm taking him now and I will get my Dr. to remove it, that made them jump and John was out within the next half hour.  Sorry to go on a bit but reading some of these letters bring back so many memories, no wonder John and I are now completely grey haired.Yvonne

[rose1999]

Well after a few more small issues [like being told at 9.00 to get there within 2 hours to bring Dad home and then sitting waiting until 2.30 when he was finally discharged] Dad is now home and recovering.  The procedure was carried out with no complications, he may still have some pain for the next 3 weeks or so - it may even get worse at times as the capillaries in the foot open - but hopefully he will then be a lot better and free from most of the pain.  We have to cross our fingers and pray that this will be the case as we are warned it does not work for all.

I was so annoyed to be told to rush over to collect Dad (it takes nearly 2 hours to drive there) and then be kept waiting, that at 2.15 I said we were going at 2.30 discharge papers or no discharge papers and taking Dad with us (we didn't need any medication as there was no change) - surprisingly  they arrived at 2.28!!! 

Dad seems OK and is happily telling everyone about the 2 prisoners who were brought onto the ward - chained and cuffed to officers - and who spent the night there, which was rather spooky as last time he was in hopsital he had a dream that the person in the bed opposite was a prisoner and had a police officer with him!  I wish he could dream the lottery numbers 


It's dialysis tomorrow for him as he missed today, so he will be worn out, but I hope this is the end of a period of dreadful pain and sleepless nights. I also hope Mum will be able to sleep and regain her strength after what has been a dreadful few weeks.

Thank you all so much for your kind words and caring support, over this and the loss of my Aunt, it really means a lot.

[monrein]

So glad you're home Rose and that the issues were minor, although certainly irritating.  It's also nice that your dear Dad has an interesting prisoner story to relate to anyone who'll listen...beats the heck out of NHS horror stories.   

[willieandwinnie]

  Rose, I am sorry to be so late in wishing your Dad the best, I'll keep praying. 

[pelagia]

Rose, I am wishing you all clear skies and smooth sailing for a bit.  Lean back, feel the breeze and maybe sip on something soothing.