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Author Topic: Documentary Film  (Read 3530 times)
AmandaFeder
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« on: April 22, 2009, 11:29:29 AM »

Hi-

my name is Amanda Feder and I work for an independent production company based in Toronto.

Are you a kidney patient on dialysis looking for alternatives to the waiting list for an organ? We'd like to hear from you if you're interested in being in a documentary on the interminable waiting lists and the state of the health system in Canada.

You can contact me at storyline1@live.ca.

Thanks!
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paul.karen
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« Reply #1 on: April 22, 2009, 11:33:57 AM »

What are some of the alternatives??

And welcome to IHD..
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Wallyz
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« Reply #2 on: April 22, 2009, 12:32:28 PM »

This totally feels like a phish for a transplant tourism quack.
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Zach
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"Still crazy after all these years."

« Reply #3 on: April 22, 2009, 01:31:30 PM »


...  a documentary on the interminable waiting lists ...


Interminable.  Really?

8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #4 on: April 22, 2009, 01:36:40 PM »

This totally feels like a phish for a transplant tourism quack.

I have written to Amanda for more information.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Razman
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« Reply #5 on: April 22, 2009, 02:34:17 PM »

 Hi Amanda ,  I live in Toronto and I am curious as to what you mean by the "health system in Canada" .

Please send me a private email with your phone number and we can talk.  Thanks
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Razman
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« Reply #6 on: April 24, 2009, 12:26:01 PM »

  Just a note.  I did not get a response to my request.
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kimcanada
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« Reply #7 on: April 24, 2009, 12:27:11 PM »

Thanks Razman I didn't quite get it :waiting;
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paris
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« Reply #8 on: April 24, 2009, 12:54:53 PM »

Okarol, did you get a response?  Just wondering.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #9 on: April 24, 2009, 01:18:38 PM »


No response.

I did find "Amanda Feder" on the internet though:

http://belleville.en.craigslist.ca/com/1087818842.html "A Documentary about Twins!! (Ontario)"
http://www.imdb.com/name/nm1393577/ "Amanda Feder, writer"
http://www.ryerson.ca/studentservices/internationalservices/aboutus/studentstaff/ "Ryerson University - Student Staff"
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
AmandaFeder
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« Reply #10 on: May 01, 2009, 07:54:13 AM »

Hi guys-

I am so so sorry I have not responded!! Hotdocs, one of the most important documentary film festivals in the world, began yesterday and I had been swamped with work in preparation for this.  I also posted my message in another section of the forum- and kept checking that one for responses.

Firstly, please feel free to visit our documentary film company's website at www.storylineentertainment.com to look at our past work. I promise you that we make politically conscious, fair, important films that people see!!- despite the fact that many of you may not have heard of us, all our films have been broadcast on national television.

I  realize the message I posted was very vague- and yes, transplant tourism does have something to do with our project.  We are making a film about the "gray zone" that transplant tourims often finds itself in- particularly for Canadians. We are speaking to Canadians who have been waiting years for a transplant, or for their loved one to get a transplant- and who are considering leaving the country to find a solution.  I know that transplant tourism is controversial- and we do want to look at both sides of the coin so to speak- but we also want to stress that with Canada's health care system many Canadians are left feeling that they have few options.

Razman- I am sorry I didn't respond to your posting earlier.

You are all welcome to contact me at my email at amanda@storylineentertainment.com- if you would prefer that.

Again, I am sorry for the delay on my part.

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monrein
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« Reply #11 on: May 01, 2009, 08:41:10 AM »

Amanda, I also live in Toronto and have had years of dialysis and transplant experience (I have had one cadaveric and one living donor transplant) dating back to 1980.  I'm not sure that the Canadian wait for organs is too much different than that experienced in the US for example and it seems evident that as the number of people receiving treatment for ESRD has grown so has the need for transplants.  Demand has outstripped supply and as awful as that is I do worry about transplant tourism and the potential for the unethical, profit-driven motives of middlemen who could/would prey on both sides of a very vulnerable divide, that of the desperately ill and of the desperately poor.  There are perhaps however other options that need to be examined and considered in the attempt to procure more kidneys for transplantation in order to provide a better quality of life for many renal patients and additionally to reduce some of the very burdensome costs to our struggling health care system.  I should add that the Canadian system and OHIP in particular have served me extremely well and I am personally committed to seeing it remain healthy as it faces the many stresses of our modern world.

Please feel free to contact me via a PM if you want to discuss this issue further and I look forward myself to seeing some of this year's Hotdocs.
 

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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Wallyz
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« Reply #12 on: May 01, 2009, 10:27:27 AM »

Amanda-
Sorry about the assumption.  We get that sort of thing here from time to time. Thank you for focusing on this issue.  I am on the transplant list in Seattle WA, in the US, and would be happy to interview comparing and contrasting the Canadian with the US system.

I will tell you that I do question the ethics of presenting transplant tourism as a gray zone, as it is pretty clearly illegal, exploitive, and dangerous for the patients. 


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AmandaFeder
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« Reply #13 on: May 12, 2009, 06:44:26 AM »

Hi Monrein and Wallyz-

Thank you so much for sharing some info about yourselves and offering to speak with me. I will pass this information on to our director.

Thanks!
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