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Author Topic: Locks of Love  (Read 4716 times)
willieandwinnie
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« on: April 14, 2009, 08:48:43 AM »

I think I must of been trying to give Len a heart attack. I have always had long thick hair, I think that's what Len first noticed about me. My daughter and I went shopping last Friday and we were just looking in this wig shop, they have some pretty cool wigs. This woman approached me and asked (yes, she asked) if she could run her fingers through my hair. I said sure. She then told me that she volunteers for locks of love. They make wigs for cancer patients mostly, but also for other reasons that people loss their hair. She told Ramona and I that they could make many wigs out of my hair. We talked for a few minutes and I told her my Mom died of breast cancer when I was 11 and I always do the Avon walk. She then asked me if I wanted to donate my hair. What you say, oh Lord, you should of seen the look on my daughters face. Too bad I had no  :pics; She said they would cut and style my hair anyway I wanted it as long as they cut 10 inches off. I said sure, it's only hair and it will grow back. She had some girl sit me in the chair and made a ponytail at the 10 inch mark, I said, you can have somemore, so she moved the band up a little higher, I said more, she said, are you sure, I said yes. When we were done, she a ponytail that was 18 inches long and for a moment, I thought I was going to be buying a wig. The girl shampooed my hair and then cut some more. I thought it looked really cute, my daughter wasn't so sure. When I walked in the door at home, Len's mouth dropped open and Ramona told him the story. He hugged me and said, I'm not surprised, you are always doing something for others. That comment made my heart feel good. It is taking awhile to get use to not using so much shampoo and wrapping my hair in a bun to do certain things, but I am happy I did it. Now I want my hair to grow really fast, so I can do it again. Thanks for listening to me yet again.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: April 14, 2009, 08:52:04 AM »

That's great WAW!! It's such a great gift for cancer patients! I wish you had a photo.

Jenna donated after her hair grew back (she lost a lot when she started dialysis)

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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paul.karen
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« Reply #2 on: April 14, 2009, 08:54:01 AM »

 :clap;

That is a WONDEFUL story.
it is the people like you and so many others that make the world go around and give people with so little, so much hope.

Im sure your mom was smiling down on you.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
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monrein
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Might as well smile

« Reply #3 on: April 14, 2009, 08:54:21 AM »

Kathy, you're the best.  What a wonderful thing to do and a little less painful that donating a kidney although the emotional part could devastate some people.  Not you however and I'm smiling broadly at how meaningful your gift will be to those who will receive it.   :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MandaMe1986
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« Reply #4 on: April 14, 2009, 09:01:02 AM »

When I was going through chemo treatments my hair got really thin and I cut it really short to try and keep it from falling all out.  But once I stopped and I grew it back I donated mine, and got my bestfriend to do it too.  It really is awesome what you did.  :cuddle;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
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Blessed are the meek, for they will inherit the land.
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lola
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I can fly!!!

« Reply #5 on: April 14, 2009, 09:34:26 AM »

 :2thumbsup; :2thumbsup; Very cool, both my daughters 9 & 6 and I did it
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G-Ma
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« Reply #6 on: April 14, 2009, 10:14:13 AM »

 :cheer:    :bandance;    :flower;     

That is great.  My 2nd husband grew his hair to his waist one time and donated about 2 years before he passed on.  Beautiful hair.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
paris
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« Reply #7 on: April 14, 2009, 11:59:57 AM »

To quote AlohaBeth "you have a pretty, shiny heart"  She tells people that when they are so extraordinary in the kindness and their caring.  You are such an example of how we should all live; always thinking of someone else instead of yourself.  And  :thumbup; to Len for embracing what you did instead of bemoaning the loss of your lovely hair.     When my sister in law died from cancer three years ago, 2 of my granddaughters donated their hair.  Eliza (9) is ready to have hers cut again.       I think you are as close to an earth angel as a person can be.   :cuddle;   :cuddle; 
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
willieandwinnie
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« Reply #8 on: April 14, 2009, 12:15:53 PM »

okarol, I never even thought about having my cell phone which does have a camera. Maybe I was having a senior moment. Len told me to post this one. This is from 2004 and I did have some of the ends trimmed every now and then but gives you an idea of just how much hair got cut. My back feels colder then normal  :rofl;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
paris
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« Reply #9 on: April 14, 2009, 01:07:57 PM »

Kathy, what an incredibly, beautiful picture!   The men of IHD are going to love it!    Lucky Len  :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
monrein
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Might as well smile

« Reply #10 on: April 14, 2009, 01:28:19 PM »

Beautiful hair Kathy.  And I know you're simply stunning still with short hair....how could you be otherwise with such a beautiful inside.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #11 on: April 14, 2009, 01:43:27 PM »

Kathy - that's a great photo and your hair looks fantastic!  :2thumbsup;

How about an "after" shot?  :pics;
« Last Edit: April 14, 2009, 01:55:14 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
glitter
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« Reply #12 on: April 14, 2009, 01:51:20 PM »

You are very beautiful- inside and out.  :)
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
charee
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« Reply #13 on: April 14, 2009, 05:07:06 PM »

what a beautiful thing to do i love the picture now we need an after shot :pics;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
Sunny
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Sunny

« Reply #14 on: April 14, 2009, 05:23:41 PM »

Wow, you do have beautiful hair. What a wonderful thing to do. I'll bet it still looks good even after cutting it off. Someone, somewhere will be grateful that you cut it when they get such a nice wig because if it.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
kitkatz
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« Reply #15 on: April 14, 2009, 09:41:32 PM »

 :grouphug; :grouphug; :cheer: :cheer: :flower; :flower; :clap; :clap;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
pelagia
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« Reply #16 on: April 15, 2009, 07:33:30 PM »

Beautiful hair, beautiful person  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Tinah1968
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ME

« Reply #17 on: April 16, 2009, 06:06:58 AM »

That is a wonderful thing you did. And it is people like you that make this world a better place.. God bless you.  :grouphug;
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
willowtreewren
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My two beautifull granddaughters

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« Reply #18 on: April 17, 2009, 06:55:07 PM »

Locks of love is a wonderful way to help children get through the side effects of chemo.

I cut that braid off a couple of years ago when I realized that it was starting to get a little gray. They can't use gray hair. The long braid is back, but too much gray now. It is, after all, only hair. I was inspired by a child in my class who cut her hair for Locks of Love. It is such a loving thing to do.

Kathy, your hair was beautiful, but it is what is inside that really counts.
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
MiSSis
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« Reply #19 on: April 18, 2009, 12:27:21 AM »

Why can't they use grey hair?  My mother knew she would be losing her hair when she started chemo about 7 years ago so she went to find a wig in order to try and match her color and style as closely as possible before she actually lost it all.  Because her hair was already grey (almost white), she was able to get a wig that so closely resembled her own hair that many people didn't even know she was wearing a wig.  I've heard that they won't use chemically processed hair, like if you have your hair permed or colored but didn't realize they wouldn't use grey hair also. 

When my mom lost her battle with cancer last year, my dad donated her wig and all of her hats to the center that treated her so that they could offer them to others who might not be able to afford them. 
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"Keep your face to the sunshine and you will not see the shadows."  Helen Keller
jbeany
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Cattitude

« Reply #20 on: April 18, 2009, 08:43:53 AM »

"pretty, shiny heart" indeed!
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My two beautifull granddaughters

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« Reply #21 on: April 18, 2009, 10:44:58 AM »

Hi, MiSSis,
I think they don't use gray hair for Locks of Love because the wigs are for children. I remember some time back seeing another donation site for hair for adults, but I don't remember what it was now.  ???

The important thing is that we all can find ways to help others. It is good for the soul.  :guitar:

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
twirl
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« Reply #22 on: April 26, 2009, 09:56:48 AM »

you will be getting a pm for RichardMel  >:D >:D >:D
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