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Author Topic: Hi eveyone  (Read 2314 times)
Scuderia813
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Woo-Hoo!
« on: May 07, 2009, 11:01:53 PM »
Wow, they were right, i does exist. A friend told me about this site and I am so glad to see there are others like me than can laugh as well as cry about having to go thru this...adventure. ESRD was my 30th b-day gift and it's almost one year later. One day I woke up with a head ache, three days later woke up with a posi-port sticking out of my chest, two days later i woke up to this thing buzzing in my wrist. Three days a week I get my ass kicked hemo and no one can tell me why other than "yea, that happens to some people". Hopefully If I can edjucate myself more I can overcome the feeling like this runs/ruins my life. Hope the best to all of you.
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I think the hemo techs are vampires.
Joe Paul
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« Reply #1 on: May 07, 2009, 11:10:01 PM »
Welcome Scuderia, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Maxridex
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« Reply #2 on: May 08, 2009, 08:21:58 AM »
 :welcomesign;
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'' Never give up '' & '' You will never walk alone ! ''

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willieandwinnie
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« Reply #3 on: May 08, 2009, 09:08:58 AM »
 :welcomesign; Scuderia. Glad you found us and great introduction. Stick around, loads iof information and support to be had here.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Romona
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« Reply #4 on: May 08, 2009, 09:31:29 AM »
 :welcomesign;
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MandaMe1986
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« Reply #5 on: May 08, 2009, 10:47:02 AM »
Happy to have you Scuderia.  I am glad you found this site.  I am sure you will find what you are looking for information wise.  Support too.  This is a good site.  Hope to see you around.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

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monrein
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Might as well smile
« Reply #6 on: May 08, 2009, 07:10:03 PM »
 :welcomesign; 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #7 on: May 08, 2009, 07:44:17 PM »
Hi Scud.  Great to have you here.  It's a good place to come cos you can vent and rant all you like, and we all completely understand!  Yes, sometimes it feels like dialysis runs/ruins your life, but other times it doesn't.  Do you have to do haemo?  Any chance of changing to PD?
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Scuderia813
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Woo-Hoo!
« Reply #8 on: May 08, 2009, 10:22:12 PM »
PD has been an option, but I hated that cathater so much I can't stand the thought of another tube sticking out of me. Sorry to be insenitive about it but all the scars and damage to my hand ( my fistula is amazing, but i've got nerve damage in my wrist ) have made me sick of pain. If I could only reduce the horrible numbness, cramping, and general crappy feeling that knocks me down for a least few hours if not all day.
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I think the hemo techs are vampires.
peleroja
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« Reply #9 on: May 09, 2009, 09:43:59 AM »
Welcome to the board.  This is a great place for information, atta boy's, and even the occasional shoulder to cry on.
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willowtreewren
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My two beautifull granddaughters

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« Reply #10 on: May 09, 2009, 10:12:13 AM »
Welcome, Welcome! :welcomesign;

It sounds like you do 3/days hemo in center. My husband also can't stand the thought of the PD tube in his stomach. We do NxStage home hemo and he feels GREAT!!! Doing it six days reduces that stress on the other organs and keeps his levels steady. You might want to look into it if you have a partner who could help.

Post often and share your adventures!
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #11 on: May 09, 2009, 04:00:53 PM »
Oh I can understand how you feel about the tubes etc.  You will get used to the dialysis - it's a bit like being an athlete I think.  Your body gets 'dialysis fit' after a while. The first few weeks are pretty hard - but you'll get there.  Thinking of you and sending positive thoughts and prayers your way.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Scuderia813
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Woo-Hoo!
« Reply #12 on: May 09, 2009, 07:24:30 PM »
Thank you for the nice thoughts, god bless.
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I think the hemo techs are vampires.
Chris
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« Reply #13 on: May 10, 2009, 12:06:47 AM »
Hi Scuderia813 ,

I had that numbness too in my wrist and nervetingling along my thumb. It took over a year to go away though even though my fistula stopped working after 3 months.

Welcome to the club.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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