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Author Topic: Santi from Toronto  (Read 3596 times)
sancon
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Laugh, it will make you feel better
« on: April 28, 2009, 07:40:49 AM »
Hi everyone
My name is Santi i am a male living in Toronto Canada. Yesterday was my first full day on PD. My kidneys are shutting down because of complications due to Diabetes. I have made a conscious effort to not research dialysis, i have not read any of the mountain of literature given to me by the army of nurses and doctors i have been seeing. Denial is not just a river in Egypt. But just like a Mack truck if you don't take it seriously it will run you over.
I heard about this site from a lady while waiting for a blood test and i thought i would take a look around.
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paul.karen
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« Reply #1 on: April 28, 2009, 08:05:03 AM »
Well Santi luckily you came to a place where there is no information on Dialysis and we dont talk about it :sarcasm;..

Glad you found us.  We wont force information on you but are willing to tell you like it is or as we know it.
How is PD going for you?  Will you eventually switch over to the cycler?

Hope to see you post often.
PS. Knowledge is power  :banghead;
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
willieandwinnie
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« Reply #2 on: April 28, 2009, 08:41:52 AM »
 :welcomesign; Santi. You have found the perfect place for great information and support. Hope we hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
kimcanada
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WWW
« Reply #3 on: April 28, 2009, 10:02:43 AM »
 :welcomesign; Santi

I am also Canadian (NS) and also like you was in total Denial right up till they put a perma cath in... :urcrazy; but like you also when it came right down to it, you don't want to feel alone or without a clue

Please ask lots of questions and drop in lots :)

Kim :canadaflag;
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Zach
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"Still crazy after all these years."
« Reply #4 on: April 28, 2009, 10:43:22 AM »
Good to have you with us!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
twirl
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« Reply #5 on: April 28, 2009, 11:14:14 AM »
hello and we are here to help :flower; :flower; :flower;
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willowtreewren
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My two beautifull granddaughters

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« Reply #6 on: April 28, 2009, 11:57:06 AM »
 :welcomesign;   :welcomesign;

Glad you decided to drop by. I agree with Paul.

Knowledge IS power.  :2thumbsup;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
monrein
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Might as well smile
« Reply #7 on: April 28, 2009, 11:58:53 AM »
 :welcomesign;  I'm from Toronto also but I've always wanted to know everything there is to know and then some more about my kidney disease.  You might end up wishing we'd stop giving you so much information but you still have the option of ignoring us.  LOL.  Glad to see you on this board.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
G-Ma
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« Reply #8 on: April 28, 2009, 02:32:53 PM »
That's ok...there are many of us who are or have been in that boat on "Denial".... welcome to a great group.


 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
MandaMe1986
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« Reply #9 on: April 28, 2009, 05:36:42 PM »
Happy to have you  :waving; Glad you found us, this site is wonderful  :welcomesign;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
lola
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I can fly!!!
« Reply #10 on: April 28, 2009, 06:59:34 PM »
 :welcomesign;
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Joe Paul
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« Reply #11 on: April 28, 2009, 10:41:51 PM »
Welcome Santi, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #12 on: April 28, 2009, 11:30:06 PM »
Welcome welcome.  Don't worry about the denial.  Do whatever gets you through.  The time will come when you will be interested in the details.  Don't force it.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Razman
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« Reply #13 on: April 29, 2009, 04:59:51 PM »
  Welcome aboard from another Toronto patient.   I always want to know everything and ask the doctors lots of questions and get copies of all reports.  Please stay in touch .  There are a lot of people that can help if you ever get curious.
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aharris2
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Volcan Pacaya, Guatemala
« Reply #14 on: April 29, 2009, 05:28:23 PM »
Quote from: Hanify on April 28, 2009, 11:30:06 PM
Welcome welcome.  Don't worry about the denial.  Do whatever gets you through.  The time will come when you will be interested in the details.  Don't force it.

That's right Santi. We've got a nice "off topic" section with fun stuff in it. There's political stuff tucked inside if you hunt for it (I warn you though, it can be intense), And there's games. Above all, we are really really nice just to hang with!
Welcome to ihd :waving;

And some time, when you feel like you need some information, you can just get your toes a little wet...
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
Wenchie58
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Always carrying the big silly grin!
« Reply #15 on: April 30, 2009, 09:40:22 AM »
 :welcomesign;
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
David13
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A meow massages the heart.
« Reply #16 on: April 30, 2009, 09:53:24 AM »
Welcome Santi!   :welcomesign;

Kidney disease certainly can be intimidating, but you have taken a really good first step by coming to visit this site.

You will find a ton of useful information and support, too if you give it a chance.

I hope to see you posting often.
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
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