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Author Topic: Can I get a WOOHOO?!  (Read 5966 times)
cherpep
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« on: April 17, 2009, 11:41:03 AM »
I had my monthly checkup today (I'm a home hemo patient).  In August, my PTH was at 900, and we've been working toward getting it lower. 

This month - my PTH was.... wait for it......  148!!!!!!!

Last month it was still at 500.  We doubled up on the Sensipar, and here I am.  No more talk about surgery.  I think that deserves a WOOHOO! 
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KarenInWA
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« Reply #1 on: April 17, 2009, 11:43:00 AM »
 :bandance; WHOO-HOO!!!!!  :bandance;  :yahoo;  : :clap;  :cheer:
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
David13
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« Reply #2 on: April 17, 2009, 11:45:48 AM »
WOOHOO!
You rock!   :yahoo;
« Last Edit: April 17, 2009, 11:58:39 AM by David13 » Logged
“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
Wenchie58
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Always carrying the big silly grin!
« Reply #3 on: April 17, 2009, 11:47:49 AM »
WOOHOO!!

Congrats!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
MandaMe1986
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« Reply #4 on: April 17, 2009, 11:54:04 AM »
WOOOOO HOOOO!  :yahoo;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
willieandwinnie
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« Reply #5 on: April 17, 2009, 12:08:44 PM »
 :yahoo; WOOHOO!! Is Right. Good for you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
paul.karen
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« Reply #6 on: April 17, 2009, 12:10:08 PM »
 :thumbup;

WOOHOO X 2.

No surgery is always a good thing.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Wallyz
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« Reply #7 on: April 17, 2009, 12:31:50 PM »
Knock Knock.
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thegrammalady
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« Reply #8 on: April 17, 2009, 12:39:43 PM »
 :yahoo; :yahoo; :yahoo;
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Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

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cherpep
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« Reply #9 on: April 17, 2009, 12:43:01 PM »
Who's there?
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paris
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« Reply #10 on: April 17, 2009, 12:59:07 PM »
Good for you, Cherpep!   :yahoo;   Is the Sensipar still making you sick?  Glad the numbers have come down so much.  :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
cherpep
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« Reply #11 on: April 17, 2009, 01:28:50 PM »
I'm definitely building up a tolerance to the Sensipar.  It made me real sick in the beginning.  I was OK until last month when she doubled the dose.  But, I'm tolerating it more and more every day.  Seeing the numbers go down will make it a lot easier to bear the nausea.  I believe soon I'll completely tolerant and not get sick at all.  Thinkin positive!
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jbeany
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Cattitude
« Reply #12 on: April 17, 2009, 01:59:49 PM »
I know that WooooHoooo!  Had one myself this month!

Actually, the last time I was on Sensipar, I started throwing up all the time.  I was scheduled for surgery, since the Sensipar wasn't doing enough anyhow, and I asked if I could stop taking it in the last couple of weeks before the surgery.  Doc said yes, and I stopped taking it.  But I was still queasy and occasionally puking some of the time, so I have to wonder how much of the puking was the Sensipar, and how much was the chemical imbalance that comes with a high PTH.

My PTH, after bouncing around like a rubber ball - 900, then 450, then 600, etc., dropped this month to 385.  Not perfect, but much better!  So no surgery right now for me, either!  :bandance;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
cherpep
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« Reply #13 on: April 17, 2009, 02:12:47 PM »
WOOHOO!!   <---- for jbeany!!
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twirl
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« Reply #14 on: April 17, 2009, 02:51:09 PM »
Quote from: Wallyz on April 17, 2009, 12:31:50 PM
Knock Knock.

will you finish the knock knock joke     she answered who is there
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willieandwinnie
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« Reply #15 on: April 17, 2009, 02:52:41 PM »
 :yahoo; twirl.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Wallyz
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« Reply #16 on: April 17, 2009, 02:53:33 PM »
Quote from: cherpep on April 17, 2009, 12:43:01 PM
Who's there?

Woo.
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kitkatz
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« Reply #17 on: April 17, 2009, 02:53:52 PM »
Whoo Hoo!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
G-Ma
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« Reply #18 on: April 17, 2009, 03:13:17 PM »
 :bandance;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
MIbarra
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« Reply #19 on: April 17, 2009, 03:52:37 PM »
That's awesome! While I was on dialysis, I never got my pth down. What hard work!  :cheer:
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Cadaver transplant April 29, 2007
cherpep
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« Reply #20 on: April 17, 2009, 05:52:36 PM »
LOLOLOL, wallyz!!

thanks everyone.  this is a good day!!!
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Tinah1968
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ME
« Reply #21 on: April 17, 2009, 06:55:07 PM »
THAT IS WONDERFUL NEWS :clap; :clap;
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
pelagia
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« Reply #22 on: April 17, 2009, 07:23:41 PM »
W  :bandance; O :bandance; O :bandance;

H  :yahoo; O  :yahoo; O :yahoo;

 :2thumbsup;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Wattle
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« Reply #23 on: April 17, 2009, 11:09:24 PM »
 :cheer:  W

 :cheer:  O

 :cheer:  O

 :cheer:  H

 :cheer:  O

 :cheer:  O          :bandance; :bandance;     
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Sluff
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« Reply #24 on: April 18, 2009, 06:21:59 AM »
 :thumbup;  Good for you Cherpep and Jbeany   :bow;  :bow;  :bow;  :bow;   :grouphug;
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