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Author Topic: Going to New York  (Read 11333 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: April 14, 2009, 02:36:15 PM »
 :waving; My younger daughter Becca and I are headed to NY tomorrow. She wants to look at 2 colleges that accepted her so she can decide where to go. I hope to have internet access at the hotel so I will be checking in. If we don't I will be crazy (er) but that's ok. (She says as her lip starts to tremble. Noooo... you're not an IHD addict...!) I am looking forward to the trip (a little nervous about driving upstate, but it's an adventure!)  :bandance;

Take care of each other!!  :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
thegrammalady
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« Reply #1 on: April 14, 2009, 02:54:59 PM »
have an absolute blast!!  don't forget  :pics;
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
monrein
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Might as well smile
« Reply #2 on: April 14, 2009, 02:56:33 PM »
Have fun Karol.  I feel excited for Becca. 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #3 on: April 14, 2009, 03:01:40 PM »
 :clap; Karol, have just a wonderful time. Don't forget to bring a jacket, still cold there. Is Becca nervous or excited or both. Be safe and enjoy yourself.  :cuddle;
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Sluff
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« Reply #4 on: April 14, 2009, 03:05:37 PM »
Where's the nut thread...Give Zach a handshake from me if you see him.
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Rerun
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Going through life tied to a chair!
« Reply #5 on: April 14, 2009, 03:26:14 PM »
You can give Zach "more" than a handshake for me!!~!! 

Have a great time.  I think they still drive on the right side of the road there!

                             :cuddle;
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rookiegirl
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« Reply #6 on: April 14, 2009, 03:37:14 PM »
Have a safe trip!
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
Wenchie58
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Always carrying the big silly grin!
« Reply #7 on: April 14, 2009, 03:51:31 PM »
Upstate? I am Upstate?  Which schools are you looking at?

Dang, hope I catch her....this could be a lunch date!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
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G-Ma
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« Reply #8 on: April 14, 2009, 04:00:35 PM »
be safe and be happy.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
okarol
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« Reply #9 on: April 14, 2009, 04:11:38 PM »
Quote from: Wenchie58 on April 14, 2009, 03:51:31 PM
Upstate? I am Upstate?  Which schools are you looking at?

Dang, hope I catch her....this could be a lunch date!

Sarah Lawrence and Bard - are you close?

Quote from: Rerun on April 14, 2009, 03:26:14 PM
You can give Zach "more" than a handshake for me!!~!! 

                             :cuddle;
Hahahaha good idea! THIS is from Rerun  :sir ken;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Wenchie58
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Always carrying the big silly grin!
« Reply #10 on: April 14, 2009, 04:21:52 PM »
Karol.....Westchester is NOT upstate  lol

You left coast folks crack me up!!!

Nope...not close, but it was worth a shot!  We will get our chance....crappy as things are going, I haven't given up on Vegas!!!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #11 on: April 14, 2009, 04:31:34 PM »
Quote from: Wenchie58 on April 14, 2009, 04:21:52 PM
Karol.....Westchester is NOT upstate  lol

You left coast folks crack me up!!!

Nope...not close, but it was worth a shot!  We will get our chance....crappy as things are going, I haven't given up on Vegas!!!

Yeah, I don't know where we are going - it's the right coast - beyond that I am clueless - I know we're taking the train to Sarah Lawrence and I am renting a car to drive to Bard - I am bringing my GPS, otherwise I might end up at your house! What city are you in? Becca's best friend is going to college at Hobart & William Smith (in Geneva, I think.) Is that closer? We will be visiting there to see her next fall.

It's funny, when people hear I am from California they'll say "Oh I have a cousin in La Mirada (huh?? that's 40 miles and 1/2 a million people away!) So I am sorry, I don't know upstate from the tri-state.  :rofl;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Wenchie58
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Always carrying the big silly grin!
« Reply #12 on: April 14, 2009, 06:23:01 PM »
I'm closer to Geneva...it's agreat drive up the Lake in the fall.  Let me know!


I have a friend in Mira Loma!!!   :rofl;
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
paris
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« Reply #13 on: April 14, 2009, 06:31:12 PM »
Have a great trip and enjoy this time with Becca.  Hope you find internet somewhere!!

And I have a nephew in Sacramento   :rofl;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
dwcrawford
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Getting the heck out of town.
« Reply #14 on: April 14, 2009, 06:41:48 PM »
I want to go!  I think I left a cheesecake there last time.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
paris
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« Reply #15 on: April 14, 2009, 06:54:36 PM »
Quote from: dwcrawford on April 14, 2009, 06:41:48 PM
I want to go!  I think I left a cheesecake there last time.

 :rofl;  :rofl;  :rofl;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kitkatz
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« Reply #16 on: April 14, 2009, 09:11:51 PM »
Have a great time! :yahoo;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Zach
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"Still crazy after all these years."
« Reply #17 on: April 14, 2009, 09:12:37 PM »
Safe travels!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
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Joe Paul
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« Reply #18 on: April 14, 2009, 09:40:37 PM »
Have a safe trip  :thumbup;
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Chris
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« Reply #19 on: April 14, 2009, 11:03:00 PM »
Hope you have a great and safe trip. I'll try to stay out of trouble while your away  :rofl; :rofl; :rofl;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
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No two day's are the same, are they?
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« Reply #20 on: April 15, 2009, 01:08:59 AM »


 :waving;  Have a great time. I am excited for Becca.     :cuddle;
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PKD
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Sluff
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« Reply #21 on: April 15, 2009, 04:30:23 AM »
If anyone stops you and asks for money to fix their car before it gets towed of the toll road,...don't believe them.   ;)

Long story.
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paul.karen
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« Reply #22 on: April 15, 2009, 05:20:57 AM »
Driving in New York isnt bad.  Driving in Manhattan is a whole differnt story.

be safe and have fun.
Get some Pizza and or a cheessteak :thumbup;
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #23 on: April 15, 2009, 02:59:18 PM »

Arrived - nice hotel. Meeting cousin tonight for dinner.
Kristina - I got your message.
Anyone speaking to twirl, please tell her I am thinking of her.
Bye for now.  :waving;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willieandwinnie
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« Reply #24 on: April 15, 2009, 03:07:54 PM »
 :waving; Glad you arrived safely. Have a great time and please have a bagel for me.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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