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Author Topic: Artificial Sweeteners - ARGH!  (Read 11312 times)
willowtreewren
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« on: April 27, 2009, 06:30:35 PM »

I feel like such a doofus!

I have been working at bringing my creatinine clearance up for the past few months so I could be retested. Haven't taken any allergy medicine and no ibuprofen. Drink plenty of liquids....

And tonight it occurred to me that I should check artificial sweeteners (my supply of Splenda for coffee is about gone...)

OMG! They degrade the kidneys, too. And I have been nearly bathing in Crystal Lite.  :banghead;   :banghead;   :banghead;

How could I have been so stupid???? I feel like I have set this process back by months. And I have nobody to blame but myself. But in all the research I did about improving CC, I found NOTHING about artificial sweeteners (and the whole array of them are bad!)

Sometimes it feels like there is a huge hurdle for everyone to be able to find out what they need to know to be as healthy as they can be. Just look at all the folks who come to this forum to ask questions because they can't find the answers anywhere else. ARGH!

 :rant;

Thanks for the chance to vent. Back to the "project" to be able to donate to my husband.

(I like the idea posted elsewhere about looking at self-improvement as a project .... less intimidating  ;D)

Aleta
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Wife to Carl, who has PKD.
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Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
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« Reply #1 on: April 27, 2009, 07:45:56 PM »

I forgot where I read about all the artificial sweetners from the past to the current offerings. It did not mention anything about CC either. I may have read it from a link from the American Diabetes Association, but have to look or old emails if I kept it.
I have been using Sweet N Low and Equal for years alon with Sugar Twin at times over the years, I'm sure something will or has happened from it since it is an artificial sweetner.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Jean
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« Reply #2 on: April 28, 2009, 12:05:57 AM »

Oh CRAP!!!!! I practically bathe in Crystal Light also. Did any one think to change their deodorant also? I did do that, could not believe all but one of them said, " harmful to kidney patients"
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« Reply #3 on: April 28, 2009, 12:08:16 AM »

Nope, but the print is so small on the package, I can't read it. Thought it was an urban legend also.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
MandaMe1986
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« Reply #4 on: April 28, 2009, 12:35:27 AM »

I have learned just about everything is bad for kidney patients
  :(
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
monsterman
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« Reply #5 on: April 28, 2009, 12:54:47 AM »

I have learned just about everything is bad for kidney patients
  :(

Seriously is there anything that is good anymore for us? I am still new to all of this but almost every time I turn around something is BAD  :rant;
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Chris
MandaMe1986
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« Reply #6 on: April 28, 2009, 12:57:34 AM »

I just take it for granted that it is bad for me, that way when it isn't its like a little treat.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
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« Reply #7 on: April 28, 2009, 01:03:32 AM »

Back in the 80's, they changed what diabetics should and should not eat almost on a yearly basis. At one point they said juice was bad to drink ???

I don't really care anymore unless there is sound reasoning or proof, however anything from Taco Bell is a risk! :rofl;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
MandaMe1986
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« Reply #8 on: April 28, 2009, 01:10:19 AM »

Thats okay cause Del Taco is better anyway  ;)
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Chris
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« Reply #9 on: April 28, 2009, 01:20:49 AM »

We don't have Del Taco here, just Taco Bell and independent mexican fast food joints in various towns.

By the way, I'm happy Mc Donalds no longer uses Splenda and has gone back to Equal. I couldn't stand Splenda, it tool a lot of those packets to make my coffee taste the same as compared to using 3 packets in a large coffee. Just seems newly diagnosed diabetics like it better compared to many who were brought up using the old stuff.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
jbeany
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« Reply #10 on: April 28, 2009, 07:32:57 AM »

I'm diabetic, and I've found it's easier to use real sugar and just count the carbs.  The artificial stuff makes me queasy, or just tastes funny to me.

Water with ice is my drink of choice - I know i don't have to worry about whats in it that way.

Keep at it, willow - it stinks that you didn't find out sooner, but at least you know now!
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bevvy5
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« Reply #11 on: April 28, 2009, 11:43:44 AM »

That's interesting.  We asked my husband's dietician about sweeteners, particularly Splenda and she said it was fine.

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MandaMe1986
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« Reply #12 on: April 28, 2009, 05:27:03 PM »

We don't have Del Taco here, just Taco Bell and independent mexican fast food joints in various towns.

By the way, I'm happy Mc Donalds no longer uses Splenda and has gone back to Equal. I couldn't stand Splenda, it tool a lot of those packets to make my coffee taste the same as compared to using 3 packets in a large coffee. Just seems newly diagnosed diabetics like it better compared to many who were brought up using the old stuff.

Your missing out if you don't have a Del Taco, much better.  And come on Splenda is so much better then Equal. Both are better then sweet N low. 
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
kitkatz
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« Reply #13 on: April 28, 2009, 08:11:51 PM »

Del Taco french fries-MMMMMMMMM!
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Take it one day, one hour, one minute, one second at a time.

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kellyt
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« Reply #14 on: April 28, 2009, 08:25:27 PM »

If you go deep into the Splenda website you will find that it is not good for the kidneys.  However, when I asked about it I was told you would have to consume an extremely large amount of Splenda and for a long period of time!

I was told post transplant that Crystal Lite was absolutely fine.  As a matter of fact, she said she preferred I drink that over everything else other than good ole water.

Don't beat yourself up.  For the first three months post transplant I lived on Pink Lemonade Crystal Lite.  I've had to take a break since because I burned myself out.  ha ha  But I have a large amount in my pantry.  :)
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Chris
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« Reply #15 on: April 28, 2009, 08:37:47 PM »



Your missing out if you don't have a Del Taco, much better.  And come on Splenda is so much better then Equal. Both are better then sweet N low.

I started in the 70's with the pink stuff, then Sugar Twin, and then Equal/Nutrasweet. I just can't switch to Splenda, it doesn't taste right to me and have tried several times because it was the only option. Glad Diet Pepsi doesn't use it and stuck with Aspartme.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
MIbarra
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« Reply #16 on: April 28, 2009, 08:52:36 PM »

I am a splenda girl. I can't get myself to drink water. But I guess I need to make more of an effort.

Okay, maybe a stupid question, but... Really, deoderant? Not a good thing? Or is that a joke? If it isn't which deoderant is okay?
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Zach
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« Reply #17 on: April 28, 2009, 09:02:09 PM »


Really, deodorant? Not a good thing? Or is that a joke? If it isn't which deoderant is okay?


The issue is mostly with antiperspirants not deodorants --I believe because many antiperspirants use a mixture containing aluminum to stop wetness.

8)
« Last Edit: April 28, 2009, 09:05:51 PM by Zach » Logged

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I make films.

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Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
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« Reply #18 on: April 28, 2009, 09:08:34 PM »

This was also said about shampoos too containing aluminum.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Jean
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« Reply #19 on: April 29, 2009, 01:15:28 AM »

Correct, it is the aluminum. The only one I found was Arm and Hammer. It's pretty good too. Doesn't work as well as an antiperspirant so stay away from using jackhammers and such. You know, manual labor.
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willowtreewren
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« Reply #20 on: April 29, 2009, 04:49:43 AM »

Since I'm trying to improve my creatinine clearance in order to give my beloved husband a kidney, I'm taking ALL measures to help those guys.

My favorite Crystal Lite is pomegranate lemonade. I'm just going to bring my supply to school and let the rest of the staff enjoy it. It's back to water with lime juice for me!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
rookiegirl
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« Reply #21 on: April 29, 2009, 07:32:58 AM »

I'm having a dumb moment here.  So I apologize if I didn't get this right.  So artificial sweeteners are bad for the kidneys, right?  I'm concern because I use Splenda all the time.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
jbeany
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« Reply #22 on: April 29, 2009, 08:52:05 AM »

I'm having a dumb moment here.  So I apologize if I didn't get this right.  So artificial sweeteners are bad for the kidneys, right?  I'm concern because I use Splenda all the time.

I think if I was still pre-dialysis and trying to conserve as much kidney function as possible, I would avoid as much artificial stuff as I could.  Once you've started dialysis, I doubt reasonable amounts would make much difference  - you've already lost most of your function to other things by then.  Large amounts of anything artificial are bad for anyone - healthy kidneys or not.  All things in moderation. 

Willow is going as far as she can to be cautious, for the best of incentives.
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willowtreewren
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« Reply #23 on: April 29, 2009, 09:17:46 AM »

Hi, Rookiegirl.
I agree with Jbeany. None of the artificial sweeteners are "good" for you, but you have to weigh the options and make personal choices based on individual situations. My creatinine clearance was slightly below the cut off for our transplant center. I am desperate to be able to give my husband a kidney. We don't really have the option to go to a different center where I would fall within their parameters. We run our own business and it would collapse if we were both gone for any extended period of time. That would not be a good scenario. :P

So, I am going the extra mile in every way I can. Depending on the sources, Splenda is or isn't considered bad for kidneys. I tend NOT to trust the manufacturer, since they have a conflict of interest. AND, if one practices moderation, it shouldn't be a concern.

My real frustration is that ALL my health care providers AND my husband's neph know what I'm trying to do and I have asked advice of EVERYBODY (even my cousin who is a kidney transplant nurse at Hopkins). No one even mentioned artificial sweeteners. I had to find out on my own through personal research. That's where the ARGH came from.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
kellyt
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« Reply #24 on: April 29, 2009, 03:57:21 PM »

I think it's great that you're doing whatever you can to possibly give your husband a kidney.  True love.  Nothing but the best of luck to you and your husband.   :2thumbsup;
Logged

1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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