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Author Topic: Two possible donors  (Read 9095 times)
willowtreewren
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My two beautifull granddaughters

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« Reply #25 on: April 23, 2009, 08:41:15 AM »
This is WONDERFUL news! :cheer: :cheer: :cheer:

I'm thinking of you and keeping my fingers crossed that surgery and recovery will be smooth sailing.

YEA!!!! :bandance;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
kimcanada
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« Reply #26 on: April 23, 2009, 10:03:00 AM »
Speedy recovery Wally!!!  :thumbup; :thumbup; :thumbup;
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MandaMe1986
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« Reply #27 on: April 23, 2009, 10:13:57 AM »
Wally  you will be on my mind. Keep us updated!
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
KarenInWA
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« Reply #28 on: April 23, 2009, 03:40:40 PM »
 :yahoo;  :yahoo;  :yahoo;

YAY WALLYZ!!!!!

 :cheer:  :cheer:  :cheer:

My thoughts and prayers will be with you tonight!!!

 :beer1; to a speedy recovery, and many long years with your cherished gift!!!

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
kellyt
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« Reply #29 on: April 23, 2009, 04:12:00 PM »
Wally, that is wonderful news!  I can't wait to hear all about it!  I pray everything goes really well, both in surgery and during your recovery!   :clap;     :2thumbsup;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Sunny
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Sunny
« Reply #30 on: April 23, 2009, 06:43:21 PM »
This is wonderful news. I hope all goes well and we hear from you soon.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Jill D.
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« Reply #31 on: April 23, 2009, 06:52:32 PM »
I hope and pray all has gone well!!!!
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
MandaMe1986
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« Reply #32 on: April 23, 2009, 07:49:20 PM »
Thinking about you and wanted to stop in and let you know we are all praying for you. :grouphug;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Wallyz
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« Reply #33 on: April 23, 2009, 08:14:06 PM »
Well, it didn't happen. The Pancreas got damaged when they removed it.  I am back to waiting.  We had just gotten tot he hospital when we got the call.

I am out of luck on this one, but the donor was able to gove his heart lungs, kidneys , liver and other organs.  There are people up and down the west coast in Operating rooms tonight that need our prayers.
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rose1999
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« Reply #34 on: April 23, 2009, 10:18:36 PM »
I am so sorry to hear this but I applaude your attitude and caring for those others who were luckier than you this time.  God bless and I hope your turn comes really soon  :cuddle;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #35 on: April 24, 2009, 12:29:09 AM »
 :grouphug; Better luck next time - so sorry it didn't work out today.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
KarenInWA
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« Reply #36 on: April 24, 2009, 01:41:32 AM »
Wallyz, (aka Brian!)

I am really saddened by this news, but at the same time, I am really touched by your concern and caring for all the other patients receiving transplants from these donors.  You have been through so many of these yo-yo-like situations, and for once, you deserve your turn!!!  I was really hoping that this one would work out for you, as we all were.  I guess the best way to look at this is maybe this one woudn't have worked out for you, and the P/K transplant that *will* work out for you just hasn't happened yet.  Not that i'm wishing for someone's untimely death, but you know what I mean.  When you do get that gift of life with freedom, may it be from an ultra-healthy donor that had good karma for most of his/her life, coupled with a positive attitude, and that all of that flows through your veins and makes this transplant story of yours one of the more successful ones!  I'm rooting for you, Brian.  You, and all our other transplantees this evening, are in my prayers tonight and always.

Oh, and looking forward to beating you at pool at The Garage, maybe even post-transplant and you can show off your scar!  ;D

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
RichardMEL
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« Reply #37 on: April 24, 2009, 02:27:51 AM »
I'm sorry Wallyz but I'm totally bummed by this news.. I don't want to be a downer but this is getting beyond a bit of a joke. How many have you been offered, or been backup for or whatever that haven't worked out? I personally feel so crushed reading your news. It is awesome how you are happy for and care about the others getting that organs.. and that is totally selfless.. but I'm telling you I *so* wanted this one to be for you (ok one=two being kidney/pancreas I know!! :))..

You are an awesome person and you so deserve one to go your way and it better bloody be soon!!!

you are very much in my thoughts.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
paul.karen
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« Reply #38 on: April 24, 2009, 04:23:13 AM »
 :thumbdown;

Sorry to read this first thing today.
What you lack in Kidney and pancreas you make up for in heart.
At least you know they know your out there.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
willowtreewren
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My two beautifull granddaughters

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« Reply #39 on: April 24, 2009, 04:54:34 AM »
Oh, Wally,
Now it is tears of sadness.  :'(

I was soooo excited for you yesterday. And when I saw your reply in my thread about Pureflow I was worried...

You have such a wonderful attitude. I really admire you.

I will be pulling for you and all those waiting for transplants.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Wattle
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« Reply #40 on: April 24, 2009, 04:55:24 AM »
 :cuddle; :cuddle;  I really thought you had a good chance this time. I am sorry it didn't work out.

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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
willieandwinnie
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« Reply #41 on: April 24, 2009, 05:15:00 AM »
 :cuddle; Wallyz. I was sad when I read this and I'll keep praying that your call comes soon. I said a prayer for the donor and all that are recieving their gift. You are amazing.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
kellyt
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« Reply #42 on: April 24, 2009, 07:43:40 AM »
So sorry to hear this, Wally.   I can't wait for your next call!   What a great attitude you have!   :clap;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
paris
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« Reply #43 on: April 24, 2009, 08:41:18 AM »
I am sad, too.  We all really thought this was your time.   I hope the ones who got the organs  do well and live long lives.  I'll keep praying your turn comes very fast.    :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
David13
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A meow massages the heart.
« Reply #44 on: April 24, 2009, 08:54:52 AM »
I'm very sorry it didn't work out this time, Wally.   :(
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
Wallyz
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« Reply #45 on: April 24, 2009, 09:26:07 AM »
It is a Yo-Yo, but I have only been on the list 5 months.  This is fast, and I am grateful.

Another good thing- the kidney that I couldn't get because the Pancreas was damaged went to a teenager at Seattle Children's Hospital.  I'm OK with waiting if that's the outcome.

Karen-

Smack talk, huh?  I want you to know that-  wait.  Do you smell that smokey smell?  Oh right, that's the smell of you going down in flames.

Keep your words soft and sweet lady, I'll make you eat'em. :2thumbsup;
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Wallyz
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« Reply #46 on: April 24, 2009, 09:39:19 AM »
Everyone has been nice and supportive about my positive attitude, and I am glad. However, I have to be honest about this.  When I heard that they had damaged the pancreas, and I would not be able to use it, the phrase "Ham-fisted, sorry ass pathetic excuse for a surgeon, &(*%-nut quack"  did cross my mind once or twice.
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willowtreewren
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My two beautifull granddaughters

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« Reply #47 on: April 24, 2009, 09:50:27 AM »
Ah, Wallyz,
It is good to know that you aren't an absolute saint. I STILL admire your attitude, though.

 :2thumbsup;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
MandaMe1986
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« Reply #48 on: April 24, 2009, 10:32:13 AM »
I'm sorry to hear this.  And no matter how positive you are, you  have the right to get a little pissed off . *smile*   :cuddle;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
kimcanada
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« Reply #49 on: April 24, 2009, 10:58:55 AM »
Wally,

I am sorry to hear your news.... there isn't much to say except you handled this with grace and charm.. you will get the best k&p transplant yet :)
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