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Author Topic: Hello  (Read 2293 times)
wrektangul
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« on: May 13, 2009, 01:26:47 AM »
Hello,
My name is Mario and I have been a dialysis patient for about a year and a half.  I am a 35 year old male.  I'm not exactly sure how I got this condition, and the doctors were somewhat puzzled.  I came across this site and share many of same stories that a lot of you have.  Its also nice to be able to relate to the same issues we all have. 
Mario
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peleroja
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I have 16 hats, all the same style!
« Reply #1 on: May 13, 2009, 04:39:10 AM »
Hi, Mario; welcome aboard.  This is a great place for information and shoulders to cry on.  Come on back and post often.
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MizzKristi
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« Reply #2 on: May 13, 2009, 06:07:51 AM »
 :waving; Hi Mario, It sucks when Dr's do not have answers. This is a great place to find out lots of things you maybe wondering about. I wish you the best. And welcome you   :welcomesign;
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willieandwinnie
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« Reply #3 on: May 13, 2009, 06:09:50 AM »
 :welcomesign; Mario. We are so happy that you found us. There is lots of information and support here and we hope to hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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« Reply #4 on: May 13, 2009, 06:12:01 AM »
 :welcomesign; Mario.  I hope you'll post often and share your experiences with us.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willowtreewren
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My two beautifull granddaughters

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« Reply #5 on: May 13, 2009, 07:25:48 AM »
 :welcomesign; Mario  :welcomesign;

Come often and share. This is a great community with lots of dialysis wisdom.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
G-Ma
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« Reply #6 on: May 13, 2009, 03:45:58 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Romona
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« Reply #7 on: May 13, 2009, 07:01:52 PM »
 :welcomesign;
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MandaMe1986
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« Reply #8 on: May 13, 2009, 07:08:07 PM »
 :welcomesign;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
TeenHatesDialysis
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« Reply #9 on: May 13, 2009, 11:04:49 PM »
 :welcomesign; Mario,

It is very frustrating when doctors say, "I don't know, it is very confusing".....and then you see the bill for $1500 (ugh!)  :stressed;

My youngest daughter was sick for three years and finally blood tests sent to genetics department at University of Michigan determined that she had NPHP type 1, a recessive genetic kidney condition that causes kidneys to fail between the ages of 13 and 19.

It must be hard to be on dialysis and not know why your kidneys failed. Any kidney problems in family or history of high blood pressure? There are so many knowledgeable people on this forum.  Sorry that you have to go through dialysis. Glad you joined the group. :grouphug;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
Joe Paul
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« Reply #10 on: May 14, 2009, 02:45:29 AM »
Welcome Mario, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
paris
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« Reply #11 on: May 14, 2009, 11:32:09 AM »
Welcome Mario, so glad you joined us!  It is frustrating to not have a definate reason for kidney disease. I am in the same boat. But, I do know that being a member of this incredible site has given me so much power and knowledge.  Everyone is so willing to give support and answer any questons.  Welcome to the IHD family.  Post often and tell us more about you.    :grouphug;




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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