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Author Topic: Finally going home!  (Read 2357 times)
Lucinda
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Life is great!
« on: May 10, 2009, 06:54:31 PM »
Today is my last day at training.  I have had a horrendous time with allergic reaction but finally things seem to be getting better.  I am going home on three hours with no fluid off.  This has been a really long haul but worth it now I can do it at home.  Sorry I havent been around but complications have kept me in and out of hospital.  Hope youare all well. Love, Cindy.  xx
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charee
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« Reply #1 on: May 10, 2009, 08:02:33 PM »
 :bandance; Cindy you have done so well with your training , it will be heaps better at home , how did Paul go when he went to training ?  I will call you in a few days lots of love xxx
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
Sluff
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« Reply #2 on: May 10, 2009, 08:05:19 PM »
We have been wondering where you have been Cindy, glad you are going home with things going a bit smoother.  :-*
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #3 on: May 10, 2009, 08:41:35 PM »

Cindy - I hope things fall into place and you will be feeling better at home!
 :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Zach
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"Still crazy after all these years."
« Reply #4 on: May 10, 2009, 08:43:24 PM »
 :clap;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
RichardMEL
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« Reply #5 on: May 10, 2009, 09:23:50 PM »
I am booking a flight up as I type.... !!  :rofl; :rofl;

Cindy hope things continue to go well for you and way more comfy and to your own schedule at home! Look forward to you getting back on your feet!  :cuddle; :cuddle; :cuddle; :cuddle;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
monrein
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Might as well smile
« Reply #6 on: May 11, 2009, 04:20:52 AM »
Wishing you all the best with the transition to home.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Rerun
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Going through life tied to a chair!
« Reply #7 on: May 11, 2009, 04:42:10 AM »
I'm sure things will smooth out now that you are home.

Best Wishes!  How is your fur baby doing?

                :waving;
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glitter
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« Reply #8 on: May 11, 2009, 10:18:22 AM »
I am so glad you're doing better!! I have been wondering how you were, I hope you have all the kinks worked out, and can work on your projects you love.
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
willieandwinnie
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« Reply #9 on: May 12, 2009, 08:37:21 AM »
 :waving; Cindy. I hope and pray everything is going well.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Bajanne
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« Reply #10 on: May 12, 2009, 11:22:16 AM »
This is great news!! :yahoo; :yahoo;
Hope everything works out well for you.  Remember your IHD family is with you all the way! :grouphug;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Sunny
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Sunny
« Reply #11 on: May 12, 2009, 12:02:09 PM »
Glad you get to go home. I hope all is going well for you now.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
paris
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« Reply #12 on: May 12, 2009, 01:23:15 PM »
You have been preparing for home dialysis for a long time.  I hope it goes well and you get into a good routine.  We've missed you  :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
G-Ma
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« Reply #13 on: May 12, 2009, 05:46:43 PM »
 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
kitkatz
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« Reply #14 on: May 12, 2009, 09:22:10 PM »
Let it all go well for you when you finally get home!  :grouphug;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Lucinda
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Life is great!
« Reply #15 on: May 12, 2009, 10:05:18 PM »
First day with dialysis at home and it was all smooth sailing.  The training was a far longer haul than I was expecting but now I should be able to get back into life a bit more and back to all my friends here.  The nurse from the centre came over this morning so that will be my last morning treatment.  I am going to start doing treatments at night now so I have my days free.  Also, I still have a tendancy towards feeling a bit rough after my treatment so rather do it at night and then sleep it off.  So a new chapter is here and it is time to move forward!
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Wattle
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« Reply #16 on: May 13, 2009, 01:00:27 AM »
 :clap; :clap;  Thats great Cindy. 

You will soon be in a routine and life will begin again. Maybe a little different than before but hey you love surprises! Any men fallen from the sky lately??


 :-*     :cuddle;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
RichardMEL
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« Reply #17 on: May 14, 2009, 08:02:31 AM »
Great news Cindy. It's been a long haul for you for sure... hopeully your new routine will settle and you'll get back to taking on way more than you should and staerring as usual!!! :D  :bow; :bow; :bow;  :urcrazy;

 :waving; :cuddle;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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