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Author Topic: here's what home hemo did for Marvin today...  (Read 8861 times)
petey
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« on: April 21, 2009, 06:48:08 PM »
Before Marvin got sick years ago, he was an avid golfer -- once, twice a week -- every time he got the chance, he was on the golf course.  Then, we found out he had ESRD and started dialysis four days later.  Unfortunately, he soon figured out that he couldn't hold out for golfing anymore.  The last time he golfed was about 13 years ago -- just a year after he started dialysis.  He made it to the third hole before he called me to come and get him; he physically just couldn't do it.  He was so disappointed.  He decided then he'd give up the sport.

Well, all the years went by, and Marvin's had so many surgeries since then (four grafts in the arms, two fistulas in the arms, 14 perm caths, a transplanted kidney in, a transplanted kidney out, an abdominal pacemaker, etc.).  Along with all the surgeries and all the "mending," dialysis has taken its toll on Marvin's energy and stamina.  But, then we started home hemo 20 months ago, and his energy has picked up considerably.

Today, I called home during my break between classes, and Marvin wasn't home.  When I reached him on his cell, he said he was on the way to the golf course with a buddy of his.  "I woke up this morning and decided I wanted to see if I could golf again," Marvin told me.  "I called Randy, and he said, 'Let's go.'"

Marvin shot nine holes of golf today!   Randy only beat him by two strokes (Randy's a few years younger and an extremely healthy man).  Marvin was tickled beyond words with himself.  Then tonight, Marvin's youth baseball team had a game, and Marvin went and coached for two hours!  It's been a very good day for Marvin physically, and we both think it's because of the home hemo.  It's so wonderful to see him enjoying the things he loved pre-dialysis!
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David13
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« Reply #1 on: April 21, 2009, 06:55:36 PM »
That is truly inspirational!   :2thumbsup;
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silverhead
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« Reply #2 on: April 21, 2009, 07:41:37 PM »
Fantastic!
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rocker
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« Reply #3 on: April 21, 2009, 07:48:17 PM »
Wow!  :yahoo;

Hubby has been debating whether to start home hemo once his fistula is fully operational.  He is still working and doesn't really want to put in the training time. I will definitely be passing this story along.  I tell him that many people report feeling much better on home hemo, but he remains unconvinced.
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Wallyz
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« Reply #4 on: April 21, 2009, 08:24:22 PM »
Yay for Marvin! 

Rocker- tell your hubby that the mortality rate of Home Hemo is half that of in center.
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Sluff
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« Reply #5 on: April 21, 2009, 08:56:49 PM »
 :yahoo;  Holy Cow! Congratulations Marvin.  :beer1;
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thegrammalady
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« Reply #6 on: April 21, 2009, 09:58:07 PM »
 :yahoo; :2thumbsup; :yahoo; :2thumbsup; :yahoo; :2thumbsup;
i just love good news.
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« Reply #7 on: April 21, 2009, 10:07:43 PM »
                 

                                  :boxing;         :boxing;         :boxing;                   
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circleNthedrain
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« Reply #8 on: April 21, 2009, 10:37:15 PM »
This is such a GREAT story.  You just gotta keep trying!
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric  kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
rose1999
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« Reply #9 on: April 21, 2009, 11:21:51 PM »
 :yahoo; So pleased to read this, long may it continue  xxx
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Wattle
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« Reply #10 on: April 22, 2009, 12:51:11 AM »
 :clap; :clap; :clap;

Time for a new set of clubs!!    :yahoo;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
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My two beautifull granddaughters

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« Reply #11 on: April 22, 2009, 06:33:15 AM »
This is wonderful, Petey.

I'm a true believer in home hemo since my husband feels so great, too.

Everyone keeps saying that he looks so well, and of course, he does!

May Marvin have many wonderful years of golf! :cheer:

Aleta
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Wife to Carl, who has PKD.
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Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
willieandwinnie
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« Reply #12 on: April 22, 2009, 06:43:53 AM »
 :yahoo; You made my day petey. Hope Marvin has many more golf adventures.  :cuddle;
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« Reply #13 on: April 22, 2009, 07:41:15 AM »

I love to hear it petey! Great news to start the day!   :2thumbsup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #14 on: April 22, 2009, 08:25:13 AM »
Go Marvin!
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del
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« Reply #15 on: April 22, 2009, 09:22:13 AM »
Way to go Marvin!!!  Yes Petey it is due to home hemo and being able to do so much more dialysis!!!  In the 2 1/2 years hubby has been on nocturnal home hemo he feels better than he ever has in his life!!!   :yahoo; :2thumbsup;
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paul.karen
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« Reply #16 on: April 22, 2009, 09:30:11 AM »
 :clap;
This is a happy story for sure.

 :thumbup;
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
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harley08
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« Reply #17 on: April 22, 2009, 12:53:16 PM »
That is such wonderful news..... Go Marvin  :clap; :yahoo; :clap;
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cherpep
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« Reply #18 on: April 23, 2009, 01:33:57 PM »
That is so inspirational!!!  I love doing home hemo, but work takes all the energy out of me.  I have a very difficult time finding the energy for just grocery shopping.  Golf?!  Wow.  That is just incredible. 
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kimcanada
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« Reply #19 on: April 23, 2009, 04:11:02 PM »
What a great story, and believe me I NEEDED THAT ... way to go Marvin~!!
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Jill D.
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« Reply #20 on: April 23, 2009, 06:59:06 PM »
This is so great to hear!
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
glitter
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« Reply #21 on: April 23, 2009, 09:53:59 PM »
wow- that just made my list of daily positives- you GO!!   :flower; :cheer:
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

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RCC
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Jean
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« Reply #22 on: April 23, 2009, 11:31:04 PM »
Oh, now, that is awesome!!!!! Yay Marvin!!!!
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One day at a time, thats all I can do.
Floridasue
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« Reply #23 on: April 24, 2009, 06:47:14 AM »
That is so great!!!  And how I needed to hear nsuch a niice story this morning.  I have been on NxStage for a couple months now and hoping I will have a great story to tell down the road.  Thanks for the news.
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Floridasue
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« Reply #24 on: April 26, 2009, 08:46:23 AM »
For Marvin's Golf Game:


The Golf Pro Prayer

The Pro is my Shepherd, I shall not Slice.
He maketh me to Drive Straight Down Green Fairways;
He leadeth me Safely across Still Water-Hazards;
He restoreth my Approach Shots.
He Leadeth me in the Paths of Accuracy for my Game's Sake.
Yea, though I chip through the Roughs in the shadows of Sand Traps,
I will fear no Bogies. For his Advice is with me;
His Putter and Irons, they comfort me.
He prepareth my Strategy for me in the presence of mine Opponents;
He anointeth my head with Confidence:
The Cup will not be runneth over!
Surely Birdies and Eagles shall follow me all the Rounds of my Life,
And I will score in the Low Eighties


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