I dont know what to do now

[Sluff]

Apologies, Matt, I didd not intend to further the debate of dependence.  i was trying to say that it doesn't matter.  The issue is your well being and the professionalism of the nursing staff. 

His well being is being negatively affected by the lack of professionalism.  Hurlock, you don't have enough information or relationship to charge otherwise.  Time to zip it.

I don't really have any more information than you do. Nobody here has noticed anything I've written! I'm saying that people me, you everybody should take responsibility for their own comfort! If you want drugs that you can obtain for yourself don't blame someone else! I'm being made feel that I'm some kind of ogre here because I'm facing the truth. I'm just not saying what the guy wants to hear.  I'm not charging any one with anything. I've pointed out possibilities. I didn't say this guy is a benedril head, I said that it was something to consider. I did mention that one way or the other that taking a drug by IV or pill is the same thing. I didn't say except for the initial rush. $2.37! That's how much 100 benedrils cost at Walmart, (The Equate brand) I bring my own water to dialysis just to keep from asking the caregivers to bring me water. I guess that not expecting caregivers to be treated as waiters and waitresses is being non-professional. I've only been on dialysis for a year I see what they do in my center. every minute is taken, even if for a few minutes to get off of their feet. If that is the reason that they don't just bring benedril strait over and fix'em up, maybe they need to just not get a chance to sit down. They should be at Matt's beckon call. Again Matt, I'm sorry that I ever entered this conversation. I'll stay out of it next time.

Enough said.

Everyone here is allowed their own view point as long as it is not directed at belittling another member. I feel some comments made were a direct attack on Neo.  When you want to get your point across please do it with a little more tact. Your entitled to your opinion just as much as anyone else, just try to word it in such a way that is doesn't look like a personal attack.

Sluff/Admin

[hurlock1]

Well EVERYONE this explains it he (hurlocks post is above) has been an addict. I dont drink, don't smoke, and have never tried marijuana. And you criticize me of abusing benadry?!?! That has got to be the STUPIDEST thing I have ever heard. I think you need to take a long look at yourself before you tell someone else they are drug seeking. So you are going to smoke weed for pain, and you criticize me for benadryl? This better be the last I hear from you..You are quite a hypocrite.

The stigma of being an addict is different from being an addict in recovery. I have been in recovery for twenty years. Just because I said that I was thinking of trying medical marijuana doesn't mean I was smoking it. I am always going through real pain and don't think that an antihistamine is going to help ME. And further more,  I never said that you were an addict. I said that there was the possibility that you were. There is a huge difference. Benedryl isn't known as a "fun" drug. But like I said, there have been people that have  been addicted to Dramamine, and all kinds of other drugs that seemed like they were completely innocuous. Again sorry Matt for getting under your skin. The only reason that anyone would get offended by my language about this, probably thinks that there may be a little truth to it.

[paul.karen]

hurlock congrats on your recovery.

Sluff said it best.  It is all in the way it is worded.  After rereading your posts i can kinda see where you may be playing the tough love gig.  But when you CAPITIALISE certain parts of your talking points it looks like you are attacking.

Wording can be defined by people as having different meanings then they actually do depending on how one reads or conceives it.

No need arguing about how we prefer to do our own dialysis practices.
heck it isnt politics it is our comfort and our lives.

[Neo]

Hurlock....just drop it now....I think you have said enough, don't you.  This is Neo's post and he has rightfully asked you to butt out.  If you can't say something supportive say nothing at all.  As for telling Matt you are telling him what he needs to hear rather than him listen to those supporting him on this site then I have something to say to you.  You are a bully, you are ignorant and you have absolutely no idea what you are talking about.  ABSOLUTELY no idea. You have no right to accuse Matt of being drug dependent. You are the one with the addictive nature and if taking medication makes Matt drug dependent then the whole of the IHD family should be in rehab.  I think it is sad for you that you feel the need to take your blemished past out on Matt.  You won't find support here if you are going to persist with this unfounded and hurtful mud slinging.  Keep your chin up Matt and remember.....there is always one! xxx

thank you Lucinda , and everyone else for your support.I come here to get away from things and get advice and support, and you all have helped me through so many things. I dont come on here to get attacked. I am open to all your suggestions which I have actually used quite often. I want you to tell me what your really thinking when i tell you things as well because i respect your opinions. But Hurlock..enough, just stop posting about me period or in my posts. I DONT want your opinion. Think what you want i don't care but don't post it on these boards. If it regards me in any way just don't do it.

[okarol]

No need arguing about how we prefer to do our own dialysis practices.
heck it isnt politics it is our comfort and our lives.

Well said. 

[dwcrawford]

So far the only thing I've learned about this process is that I don't  know very much at all.  What I do know at this point is that none of us react to the same treatment, the same words or comments, etc. in  the same way.  Also, we don't usually expect the same things from our dialysis unit, nurses and techs. 

Please try to understand each other and respect each other's ponits of view.  If nothing else this web site can give you a sense of well being and security in numbers.  Stick together people.

[paris]

Very well said, DW.   

[pelagia]

I think of IHD as a "safe zone."  All for one and one for all get the IHD family through the rough patches.  This is not the place for tough love.  That comes three times a week or more at dialysis!

[Hanify]

I'm astounded that there are centre's that don't let you have visitors!  My husband would have had a fit if he wasn't allowed to come and sit with me.  Our centre was really pokey and small too, but the nurses always encouraged family to come in.  There was never anyone who made lots of noise or anything.  We had shared tv's too, and everyone just worked out what was on, and didn't have it too loud.  Keep taking notes Neo - and know we're all sending good thoughts your way.

[dwcrawford]

I wish they would limit visitors.  Maybe because I don't have any.  Put some entire families comes in and have family reunions.  Noisy but I question suck things as more chances of infections.  But what do I know?

[keith]

i jus now saw this and i dont kno if this may help but here goes neo have you asked ur doc if u have rls ( restless leg syndrome? while i was on dialysis i had it and they gave me lyrica for it n remember ppl are gonna speak on things and once they do you see what kind of a person they are. and far as visitors they dont want visitors because blood andinfection can become air born or what if a patient crashes an goes out

[G-Ma]

Hey keith how are you? havn't see you post in a long time...

neo..I am so proud of you for continuing with your studies..what area are you planning on working in?? If I read it I don't remember...my favorite "Dr" always have been Nurse Practitioners.  I think they/you always are more up to date on everything.  Just my 

Yes, we all need to watch each others back because no one else will.

Also, please remember...nurses always should be noting what we are eating, meds we are taking, even over the counter, and fluids we are drinking.  This is for our health.  I don't even take my own tylenol along, I just ask when I feel a major migraine coming on like has been said on here and I get taken care of.   

[Hanify]

I wish they would limit visitors.  Maybe because I don't have any.  Put some entire families comes in and have family reunions.  Noisy but I question suck things as more chances of infections.  But what do I know?

I hadn't thought of the infection side of things - and I guess many of us wouldn't want strangers watching while we had low bp fits.  But it makes the time go way faster if you can have visitors.

[hurlock1]

They don't allow visitors in the room when they are hooking people up. My sister was visiting from Houston, tx and  she spent one treatment day with me at dialysis. At the time, I was on an eleven o'clock shift. While they were hooking me up and others, they had my sister sit out in the lobby. She was allowed to come back in after. I hate to say this because of the trouble we've had before, but I remember that you said that you've been on dialysis five years. It would seem that you'd been through all of this before. Maybe not. I don't think that they are singling you out for bad treatment. If they are, the next time the NP or Neph come around remember to bring these issues up. When I have issues; when I get home I write them up in a formal letter, and print several copies up. I keep them in my bag and give one copy to the Neph when he makes his rounds. I give one copy to the facility's adminestrator, and one copy to the nurse practitioner, and to whomever else is inclined to read it. Because I don't have recall when the time comes. I've even gone as far as to send letters to the nursing association. The printed word carries some weight!

[dwcrawford]

I really hate to say this, but I am ending my 4th week at the center tomorrow and I've not had one bit of an issue with any of the staff.  Some of the patients are kind of obnoxious and some of the visitors are loud but I suppose if any of my friends ever go with me they'll be obnoxious and loud too.  But so far, I've had every issue addressed quickly and efficiently.  Maybe five years from now I'll have complaints...

Hey, be good to each other... even the nurses, techs and rest of the staff. 

[kitkatz]

I really hate to say this, but I am ending my 4th week at the center tomorrow and I've not had one bit of an issue with any of the staff.  Some of the patients are kind of obnoxious and some of the visitors are loud but I suppose if any of my friends ever go with me they'll be obnoxious and loud too.  But so far, I've had every issue addressed quickly and efficiently.  Maybe five years from now I'll have complaints...

Hey, be good to each other... even the nurses, techs and rest of the staff.

I am pretty sure DW you just get on in there and make yourself part of the family at the center, don't you? 

[dwcrawford]

Yep...  I did.  Tinah is home...